Posted by Deb (205.200.65.75) on April 28, 2000 at 16:34:52:
In Reply to: just found site . . . having 1st episodes in 5yrs! posted by Rebecca T on April 28, 2000 at 00:25:37:
Hi Rebecca: Sorry to hear your CH are back. It's bad enough we have to deal with the pain, but a lack of support/understanding from the ones who love us can aggrevate it even more. It's like banging our heads against a wall, literally and figuratively. There are alot of people who come to this site who have never suffered a CH but love or know someone who does. They are regular contributors here in their effort to understand and support us and those close to them who suffer horribly. All of us here have been subjected in one form or another to the frustration we face when trying to make others understand. Everyone has had a headache and most have even had a migraine once or twice, so they think they can relate and that we are weak, selfish, dramatic etc., etc.,we know better and thankfully this site and these people are here to share their stories, their triumphs, their pain and their love. It is with this collective voice that maybe we can break the barrier of ignorance that surrounds our suffering. I would strongly encourage you to explore this site and links and to print off information that you feel may be useful in helping those around you understand what you are going through. Also encourage your hubby to visit this site and to participate on the message board, you both will be welcomed warmly. Good Luck and PFDAN.