daniel's update

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Posted by jacque ( on February 22, 2001 at 09:10:59:


I hope this message finds you feeling well and BLESSED!

Daniel went to the doc yesterday and i was extremely CALM! believe it or not.

The appt didnt go half bad! ken, our doc., wants to get daniels stomach back together before we begin new treatment on daniels HAs. i agree 100%! so we took him off the pepcid and carafate and put him on prevacit or something like that.. once his stomach is back to normal (it is healing! YEAH!) then we begin again on the HAs.

I gave the doc a present.... LITERATURE on CH and CPH! asked him to read at his leisure! i really think he will. he even took time, quickly, to glance at some of the meds mentioned in the articles. what my goal was was to give him literature with credentials! and i DID IT! BIG YEAH!

For now, daniel is 'dealing with the pain'. bless his heart you guys! he is so brave.. this is what he told me yesterday on the way to the doc.

almost a confession.... he said the pain originates in the right temple and travels behind his eye (sometimes) in like spasms. (i mentioned the pictures drawn by a sufferer and he said he might begin drawing when they hit). he said that when they get real bad, he feels like (my words here) he has conquered yet another! he goes " ew that was a good one, oh yeah!" does this make sense to any of you? i really think that because they last from 2 mins. to a couple of hours,and has MANY a day, he is suffering from CPH. you know, i pray he is suffering from this cause i want to think he can find true relief from this!

By the way, he had a blast with his band in disney! he did ok as far as pain went... thanks for keeping him in your prayers... you guys are a lifeline, just cause you listen!!! and you can relate!!! thank you for being here.

I PRAY you are feeling painfree today!

wishing you all a blessing of a healing......

hey if i forgot something or if what i said 'just dont sound' right.. let me know!

mother of sweet daniel!

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