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Topic: Here we go again (Read 237 times) |
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ferbio36
New Board Newbie
I know your pain!
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Posts: 10
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Here we go again
« on: Sep 30th, 2003, 4:22pm » |
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Just started a new cycle this week.Dammit!!!
I have been suffering this damn affliction for almost 20 years.I thought when I got older,this would subside,but I was wrong.02,imitrex,midrin,lidocaine,accupuncture,percocet,topamax.Nothing works.Oh well,I can deal with it,though,it never gets easier.A few people don't understand what I am going through,in particular,a woman I work with.She says"it's just a headache.".After I was ready to go off on her verbally,I realize that not everyone can understand what level of pain these clusters give a person.I held my toungue.Good luck fellow cluster sufferers ;(
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Charlie M
New Board Newbie
laugh and the world laughs with you
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Re: Here we go again
« Reply #1 on: Sep 30th, 2003, 4:46pm » |
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HANG IN THERE. PEOPLE DON'T AND CAN'T UNDERSTAND, UNLESS YOU BEEN THERE. GOOD LUCK
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IN ORDER TO ENJOY THE SUN WE HAVE TO EXPERENCE THE RAIN
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cathy
CH.com Alumnus
New Board Hall of Famer
Not all those that wander are lost......
  
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Re: Here we go again
« Reply #2 on: Sep 30th, 2003, 4:57pm » |
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Ferbio...welcome to you, sorry your suffering again, hang in there we all understand your pain!
PF vibes from across the pond...
Cathy
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My own tears would mean nothing to me, if I could stop you from just shedding one....
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Turts
New Board Hall of Famer
Ever danced with the devil by the pale moonlight
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Posts: 701
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Re: Here we go again
« Reply #3 on: Oct 1st, 2003, 4:48am » |
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Supply her with a kip scale, and ask her which number she thinks she could handle, and how often.
Then give her the OUCH colleague letter telling her there is no known cause or cure, yet definate treatment.
I think she'll change her tune a little.
And do it with a smile. 
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'I'm very brave generally,' he went on in a low voice: 'only today I happen to have a headache.' (Lewis Carroll)
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tommyD
New Board Hall of Famer
Anything not impossible is compulsory.
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Posts: 525
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Re: Here we go again
« Reply #4 on: Oct 1st, 2003, 5:37am » |
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Ferbio -
Sounds like you've been through it all. But there are some preventives not on your list: verapamil (calcium channel blocker) combinations of prednisone and verapamil, or verapamil and lithium.
And there's one other, perhaps the best preventative. It's not for everyone, but is a important option: indole-ring hallucinogens, popularly known around here as 'shrooms.
More info here: www.clusterbusters.com
Good luck with your co-worker. One suggestion - stop calling them "headaches." Tell the lady you're having an ATTACK. Or use Ave's suggestion in the "What do we call it" thread.
Stay PF
-tommyD
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www.clusterbusters.com
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OneEyeBlind
New Board Hall of Famer
Yea, I can do this
Posts: 574
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Re: Here we go again
« Reply #5 on: Oct 1st, 2003, 5:47am » |
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Welcome to the board. Sorry you are getting hit and your co-workers ain't the understanding type.
Here is a form you can use for your employer. There is also some other good info on the OUCH website (button on the left) then go to the resources tab.
Good luck !
http://www.clusterheadaches.org/resources/emp.htm
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One cannot step twice in the same river, for fresh waters are forever flowing around us.
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Kenzie60
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Hang in there! I just want to strangle people when they say that to me. Most of the time I just give them the look of death and walk away. Stay strong and keep fighting the beast.
Roseanne
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