In regards to the site.....

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Posted by Jamy ( on February 23, 2000 at 16:36:23:

In Reply to: Greg posted by Todd on February 23, 2000 at 15:40:07:

I found this message board for CH sufferers, within 24 hours of my being diagnosed, correctly, finally. The reason I posted that site yesterday, was to possibly give those in circumstances of little resources an edge. If someone is doing a study on chronic pain in neurology and they were, which they are not, in my neck of the woods, hell, I would go. They can call it anything they want as long as they get rid of the pain. And maybe, jusy maybe whatever someone learned at the study could be reported back here. I have read Carl's posts and his situation makes me very sad and frustrated. I have a problem with not being able to help the world. If there is a study in his area, what does he care what it's called as long as the pain is no more. If there is another type of chronic neurological pain not from trauma, I am ignorant of it. I have made it my focus to try to find study sites. So far I have only found NIH and centerwatch. I will continue to post what I discover even if there is not a study specific to our needs. You never know when one will come up.

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