just found site . . . having 1st episodes in 5yrs!

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Posted by Rebecca T ( on April 28, 2000 at 00:25:37:

Hi! I just found this site and feel the urge to drop in and introduce myself. I'm 26 now and have been getting CH since 14, was diagnosed at 19 and have enjoyed a 5 year remission after getting pregnant at 21. Now they are back worse than ever before. I'm in my 2nd episode since Oct. and am considering another child just so they might go away again! My hubby is unhappy because the house is a mess and the kids are acting out since mommy is practically useless. I'm good for about an hour or two at a time and then another attack or a harsh shadow comes along. I'm just so thankful that they end after a few hours! I don't know how people who have cancer and are in intense cronic pain that never stops do it! I can't seem to get my hubby to understand that I'm not just a lazy whimp. He's being nice, but a bit passive aggressive about it. Today he told me that pain is relative and depends on the amount of time one spends thinking about it. I asked him what happens when the pain is so bad you can't think and he just ignored me. He sleeps like a log so he's not up with me in the middle of the night when I'm rolling around crying or pacing and pounding my head with my fist and would probably think I'd lost my head if he saw it anyways! I see my nuro tomorrow (thank you God for health and prescription coverage! I remember when I didn't have it and bought my meds in 5 day doses with whatever I could scrape together!). She put me on Verapamil and prednisone April 1 and the headaches went away, but came back once the course of steroids was over and the verapamil doesn't do anything. She's just going to have to put me on the prednisone again 'cause I can't keep going like this! I'm looking forward to getting to know you guys, but I have to go to bed know. I feel an attack creeping in and maybe if I get to sleep right away, it'll go away!

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