Posted by Monique (207.61.107.49) on February 12, 2000 at 17:54:56:
In Reply to: a slightly different view of attack treatment, especially attn: Monique posted by gary on February 12, 2000 at 12:14:47:
Have any of you heard of or used Sibellium. It is the only Preventative medication that worked for Greg. He was cluster free for 32 months. The doctor suggested that he go off it and see how he was......CH started within 14 days and he was into a really bad cycle. He has never tried it again, and frankly niether one of us can remember why. Has anyone else ever used it. It takes about six weeks to get into your system so it's not much used once your into the cycle. Also A concise comprehensive posting or link to the left about the oxegen therapy would really be nice. The doctor does not have any good info. He doesn't even seem interested in it, but is willing to perscribe it for Greg. I have read in various places about regulators, masks with specific things, air flow rates and something about water bag? finding it all and compiling it is not a real easy thing to do as you are all aware I am sure, with no sleep in.....can't even remember when anymore. So if someone is useing oxegen and has all the info. I would really appreciate it.
Thanks Monique