Posted by REGINA NIPPER (152.163.204.62) on February 23, 2000 at 02:21:39:
HELLO,
I FOUND THIS SITE A COUPLE OF DAYS AGO. I READ SOME OF THE MESSAGES AND IT BROUGHT ME TO TEARS. I HAVE BEEN SUFFERING FROM CLUSTERS SINCE THE AGE OF 14. THEY ARE CHRONIC AND DOCTORS DON'T SEEM TO UNDERSTAND THE EXCRUCIATING PAIN THAT WE HAVE TO DEAL WITH!! I FELL ASLEEP AT 10:30PM LAST NIGHT AND HAVE ALREADY BEEN AWAKENED BY 4 CLUSTERS. I CAN'T TAKE IT. I DON'T HAVE THE TOLERANCE FOR THE PAIN LIKE I DID WHEN I WAS YOUNGER. I ALSO HAVE NUMEROUS OTHER MEDICAL PROBLEMS AND I FEEL LIKE I AM LOSING MY MIND BECAUSE I CAN'T GET ANY RELIEF. I HAVE TRIED EVERYTHING IN THE BOOK. STADOL NS WILL TAKE THE EDGE OFF BUT SO FAR THAT IS THE ONLY DRUG I HAVE FOUND THAT WILL DO ANYTHING AT ALL FOR THE PAIN. OF COURSE DOCTORS THINK THAT WE JUST LIKE THE DRUGS BUT AS WE ALL KNOW, WE JUST WANT TO HAVE A NIGHT WITHOUT PAIN! IF ANYONE KNOWS OF A DOCTOR WHO UNDERSTANDS THE AGONIZING PAIN CAUSED BY THESE HEADACHES PLEASE LET ME KNOW! MY HUSBAND TRAVELS AND I HAVE A 6 YEAR OLD DAUGHTER WHO IS A NERVOUS WRECK BECAUSE SHE SEES HER MOTHER BEATING HERSELF IN THE HEAD AND BEATING ON THE KITCHEN COUNTER AT ALL HOURS OF THE NIGHT AND CRYING LIKE A BABY. I TRY NOT TO LET HER SEE ME LIKE THIS, BUT THERE IS NO WAY AROUND IT. ANY ADVICE OR HELP WOULD BE GREATLY APPRECIATED. I AM ALSO EXTREMELY COMPASSIONATE AND AM HERE ANYTIME ANYONE NEEDS TO TALK. GOD BLESS YOU ALL!!
SINCERELY,
REGINA