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Posted by MaryD (4.54.102.243) on June 16, 2000 at 16:02:26:

In Reply to: They do, but often stop when you go beyond symptoms into self-diag... posted by Andrew Mytys on June 16, 2000 at 14:10:46:

I am lucky I have a great doctor.After under going Radioactive iodine due to 3small tumors in my thyroid gland last July, I began wake up each morning with pain in my right eye, right temple and pain on the right side of my head. This started last November out of the blue. I just thought I needed new glasses because of the changes my body was going through after the radiation. But it still continue even after I got my new glasses. I finally went to see my doctor in March. He first check me out for Temporal Arthritis which is very rare and he new right away it had to be ruled out. Blood work showed I did not have this. In April I had my first Aura, three hours of tunnel vision and alot of other things, by the time I got in to see my doctor that day he told my I had Horner's chronic cluster headache syndrome. I thought he was just putting me off, I had never even hear of this. I didn't not know what to do. Over the following week seven full days of pain and what I now know as heavy shadows were upon me. I decided I'd go to the library and pick up some books on headaches and see If cluster headaches was a real diagnosis. After reading the book about all kinds of headaches including a chapter on Cluster headaches. I came to the internet for my next source of information and found this web site. My doctor new. I have since written him and told him about this web site. He was so glad I took it upon myself to look up all I didn't understand. I can now answer his question with understanding and know my life is in the hands of a Great Doctor.


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