Posted by Shane (22.214.171.124) on December 14, 2001 at 02:01:52:
In Reply to: Lots of new whiners here. Here is my circulatory post: posted by Charlie on December 14, 2001 at 00:43:04:
Ok Im not trying to sound like a asshole here man but your subject is way to harsh. Anyone here posting messages IMHO is not a whiner.
Lets look at it from this stand point. You say you are a clusterhead. And your technique works. Well please read the following:
I have personally tried what you are saying you are doing before. I have been a cluster head for about 3 years and was just "diagnosed" last week. I never went to the doctor for reasons of being scared of thinking I had something way wrong inside my head like a tumor...I know this sound dumb...but Im 22 and I didn't want to hear any bad news. I remember during these past years trying different things to releive pain. I read about meditation, special breathing techinques, hell I took Kung-FU and Tae Chi classes. I tried a ton of things just to find anything to get rid of or make the pain somewhat standable and nothing worked. Finally I gave in.
During these past 3 years I have been single. I have been afraid to date mainly because of the headaches. So when I started dating I decided that I should investigate my headaches because going sometimes a week without sleep from fear of waking up from a headache sucks. So I found this site and read a ton of info. I fit the description of a clusterhead so I asked a few questions on this board and finally went to a neuro. To date this has been the best decesion I have ever made in my life. Topomax is making my life normal. Im on 100mg right now and so far Im almost at 3 days without a headache. Its been almost 2 years since I have had 3 days in a row without a cluster!
So please do not call anyone in here a whiner. Yes your technique may work for you and I wish it worked for me and others. Trust me alot of us before we went to the neuro's/docs we tried stuff like ou mentioned. In fact you do not want to know what made me tolerate (if that) my pain...I told a few a while back and some people laughed and others were in a kind of shock stage :) hehe
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