A Sad Ending

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Posted by jon ( on February 19, 2000 at 06:18:35:

Today was supposed to be my last day on the prednisone taper. But, as I tapered down the pressure in my head increased. So much I wanted to believe that I was in remission that I was in kind of a denial about it. But as I posted earlier, Thursday night it came on with a vengeance. What seemed like four individual events, I suspect was actually one 14 hour deal broken up by trips to the Emergency room. (One of these days I will relate to all of you the dark adventure of showing up at a local Vietnamese hospital turning about a kip "9" and asking for O2).
Anyway, I had to jack the Prednisone back up to 20mg and am now back in remission. However, playing with Prednisone like this is not a good idea I suspect and I have made the very difficult decision to make the long journey back to USA and see my Neuro. I'll head out in tomorrow (Sunday) morning. Best Weekend wishes to the group and I'll check in when I return.

P.S. Jonny says I can whine so,......The lousy feeling that I have tonight is not because I have to travel for 24 hours just to make a single doctor visit, but rather that I suffered so much during this cycle and I wanted victory so badly. Having the pain stop is purely superficial....prevailing over the Beast is the ultimate goal. This time he got me....:-(

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