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Topic: I am an OUCH member (Read 2156 times) |
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DonnaH_again
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I am an OUCH member
« on: Apr 28th, 2008, 10:46pm » |
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I have a very bad habit (?) of not reading into what the poster is trying to express.
I re-read Jackies post and realized "I did it again" and it really galls me.
I "think" she was trying to impress the importance of merely being an OUCH member. It costs nothing, it requires none of your time or anything else except signing up.
How hard is that? But what does it accomplish? A whole lot. It shows that we are HERE, that we have a real PROBLEM with the medical community and insurance companies and that we are here in numbers.
7,000 is big, and since we are here trying to figure out what it will take to find a cure, why not unite and show that we mean business?
I can't imagine a reason not to join.
OUCH has been around for years and I'm surprised that there are only 300 members. What's with this? Are we serious or not?
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Redd
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Re: I am an OUCH member
« Reply #1 on: Apr 28th, 2008, 10:49pm » |
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I too, am an OUCH member.
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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andrewjb
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Re: I am an OUCH member
« Reply #2 on: Apr 29th, 2008, 4:19pm » |
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on Apr 28th, 2008, 10:46pm, DonnaH_again wrote:I have a very bad habit (?) of not reading into what the poster is trying to express.
I re-read Jackies post and realized "I did it again" and it really galls me.
I "think" she was trying to impress the importance of merely being an OUCH member. It costs nothing, it requires none of your time or anything else except signing up.
How hard is that? But what does it accomplish? A whole lot. It shows that we are HERE, that we have a real PROBLEM with the medical community and insurance companies and that we are here in numbers.
7,000 is big, and since we are here trying to figure out what it will take to find a cure, why not unite and show that we mean business?
I can't imagine a reason not to join.
OUCH has been around for years and I'm surprised that there are only 300 members. What's with this? Are we serious or not? |
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. i think your right, and totally agree with your points. but, " what if your wrong " ? andrew. [Bump]
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DonnaH_again
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Re: I am an OUCH member
« Reply #3 on: Apr 29th, 2008, 4:22pm » |
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Andrew..........
Nobody would even notice because it seems normal for me. 
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Jackie
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Re: I am an OUCH member
« Reply #4 on: Apr 29th, 2008, 5:18pm » |
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Donna...
Thank you for the post......you 'think' right about what I was trying to say.....
We have one (1) new OUCH member from the effort.
Every little bit helps. Doing a little math here and wishing we could get 10% of the ch.com membership to sigh up. 
And....I'm still keeping your Judy in my thoughts and prayers.
Andrew.....thank you for the 'bump'......
Much love,
Jackie
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Brew
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Re: I am an OUCH member
« Reply #5 on: Apr 29th, 2008, 5:36pm » |
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"Hi, my name is Brew and I'm an OUCH member."
"Hi, Brew!"
- I admit that I cannot control my addiction;
- I recognize a greater power that can give strength;
- I examine my past errors with the help of a sponsor;
- I want to make amends for these errors;
- I am learning to live a new life with a new code of behavior;
- I am helping others that suffer from the same addiction.
(anyone who knows me knows that I'm just messin' around, so don't get your knickers in a knot)
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Gator
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Re: I am an OUCH member
« Reply #6 on: Apr 29th, 2008, 5:47pm » |
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I think people get registration on the Business Board mixed up with membership of the organization as a whole. You can be a member of OUCH and not be registered on the Business Board. In the January 2008 issue of the OUCH Newsletter, OUCH reported:
Quote:| As of January 25, 2008 the OUCH membership totaled 3123 people from 60 countries. |
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That being said, I'm like DonnaH. I can't imagine why a cluster headache sufferer or supporter would not join OUCH, except that they did not know about the organization.
Which brings me to another topic... We need to get our message out there to people beyond the internet. How many thousands (or hundreds of thousands) of sufferers are out there who don't use the internet? We sit here enjoying the warm glow of understanding and support, but who helps them?
One of the committees in which OUCH needs experienced people is the Media Committee. We need people with experience in communicating via newspaper, magazine, radio and television. If that's you, sign up and put your talents to use helping others who may otherwise suffer in painful silence.
