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Posted by howard ( on March 10, 2001 at 11:18:27:

In Reply to: I agree posted by Steve A on March 09, 2001 at 19:32:42:

I was telling my girlfriend last night how great it is to have found this board. I have never met a fellow CH sufferer. And you are right NO ONE gets it. Even though doctors are aware of the problems from hearing the testaments of patients, even they don't get it completely. You really have to have it to know about it. I can now relate to others and it feels great.

I also have tried everything and it regretfully has on occasions made them worse and unpredictable. For me the only positive thing about this is that 1)It was diagnosed 12 years ago and I didn't have a massive tumor or something and 2) Its not life threatening 3) and best of all I know when I get them they will go away.

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