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Topic: Meds Question (Read 494 times) |
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hotprestwich
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Meds Question
« on: Jan 23rd, 2008, 1:16pm » |
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One thing im wondering is when people are out of cycle
do they keep on taking preventitive meds??
wondering if there is a need to, i know its different for everybody, but i myself have never taken any meds apart from the 02 and coffee, i managed a 4 year remission, this cycle started 2 days before christmas,
and now seems to be tapering down, id hate to jinx it but i managed to sleep alll the way through last night, first time this cycle, the night before woke up a 3am with slight headache 02 kicked its ass within minutes, but up untill then i was getting 3-4 a night,
could this mean my cycle is nearing the end? its been 3 and a half weeks, and 10 days ago i was getting hit high on the kip scale, now there pretty low, anyone else experienced this? i know it morphs into different things,
i guess ill find out tonight, although my last cycle the beast only came every other night and thankfuly gave me days off here and there, thats not the case this cycle, my questions are a bit jumbled up and im sorry for that, im learning to try and not think about it when im pain free, thats a hard step but i gotta enjoy every pf moment.
pf wishes to everyone
Dave
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thomas
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Re: Meds Question
« Reply #1 on: Jan 23rd, 2008, 1:41pm » |
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on Jan 23rd, 2008, 1:16pm, hotprestwich wrote:One thing im wondering is when people are out of cycle
do they keep on taking preventitive meds?? |
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No. No way, uh-hu, nada. Except for melatonin which I do use to help me sleep.
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Religion and sex are powerplays. Manipulate the people for the money they pay. Selling skin, selling God, the numbers look the same on their credit cards. Triptans cause rebounds. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.
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hotprestwich
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Re: Meds Question
« Reply #2 on: Jan 23rd, 2008, 1:44pm » |
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Thanks, i was just curious,
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chewy
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on Jan 23rd, 2008, 1:41pm, thomas wrote:
No. No way, uh-hu, nada. Except for melatonin which I do use to help me sleep.
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Ditto
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Ghost
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Re: Meds Question
« Reply #4 on: Jan 23rd, 2008, 2:28pm » |
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Keep you wits and pray the beast goes elsewhere. good advise here and plenty of support too! stick around if it goes and help others if you can it would be appreciated.
Mike
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hotprestwich
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Re: Meds Question
« Reply #5 on: Jan 23rd, 2008, 2:32pm » |
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I will hang around and offer support for all,
hopefully one day we will find somthing that kills the beast and not just kicks its ass 
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Guiseppi
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Re: Meds Question
« Reply #6 on: Jan 23rd, 2008, 3:58pm » |
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I will hang around and offer support for all,
And that sir, is what makes this the beautiful place that it is!
Guiseppi
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sandie99
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Re: Meds Question
« Reply #7 on: Jan 24th, 2008, 8:41am » |
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Well, it's been a while since I've been on meds, but the last time I took that route I stayed on meds a month after my last hit. I was chronic, so I didn't want to take any chances. But after that month, I slowly tapered meds away.
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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Guiseppi
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Re: Meds Question
« Reply #8 on: Jan 24th, 2008, 10:46am » |
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I will add one thing though.... 
While not specifically a "preventative med" per se, year round I follow this regimen. Daily Magnesium/calcium supplement and a daily Vitamin B-2 supplement. (The B-2 makes you pee really bright orange...don't let it spook you!) It was suggested by my neuro several years ago. Since starting this routine I feel I've reduced the number of cycles and the intensity. Several on the board have posted similar results, inexpensive so certainly worth a shot.
Guiseppi
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hotprestwich
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Re: Meds Question
« Reply #9 on: Jan 24th, 2008, 11:17am » |
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Hey thanks for the suppliment advise,
never tried it but will give it ago, beast hasnt left yet just gave me a day off he was back last night, with a mild one, but this morning whack still shadowing from 6am this morning coffee isnt doing anything the 02 aint doing anything arghhhhh feeling frustrated 
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Bob_Johnson
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Re: Meds Question
« Reply #10 on: Jan 24th, 2008, 11:29am » |
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For people who have frequent activer periods some docs keep them on Verapamil 100% of the time. Most folks come off after a few weeks after their last attack.
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Bob Johnson
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tony-PA
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Re: Meds Question
« Reply #11 on: Jan 28th, 2008, 4:11pm » |
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when im in remission I don't take anything, try not thinking of the beast, and make up with the missed and dreamed wodka 
also a friend of mine keeps taking 120mg p/d out of cycle. but in my opinion this strategy may not let you feel the small signals of a coming cluster.
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| « Last Edit: Jan 28th, 2008, 4:19pm by tony-PA » |
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Brew
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Re: Meds Question
« Reply #12 on: Jan 28th, 2008, 4:25pm » |
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on Jan 24th, 2008, 10:46am, Guiseppi wrote:| (The B-2 makes you pee really bright orange...don't let it spook you!) |
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Note to self: Don't let Guiseppi use the head at our house.
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Guiseppi
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Re: Meds Question
« Reply #13 on: Jan 28th, 2008, 4:53pm » |
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I used to say it made your pee look like Tang....but that shows my age since a whole genereation of kids have no idea what Tang is!!!!
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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