Posted by Trudy (22.214.171.124) on February 22, 2001 at 09:31:39:
In Reply to: daniel's update posted by jacque on February 22, 2001 at 09:10:59:
Jacque - oh I'm SO glad he's doing better and coping with his daily HA's. That is an enormous step for him! Also thankful he had a good time on his band trip - he still needs and deserves to be a KID above all.
Sounds like you have turned the corner and are handling this all well and being the determined and supportive mother you need to be in all of this - I'm so happy for you.
Keep in touch and I pray Daniel's doctor will take that literature you gave him and find that magic combination that will give him a painfree life - he deserves this.
What ever happened with the possibility of Indocin? Is that part of the literature? I can't remember - are we talking CH or CPH?
Take care and God bless you both!!
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