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Topic: Informal CH Survey (Read 1762 times) |
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Tim_Z
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Re: Informal CH Survey
« Reply #50 on: Oct 30th, 2004, 10:42pm » |
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SPARSODIC- usually 4 years pf and 6+ months ch.
1.Yes, nearly every time
2. No, never have
3. No way
4. Not usually
5. No
6. Every time
7. Yes
8. Yes
9. No
10. No
B-1,7,8
Tim
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Sophie
New Board Junior
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Re: Informal CH Survey
« Reply #51 on: Oct 31st, 2004, 1:24am » |
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Seasodic
1-yes
2-yes---Topamax--had to quit (side effects)
3-no---never
4-no
5-no
6-yes---within mins.
7-yes
8-yes--maybe--possible concusion---
9-haven't tried
10-no
A-1-2-6-7
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WHERE ARE WE GOING?
AND WHY AM I IN THIS HANDBASKET?
Cluster Buster
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mynm156
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hope life isn't a big joke, because I don't get it
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Re: Informal CH Survey
« Reply #52 on: Oct 31st, 2004, 2:50pm » |
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EPICHRONIC
1. Most of the time
2. A little.
3. almost never
4. Rarely
5. No
6. Yes
7. No
8. Several minor, 1 Major concussion LOC
9. Only while I have it on. Comes right back if I take it off.
10. No.
(11) Sleep Apnea YES requires use of CPAP therapy.
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"Half of the modern drugs could well be thrown out of the window, except that the birds might eat them."
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Biker
New Board Old Timer
OUCH!!!!!!!!!!!
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Re: Informal CH Survey
« Reply #53 on: Oct 31st, 2004, 5:40pm » |
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C- sparchronic
1-often
2-I think Verapamil helps, but even at high doses I get CH sometimes.
3-for a bit, but not very long
4-once in a while
5-no difference
6-U betcha!!!!!!!
7-yes
8-yes
9-often
10-no
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Ride it like ya stole it.
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kissmyglass
CH.com Alumnus
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Don't Mix Triptans
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Re: Informal CH Survey
« Reply #54 on: Nov 1st, 2004, 7:35am » |
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C, 1, 7, 9
Kev
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"It does so fucking look like her" - Picasso
[img][/img]
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DerbyDemon
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Pardon me. Is that a dagger in my head?
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Re: Informal CH Survey
« Reply #55 on: Nov 1st, 2004, 9:45am » |
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B (but cycle hasn't broken as it typically does; 5 months now)
1. Yes
2. Yes - Each time I've entered episode is when I've failed to renew preventative medication
3. Only lie down to wreath in angony
4. Never let them go longer than 1 hour
5. No correlation to diet whatsoever
6. When in cycle alcohol triggers
7. Yes
8. Played fullback in HS...no concussions
9. No
10. For K1/2s, maybe coffee
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hoosierdaddy
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Re: Informal CH Survey
« Reply #56 on: Nov 1st, 2004, 1:36pm » |
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Guys,
I crunched the numbers up to now. and came up with the following:
I. 49 people participated
a. 10 Seasodic 20%
b. 18 Sparsodic 38%
c. 10 Sparchronic 20%
d. 10 Epichronic 20%
e. 1 unlisted 2%
II. Effectivness of treatments
a.Triptans
1)Seasodic 85%
2)Sparsodic 83%
3)Sparchronic 90%
4)Epichronic 70%
b. Preventitives
1)Seasodic 30%
2)Sparsodic 28%
3)Sparchronic 30%
4)Epichronic 30%
c. Laying down
1)Seasodic 5%
2)Sparsodic 19%
3)Sparchronic 0%
4)Epichronic 10%
d. Diet
1)Seasodic 0%
2)Sparsodic 0%
3)Sparchronic 0%
4)Epichronic 0%
c. O2
1)Seasodic 40%
2)Sparsodic 39%
3)Sparchronic 70%
4)Epichronic 60%
d. Alternatives
1)Seasodic 15%
2)Sparsodic 11%
3)Sparchronic 0%
4)Epichronic 10%
III. Other Questions
a. Duration over 2.5 hrs
1)Seasodic 5%
2)Sparsodic 14%
3)Sparchronic 40%
4)Epichronic 30%
b. Alcohol Trigger
1)Seasodic 70%
2)Sparsodic 78%
3)Sparchronic 80%
4)Epichronic 55%
c. Smokers
1)Seasodic 80%
2)Sparsodic 72%
3)Sparchronic 70%
4)Epichronic 70%
d. Head Trauma
1)Seasodic 60%
2)Sparsodic 33%
3)Sparchronic 40%
4)Epichronic 70%
I omited the unlisted person from the study. Sorry Boonie.
PF wishes
Greg
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..."it feels as if my head is giving birth to my brain and can't decide whether to use my right eye or right nostril as the birth canal."
Hoosier-Daddy?
;^)
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hoosierdaddy
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Are we having fun yet?
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Re: Informal CH Survey
« Reply #57 on: Nov 1st, 2004, 1:50pm » |
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Guys and Gals,
I forgot to mention some assumptions that I had to make.
I made a spreedsheet and listed all yes answers as 1 and no as 0.
Some answers were sometimes and almost always... I considered Almost always as yes and sometimes as .5
I could not figure out how to attach my spreedsheet or the charts. Sorry I haven't practiced up at message board functions.
Keep this thread going as Bluemeanie said he will finish the stats. I just was working at home and had an hour to kill and thought I would share what I found up to now.
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..."it feels as if my head is giving birth to my brain and can't decide whether to use my right eye or right nostril as the birth canal."
Hoosier-Daddy?
;^)
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Axel
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after 15 years finally found a name for the beast
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Re: Informal CH Survey
« Reply #58 on: Nov 8th, 2004, 7:09pm » |
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...
D-1.6.9.
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.......ciao... AXEL.......
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Chillrmn1
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B-1, 6, 7. Have not tried O2 yet but will during next episode. Regarding #2 - Been taking Verapamil but my body/dysfunctional hypothalmus does not benefit.
Am presently at what should be the end of my current cycle. Hope they do not become chronic.
Have seen a new Neuro this time who is willing to try different therapies, 1 being O2 and the other being a prophylactic other than Verapamil. Was prescribed Prendisone to break the cycle this time around and it seemed to work for me.
Note on #6 - Quit alcohol completely after proper diagnosis of CH after learning alcohol was a trigger. Misdiagnosed for 20 years, properly diagnosed 7 years ago.
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| « Last Edit: Nov 9th, 2004, 5:58am by Chillrmn1 » |
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