Yet Another Bulletin Board

Welcome, Guest. Please Login or Register.
May 20th, 2019, 2:44pm

Home Home Help Help Search Search Members Members Member Map Member Map Login Login Register Register
Clusterheadaches.com Message Board « Hi all… and did I mention oxygen? »


   Clusterheadaches.com Message Board
   New Message Board Archives
   2006-2007 Getting to Know Ya Posts
(Moderator: DJ)
   Hi all… and did I mention oxygen?
« Previous topic | Next topic »
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print
   Author  Topic: Hi all… and did I mention oxygen?  (Read 1046 times)
ttnolan
New Board Newbie
USA 
*



beats me

   
Email

Gender: male
Posts: 9
Hi all… and did I mention oxygen?
« on: Dec 18th, 2007, 2:13am »
Quote Quote Modify Modify

Well I’ve been poking around here for a couple of weeks now, thought it time to introduce myself. I am 49 and have been dancing with the beast since 1975… 32 years now. I am episodic, 2-3 months on, 4-12 months off. I spent the first 7 years in hell, bouncing from doctor to doctor, tests and more tests, till I went to a family doc I had as a kid. I told him the symptoms, he abruptly got up and went to his office for a book, opened it and said read… I did and it described word for word what I had just said… cluster headaches. It took a few more years and doctors to get to oxygen. The neuro I was seeing had me on sansert – yuck and didn’t work anyway! He had a new patient that swore by O2 and suggested I try it. I think I laughed at him. He stiffly told me to get over it and get a huge tank and put it by my bed. His words were, “if it even works for one person, it is well worth trying”. Good advise, it saved my life… and I mean that in the gravest most literal way! So how did I get here? I was talking with my sister and told her that if I could type “Cluster Headaches” or even “severe pain behind one eye” into a search engine and not get a recommendation for oxygen then I had to do something about it. I felt there were lives to be saved! Thanks to DJ most of my work has been done already… but the mission remains. I am currently working on O2 delivery, in particular the mask. I know about the “Clustermasx” and it is a good healthy step in the right direction, but my goal is off the shelf material available to anyone, easy to self build, works well at the high flow rates we need, robust and easy to maintain, and extremely cheap! I am moving in the right direction on that. So where have I been? I’m an old timer, this site didn’t exist last time I looked. I’ve been complacently satisfied with my level of treatment for the last ten years… but there is nothing quite like having the old trusty meds fail a few times to put you back on the war path! So who am I? Just a compassionate guy with CH that is finding an extreme need to share. Only by sharing can we help to heal each other. So you will see me around more and more. I will never find the words to express the healing that I have experienced by finding all of you here and ouch-us.org. Linda and Mike, what great examples of true warriors, and Mike… the poetry had me crying and healing, and crying, and healing for hours as I sat up afraid to go to sleep one night… Thanks. I can’t wait for the next gathering, I’ve been alone up till now. Again, thanks for this site DJ, now it’s time for me to go to work.
PS. When is the next gathering? Anything I can do?
IP Logged
George_J
CH.com Alumnus
New Board Hall of Famer
USA 
*****




White-Breasted Nuthatch

   
Email

Gender: male
Posts: 4222
Re: Hi all… and did I mention oxygen?
« Reply #1 on: Dec 18th, 2007, 2:20am »
Quote Quote Modify Modify

Welcome to the nuthouse, TT.  
 
I'll be interested to hear about your experiments in assembling an effective 02 delivery system out of cheap, off-the-shelf materials.
 
Best wishes,
 
George
IP Logged

Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
txbeck
New Board Junior
USA 
**





   
WWW

Gender: female
Posts: 55
Re: Hi all… and did I mention oxygen?
« Reply #2 on: Dec 18th, 2007, 8:13am »
Quote Quote Modify Modify

Your timing is impeccable.  Check Meetings and Gatherings, There is a meeting in Davenport, Iowa Jan. 17-20.  I plan to be there! Brrr!
IP Logged

Becky
DennisM1045
New Board Hall of Famer
USA 
*****




One wave at a time!

  DennisM1045   DennisM1045
Email

Gender: male
Posts: 1639
Re: Hi all… and did I mention oxygen?
« Reply #3 on: Dec 18th, 2007, 8:27am »
Quote Quote Modify Modify

Welcome TT!  Glad to have you aboard.  There is an open spot on the starboard gunnal.  Grab an oar and start rowing  Grin
 
I can't wait to hear about your research.  Clustermasxs are pretty rare and the general CH population could really use a cheap and widely available alternative to the non-rebreathers out there.
 
Everyone that finds there way here is overwhelmed by the knowledge that they aren't alone any more.  It changes your mindset and is unbelievably powerful Cool
 
-Dennis-
IP Logged

Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
Guiseppi
CH.com Alumnus
New Board Hall of Famer
USA 
*****





   
Email

Gender: male
Posts: 2703
Re: Hi all… and did I mention oxygen?
« Reply #4 on: Dec 18th, 2007, 10:20am »
Quote Quote Modify Modify

Dude, we are twins! I'm almost 48 and my cycles mimic yours! I'll be at Davcon, it's promising to be a great gathering, just made my reservation a week or so ago so flights and rooms are still available.
 
Touch base with Batch when you get a chance. He is doing a LOT of work on oxygen therapy, might save you some duplication of effort.
 
You sound like someone who will be a tremendous addition to the board, a big old CH welcome to you!!!
 
Guiseppi
IP Logged

Why are all sensors, seeking intelligent life, pointed AWAY from earth?
thomas
CH.com Alumnus
New Board Hall of Famer
USA 
*****




"Hit like a phillips head into my brain."

   


Gender: male
Posts: 3281
Re: Hi all… and did I mention oxygen?
« Reply #5 on: Dec 19th, 2007, 10:46am »
Quote Quote Modify Modify

You sound like a good dude.  Lookin' forward to seeing you in Iowa.
IP Logged

Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
Pages: 1  Reply Reply Notify of replies Notify of replies Send Topic Send Topic Print Print

« Previous topic | Next topic »


Clusterheadaches.com Message Board » Powered by YaBB 1 Gold - SP 1.3.1!
YaBB © 2000-2003. All Rights Reserved.


©1998-2010 Web Vision Enterprises All rights reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

test rss