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Topic: New member..............bad pains (Read 1228 times) |
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Janzokris
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New member..............bad pains
« on: Jan 7th, 2004, 3:41pm » |
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Hi all
Im so glad to have found this forum. At last I can put a name to my pain  My GP told me it was stress causing these pains but everything I have read here just fits me perfectly. Its awful that our GP`s here in GB dont keep on top of things, I bet when I go to them with this they will not even have heard of it. Am suffering really badly at the minute and all I am being given for it is paracetamol, 5mg diazepam and clotam rapid 200mg (which are for migraines!) these tabs all comined ease the pain but dont take the pain away. As for sleeping -- well its totally out of the equation......who can sleep with this damned pain I have.
All for now, cya soon
Janet
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Please someone take this pain away and let me sleep!!!
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Margi
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Re: New member..............bad pains
« Reply #1 on: Jan 7th, 2004, 4:02pm » |
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Hi Janet,
Actually, you live in one of the areas where the BEST research into clusters is being done. Dr. Peter Goadsby has been a pioneer in this area and he sits as one of the trustees on O.U.C.H. UK's board. Check out the UK's website - they do fantastic work over there!!
http://www.clusterheadaches.org.uk/
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kathy copelin, ch.com 8/8/06
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echo
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Re: New member..............bad pains
« Reply #2 on: Jan 7th, 2004, 4:05pm » |
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Seems like docs are pulling the "Stress Related" card out for anything they don't care to understand.
As for "Who can sleep with the pain". No clusterhead I know of.
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"If you love something, let it go. If it doesn't come back, hunt it down and kill it".
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Hirvimaki
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Re: New member..............bad pains
« Reply #3 on: Jan 7th, 2004, 4:12pm » |
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Sleep? What's that?
Welcome.
Hirvimaki
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"What makes us discontented with our condition is the absurdly exaggerated idea we have of the happiness of others."
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Rick_K
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Re: New member..............bad pains
« Reply #4 on: Jan 7th, 2004, 4:23pm » |
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Sleep ??? Isn't that just a concept?
Read as much as you can here and on the OUCH site. Print out that info and take it to your doc.
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episodic since 1969........damn
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Little Deb
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Re: New member..............bad pains
« Reply #5 on: Jan 7th, 2004, 4:30pm » |
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Welcome to our world!
Little Deb
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Adopt a shelter pet!
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ClusterChuck
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Re: New member..............bad pains
« Reply #6 on: Jan 7th, 2004, 4:37pm » |
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Welcome aboard, Janet. Sorry you have to be here. Take the cluster quiz on the left of your screen. Get your doctor to set you up with Oxygen. The info on how to use it is also on the left.
Keep us informed, as we do care.
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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pubgirl
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Re: New member..............bad pains
« Reply #7 on: Jan 7th, 2004, 4:51pm » |
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Hi Janet
I'm Wendy, a fellow Brit and CH sufferer.
Margi is right (thanks Margi!), we are making great strides with the medical profession in the Uk now, and are world leaders in CH treatment and research.
The good news is that the BNF guide that all GP's use as their Bible has the right treatment in it now for CH so if you get your GP to just look at it, you should get somewhere. Also every single GP in the entire country has just been sent a leaflet produced by OUCh about what CH is and what treatments are best. This was achieved from funds raised by OUCh members there and here (Thanks all of you who helped, especially Jayne!)
CH was also featured this week on Casualty which is already getting us great publicity,. We are planning a National CH Awareness Week soon as well.
Do come over to OUCh UK, it is quieter than here, but there is loads of good info and some great people. We also have get togethers regularly, last one Hastings, next one Liverpool in March.
Hope to see you over there
Wendy
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Paigelle
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Re: New member..............bad pains
« Reply #8 on: Jan 7th, 2004, 4:52pm » |
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Hey there! Welcome to the family. Please enjoy the information, humor, bickering, cursing, and everything. It really is like a family. Feel better.
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don
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Re: New member..............bad pains
« Reply #9 on: Jan 7th, 2004, 5:08pm » |
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Wanna sleep?
Dramamine.
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Woobie
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Re: New member..............bad pains
« Reply #10 on: Jan 7th, 2004, 5:09pm » |
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Hello - and welcome home!
Pull up a chair and stay awhile - yer gonna like it here
Tina
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cathy
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Re: New member..............bad pains
« Reply #11 on: Jan 7th, 2004, 5:10pm » |
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Hi Janet...
