please NO

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Posted by susan ( on September 07, 2000 at 02:07:16:

Hi everyone! It's been a long time since I've been here! In my rose colored world my clusters were never coming back! Have any of you any answers? I've had clusters my entire life! Earliest memories from about 5 years old! Last year I only had a handful of HA and then nothing! Seven years previous I had a cluster from March to August! Everyday, all day, no relief for half the year for 7 years! Now it's September and I was celebrating that this would be 2 years with only a handful of pain! I can live with that! Then at 6:am BAM I'm woken up by a stupid HA! Is it normal for clusters to do this? I've only documented the last eight years and it has been pretty consistent except for the new drugs I try! The pain is the same, the length of the cluster is the same. What happened? Also...does anyone have IBS? spastic colon? and does it really get out of hand during a cluster? Oh this sucks!! Thank you for being there!

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