Posted by Elaine (24.88.1.116) on June 19, 2000 at 22:06:37:
In Reply to: Deferred diagnosis due to CH symptoms? posted by Q on June 19, 2000 at 20:28:20:
Deferred diagnosis due to CH symptoms?
My CH-symptoms may be masking other conditions, like I don't know, and am sort of afraid to find out.
I can understand your feelings on that Q !
Specifically, the attacks have been switching sides with frequency. Daytime attacks on the right, night time attacks on the usual left side. Imitrex knocks both out, as usual.
I have had my clusters change side also but that lasted only a short time.
The frequency of the attacks has increased from 1 every day or so, say 5 per week, to 3 or 4 per day for the past several weeks, rarely skipping a day.
I have like you five per week then it seems like at certain times of the year I go through a bad time having as many as five aday.
The question I ask the group is "has anyone deferred medical diagnosis because the CH symptoms were masking the symptoms of another, perhaps unrelated, medical condition?"
Yes I had a anersym (sp) and when the pain came I thought it was a cluster a bad one like I never knew before. I passed out and was taken to the hospital I had a small lick. Thank God!
For example do the attacks on the right-side relate to something other than CH? I understand that NORMALLY CH does not switch from side-to-side, and certainly not on a daily basis like what is going on now with me.
I was not getting my clusters on both sides when I had the anersym! So I am not sure.
Given the rarity of CH in the first place, how am I going to explain THIS to the doctors?
Just the way you explained it here Q
Something has changed recently. Either (1) it is CH morphed into whatever comes after ordinary CH, or (2) it is CH and something else. I've been thinking it was simple, but odd-CH, but now I'm not so sure and wanted to fly-it past the group for ideas.
When in dought its best to go to the doctor!