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Posted by Simon ( on July 29, 2001 at 05:58:01:

In Reply to: HELP - My fiance's cluster migraine posted by J. Michael Phillips on July 29, 2001 at 02:42:07:

Two or three quick things. Michael, you are right, there are officially no such things as "cluster migraines", but, having said that, a lot of doctors refer to them, erroneously, as such, including both of those at my own practice that I have seen.

Secondly, and more worryingly, clusters do not hit 8-12 times a night. The official CH description goes up to about 8 a day. Beyond that, there is some doubt, and any decent doctor would be immediately investigating CPH rather than CH. True some sufferers may get hit slightly more on occasion than that. Since a typical CH attack lasts around an hour, possibly a little more, it is difficult to see how one could possibly have twelve in a night anyway.

Clusters and migraines can co-exist. In my case I do not get migraines when having ch, but I suggest you ask Elaine and others about having them together during a bout, if not simultaneously.

We have to be careful about definitions, in order not to exclude genuine sufferers. By your quick comments you've almost certainly excluded 95% plus of the people on the board!

As to slurring speech etc, some clusterheads get that as a by-product of the attacks themselves Marie - I know I sometimes appear senile to anyone who sees me during and shortly after an attack. It would help though to have a more accurate and complete description of your other half's attacks....

If there's information you need, here is the place to find it.


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