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   Author  Topic: OUCH in the news  (Read 528 times)
Bob P
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OUCH in the news
« on: Dec 19th, 2003, 8:29pm »
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The lady from St. Joseph, MO has her article on the web.  Sorry Don, looks like you lost your job.
http://www.stjoenews-press.com/Main.asp?SectionID=152&SubSectionID=2 81&ArticleID=48049
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Carl_D
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Re: OUCH in the news
« Reply #1 on: Dec 19th, 2003, 8:43pm »
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Now THAT is TFA!!!
 
Peace,
Carl D
 
 
p.s. - TFA is TOTALLY FUCKING AWESOME!
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BlueMeanie
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Re: OUCH in the news
« Reply #2 on: Dec 19th, 2003, 8:58pm »
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Great News.
Submitted my 2 cents.
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jonny
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Re: OUCH in the news
« Reply #3 on: Dec 19th, 2003, 9:00pm »
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People are desperate. They want anything to make them stop.?
 
Nuff said......CHRIST!!!!
 
.................................................jonny
« Last Edit: Dec 19th, 2003, 9:00pm by jonny » IP Logged
BobG
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Re: OUCH in the news
« Reply #4 on: Dec 19th, 2003, 9:08pm »
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Way-ta-go Bob. I also have left a little message of thanks.
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Jayne
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Re: OUCH in the news
« Reply #5 on: Dec 19th, 2003, 9:11pm »
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That is the best media write up on CH I have ever read!!!!
AWESOME!!!!!!!!!!!!!!!!
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Re: OUCH in the news
« Reply #6 on: Dec 19th, 2003, 9:32pm »
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WOW !!!!!!
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catlind
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Re: OUCH in the news
« Reply #7 on: Dec 19th, 2003, 10:13pm »
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Good stuff Maynard!!!!!!!!!!
 
I forwarded the article to the NECH, who knows, maybe they will have feedback for it Smiley
 
Cat
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Not4Hire
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Re: OUCH in the news
« Reply #8 on: Dec 19th, 2003, 10:18pm »
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just a little something for Ms Zielinski:
 
Quote:
Dear Ms. Zielinski:
 
I applaud your article in .. www.stjoenews-press.com .... this is the kind of exposure we (clusterheads) are looking for and are actively trying to bring to the attention of neurologists, general practicioners (who are in the FrontLines) and pharmacy companies who may, hopefully, provide a medicine that will help us...
 
There are a few inaccuracies in your article, but you have done a very good job of  presenting *our* case...
 
Mr. Hoyt, your *contact/cluster-headache-sufferer* has accurately described the *Beast*... the headache that invades our lives...leaves us exhausted...frightens our wives and children... and is dismissed by most people as a *headache*....
 
well... it IS a headache, but until YOU have one... there are NO words....
 
many people have tried to describe it, and some have come close... "an exquisite pain"... "worse than child-birth"... "a thing that has robbed me of my life"....
 
but we suffer such a "rare" affliction, that there is nothing to be gained financially by the drug companies to explore a palliative or, hopefully, a cure to this thief of our lives....
 
I am an *episodic* sufferer ( 4-8 weeks/year) and some suffer EveryDamnDay (chronics)... their courage is beyond my ken....
 
thank you for bringing this to the attention of your readers.... i sincerely hope that the *word* gets out to a wider audience....
 
Steve Lichens... newly-elected Vice President of OUCH (Organization for Understanding Cluster Headaches)
 
...and Don Young is the President....Bob Pahlow is taking a break.....heh!
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Re: OUCH in the news
« Reply #9 on: Dec 19th, 2003, 10:18pm »
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Actually, I'm impressed too.  
 
I didn't realize that the Bylaws Committee had gained enough power to change Presidents! Sorry to hear it Don……… Wink
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Mastifflvr28
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Re: OUCH in the news
« Reply #10 on: Dec 19th, 2003, 10:55pm »
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Yeah Bob, I thought you was busy throwing tomatos??
 
Thanks for posting the article Smiley
Mast
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Re: OUCH in the news
« Reply #11 on: Dec 20th, 2003, 12:39am »
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Severance pay ??
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Linda_Howell
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Re: OUCH in the news
« Reply #12 on: Dec 20th, 2003, 12:55am »
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I want to know where he/they  came up with the...85% of sufferers are male.
 
BobP may not answer this one.  lol
 
 
LindaH
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Re: OUCH in the news
« Reply #13 on: Dec 20th, 2003, 1:09am »
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By and large I thought it was a well written piece by someone who has never suffered with a cluster.  I posted a note of appreciation.  Sorry you lost the election Don.  I did vote for you Grin, but I had hopes I could borrow the yacht.
 
jc
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"When He acts on the left, I cannot behold Him; He turns on the right I cannot see Him. But He knows the way that I take; when He has tried me I shall come forth as gold." Job23:9,10
Bob P
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Re: OUCH in the news
« Reply #14 on: Dec 20th, 2003, 8:03pm »
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It appears to me that she took some info from the ACHE site.  I'd bet that's where she got the low figure of 85%.
 
I'll confess to you guys.  It was just last month that I realized the auto e-mail that is sent to each new member by the srever was signed, Bob P, President.
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Kirk
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Re: OUCH in the news
« Reply #15 on: Dec 21st, 2003, 3:51am »
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Put my O2 worth in. For what its worth.
Severance pay Don? Didn't you get your plastic back from St. FUD?
 
TTFN
 
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ave
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Re: OUCH in the news
« Reply #16 on: Dec 21st, 2003, 8:56am »
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Excellent!
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Prense
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Re: OUCH in the news
« Reply #17 on: Dec 21st, 2003, 9:56am »
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Hell of alot better than the 2-3 paragraphs published a couple of weeks ago...
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Re: OUCH in the news
« Reply #18 on: Dec 21st, 2003, 11:43am »
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Left my  twocents
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Cerberus
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Re: OUCH in the news
« Reply #19 on: Dec 21st, 2003, 6:26pm »
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Fuckineh!
 
Ramon
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Re: OUCH in the news
« Reply #20 on: Dec 21st, 2003, 8:11pm »
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Any coverage is great coverage Grin.
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