Posted by Randy B. (220.127.116.11) on September 15, 2000 at 22:03:22:
Thanks to everyone for the welcome here. I gives me some comfort knowing there`s others
who understand, I mean REALLY unerstand. In some of the reading I`ve done (here as well as else
where), I`ve read about people who know what triggers their CH., but I can
say that I`ve noticed nothing about my clusters that point to anything at all. Even the over all cycle
is rather random. a cycle can be as long as 4 months, or as short as 1.
And I can be pain free for as long as 8 or 9 months, but usually remission is about 6 months.
During a cycle of CH`s, they come mostly in the evening, but can be in the mid. of the night,
or in the mid. of the day at work. It doesnt seem to matter what I do, or where I am. I usually
get 1 or 2 CH`s a day, and have shadows constantly. When I make that transition from shadow to CH,
it`s only a matter of a couple mins. Unfortunatly, it`s a very long slow tapering of pain afterwards.
The bad part will last an hour or so, but I dont feel normal for as long as 4,5,6 hours later, then
its back into the shadows. Anyone else similar ?
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