Welcome to the board, sorry your having to be here but you couldn't have found a better board for CH than this... pay no attention to Wendy...she is a boring old british fart......  this board is much better...but watch out for Chuck !!
Welcome welcome welcome....quiet is boring...
Cathy......
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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pubgirl
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Re: New member..............bad pains
« Reply #12 on: Jan 7th, 2004, 5:12pm » |
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Don
Dramamine isn't legally available in the Uk, you would have to import it via a website or friend
Wendy
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Edna
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Re: New member..............bad pains
« Reply #13 on: Jan 7th, 2004, 5:14pm » |
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Welcome Janet, and glad you found us. Hope you read lots of the info offered here, it helps.
Keep us posted on your progress.
And sleep, well sometimes it does come......but then we know what accompanies it don't we.
pf wishes,
EDNA
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thomas
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Re: New member..............bad pains
« Reply #14 on: Jan 7th, 2004, 5:36pm » |
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Welcome aboard. Have you tried melatonin, It helped me sleep and also helped kill my cycle. Sorry you're in pain 
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pubgirl
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Re: New member..............bad pains
« Reply #15 on: Jan 7th, 2004, 5:42pm » |
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Cathy
Uckfay offpay!
This board is more entertaining, but for best of all worlds, i.e. UK based advice (and there are two other OUCH members in Belfast) USE BOTH BOARDS!
Your ex-friend
Wendy
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thomas
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Re: New member..............bad pains
« Reply #16 on: Jan 7th, 2004, 5:46pm » |
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Look out, here come the claws.....
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Charlie
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Re: New member..............bad pains
« Reply #17 on: Jan 7th, 2004, 6:36pm » |
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Welcome Janet.
Everyone is right. The UK site is well-focused. The newest is the Canadian and it's great too. You'll find a lot of good ideas and ways to deal with this horror at them all.
Like us all, doctors hope to find simple answers. Stress-related diagnoses might sound good but a mental health teaching nurse friend told me long ago that true psychosomatic illness is rare. It's an exception not to find a physical cause for almost all complaints.
Cluster headaches are very frustrating and I think doctors are hoping they don’t have to deal clusters and that it will go away. The thing is that clusters don’t play fair.
Here is what I found worked for me:
http://www.netsync.net/users/charlies/
Good luck and let us know how you're doing.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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ClusterChuck
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Re: New member..............bad pains
« Reply #18 on: Jan 7th, 2004, 7:03pm » |
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on Jan 7th, 2004, 5:10pm, cathy wrote:| ...but watch out for Chuck !! |
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Why, Cathy? Are you afraid that when she sees my arousing good looks, charming personality, sexy body, bedroom eyes, grabable butt, and overall sex appeal, that she might take me away from you?
Janet, ignore that Cranky Cathy, and Wacky Wendy, they are just jealous. There is enough of my charm and appeal to go around!
Chuck
PS: Janet, don't be surprised when you have to teach your doctor. Many of us have had to do that.
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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BlueMeanie
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Re: New member..............bad pains
« Reply #19 on: Jan 7th, 2004, 8:18pm » |
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Welcome Janet.
This board is active 24/7. It seems not too many people sleep around here.
PFDAN
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stevegeebe
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Re: New member..............bad pains
« Reply #20 on: Jan 7th, 2004, 8:19pm » |
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Stress?...Stress?...Tell you Doc that his/her ass hurts.
Welcome Janet. Together, we make it through.
Steve G
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5-string
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Re: New member..............bad pains
« Reply #21 on: Jan 7th, 2004, 9:25pm » |
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Hello Janet,
Welcome...This place will keep you up. I've learned more about cluster headaches here than anywhere. Before I found this place I only knew how these things felt....stick around,
...Mark..
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cootie
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Re: New member..............bad pains
« Reply #22 on: Jan 8th, 2004, 12:06am » |
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Hey Janet....welcome to our home. Pam that now knows 3 brits 
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ZAIRA
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Re: New member..............bad pains
« Reply #23 on: Jan 8th, 2004, 8:34am » |
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Welcome..... and stay with us , it will help you to fight with more courage! Regards, Zaira
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Love yourself, Love others, Love often, Forever!
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Timmi
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Re: New member..............bad pains
« Reply #24 on: Jan 8th, 2004, 9:15am » |
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Sleeping scares me.
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it's got you now.just lie there and be it's bitch untill it leaves.
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