Posted by Kevin (184.108.40.206) on April 14, 2001 at 12:25:27:
First, I want to let anyone who reads this that i can see that this site is a great source of support and information. I can only hope to contribute as much as the rest of you.
Should I tell my fiance to run now while she still has the chance? I would hate for this to ruin her life also.
She hasn't even seen the worst of it yet. How do your spouses handle it?
Also, saw the neurologist yesterday. They are suppose to be one of the best in the country. But he could not tell me for sure if it is CH. After reading alot here, I know that it is. Trust me though, I really wish it was something else. An operatable brain tumor may be better than CH. At least they could fix that.
I will be taking the Spadol spray and Imitrex injections for the pain. He also gave me Vermapil and Predisone. In all, that cost me about $150. Pardon my french but my prescription plan really sucks. Oh well.
Take care all and Thank you
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