years???!!! no way!!

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Posted by jacque ( on January 02, 2001 at 11:11:32:

In Reply to: How many clusters a day??? posted by Jacque on January 02, 2001 at 10:02:05:

I dont know if we will make it years... he has fought these SINCE JULY! ended up in the er... passing out..and other events. YEARS,,, you have got to be kidding me. I better get a caring neuro. we cant get him diagnosed. the doctors think i am crazy when i tell them that i think (mom's gut feeling!) that he is suffering clusters. the neuro looked me straight in the eyes and said "KIDS DONT SUFFER FROM CLUSTERS" oh i wanted to hit him, but i responded "YES THEY DO" i was cool, but really irritated! OK YEARS, well then, looks like i better do some preparing. Are your pains similar to daniels? i have missed tons of work taking him to appts... and he has missed school and his sleep. the past few nights he has been up til 2 or later fighting them. i feel so bad for him. The holiday has been hard on him, you know fighting them. Dad is beginning to understand, thank goodness he is beginning to take him seriously!! Please respond, i am at wits end, and just dont know what to do for him... think i am gonna try the icepaks, daniel seemed to agree trying this method. he is back at school today after the winter break, wonder how he is doing! i think of him often! thank you all for caring about his pain. jacque

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