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Posted by Todd ( on February 23, 2000 at 15:40:07:

In Reply to: monique's husband posted by greg on February 23, 2000 at 13:00:38:

Monique is clearly an intelligent, caring person who's done some good research, but don't sell yourself short. Don't know how well you type, but you speak as well as she does.

I've just re-read my post 3 times, though, and I can't find anything cynical or defeatist in it. The fact is, clusters CAN'T be cured, and so far, the treatments available DON'T work for everyone and USUALLY become ineffective over time. It's way too early to even consider concluding anything about the mushroom tea theory, but rest assured that I'm hoping you have results that mimic Rider and Flash.

I'm afraid you and I will have to agree to disagree as Monique and I have, unless we can agree to one addition to your otherwise excellent anecdotal definition of clusters. Here's what I'd add:
AND there is neither a physical cause for your pain nor is there a different, more fitting diagnosis as to the type of head attack you suffer.

By your original definition, a guy who has been impaled by a steak knife would have clusters. Add in the variances in people's ability to tolerate pain, and you open things up for people suffering 'simple' tension headaches to say they feel like dying. Their '10' probably doesn't register as a strong shadow for you. Still think they have clusters?

My point is this, and Kenn's reply to Jamy's post about a new link confirms this: There are TONS of headache and migraine sites on the WWW. There is NO other site devoted exclusively to clusters.

I feel for people with migraines, sinusitus, tension headaches and other head pains. I sincerely hope they find effective relief. But if they have sinusitus and are being treated for clusters, they won't. Simple as that.

Inaccurate diagnoses are worthless and potentially dangerous. Ask Monique and she will tell you that EVERY newbie that shows up here wondering if they have clusters gets the same answer:
Take the cluster quiz here.
Give us a detailed description of all your symptoms.
See a neurologist who knows about clusters.
Get an MRI (at the least) to rule out other, potentially fatal, causes.

Guess I just don't see what is cynical or defeatist about wanting to get back to focusing on clusters. That is, after all, the one and only reason and purpose for which DJ created and maintains the place.

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