There are other areas in which OUCH needs people who are willing to share their experience and time. If you are not a member of OUCH - join us. If you are a member of OUCH and you have experience and skill that you think could be useful, please check out the Volunteer Center in the Members' Area of the OUCH website:
http://www.ouch-us.org/members/vol_center.htm
One last thing and I'll end this commercial, OUCH operates solely on donations, grants and sales from the OUCH Store. Even if you don't think you have the time or experience to volunteer you can still help OUCH make a difference by making a tax deductible donation.
http://www.ouch-us.org/donate.htm
Mike Day
Organization for Understanding
Cluster Headaches
http://www.ouch-us.org
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Linda_Howell
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Re: I am an OUCH member
« Reply #7 on: Apr 29th, 2008, 5:51pm » |
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Quote:| We have one (1) new OUCH member from the effort. |
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And how friggin sad is that? Everyone wants help. Everyone wants this condition to be recognized, yada, yada, yada...but they'd rather sit around here moaning or posting silly crap then spend a few mins. signing up for the only entity that might help us all.
Sorry. Just really angry right now with the apathy.
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Callico
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Re: I am an OUCH member
« Reply #8 on: Apr 29th, 2008, 6:01pm » |
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I'm a member!
Brew, my knickers were already in a knot. YOU didn't help!
jerry
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Jackie
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Re: I am an OUCH member
« Reply #9 on: Apr 29th, 2008, 6:25pm » |
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Gator....
Is that 3,123 count from OUCH's inception?
Would be curious to know how many have joined in the past year......
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Melissa
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Re: I am an OUCH member
« Reply #10 on: Apr 29th, 2008, 6:40pm » |
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on Apr 29th, 2008, 6:25pm, Jackie wrote:
Would be curious to know how many have joined in the past year......
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111 between Jan 2, 2008 & March 27, 2008.
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| « Last Edit: Apr 29th, 2008, 6:41pm by Melissa » |
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Jackie
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Re: I am an OUCH member
« Reply #11 on: Apr 29th, 2008, 6:58pm » |
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Thank you, Mel.....
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KJ
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Re: I am an OUCH member
« Reply #12 on: Apr 29th, 2008, 7:05pm » |
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I joined.
Love being around you crack minded folks. 
KJ
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Jonny
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Re: I am an OUCH member
« Reply #13 on: Apr 29th, 2008, 7:26pm » |
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on Apr 29th, 2008, 6:25pm, Jackie wrote:Gator....
Is that 3,123 count from OUCH's inception? |
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When I was on the membership committie I was dragging them in off the street.....LOL
Even paying the dues for lots of them!  ....Then the membership went free. 
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M.R.
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Re: I am an OUCH member
« Reply #14 on: Apr 29th, 2008, 7:34pm » |
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I remember those days. I still am not so sure even $10 dues wouldn't be a bad idea.I would help throw in for those that couldn't pay. That would give OUCH some working capital. Maybe then the convention wouldn't be so expensive.
the Mike that always has ideas, but may not always be much help.
Edit for typing spasm
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| « Last Edit: Apr 29th, 2008, 7:35pm by M.R. » |
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Linda_Howell
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Re: I am an OUCH member
« Reply #15 on: Apr 29th, 2008, 10:50pm » |
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Mike...No. A $ 10.00 membership is not a bad idea at all. But we decided to not go with a fee to join. So it is free. No one here who "takes" from this site and from the benefits OUCH has to offer should take this lightly.
Every one of the 7000 people here on ch.com took the few mins. to register with DJ. How much more could be gained from OUCH who is having in-roads with the medical community..and how sad to see such few numbers.
I guess what they say of all organizations, even the big ones. There is always a few who work and a whole lot who take.
OUCH is the exception to the rule that anything free...is worthless.
And I'm gonna keep bumping and adding to this thread til you're so sick and tired of hearing from me that you sign up and send me the proof. 
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DonnaH_again
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Re: I am an OUCH member
« Reply #16 on: Apr 30th, 2008, 12:25am » |
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Go, Linda.......Go, Linda. Right behind you.
I can't for the life of me figure out why EVERYONE hasn't joined.
Isn't that relative to rowing? Different site....same goal.
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Argonaut
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Re: I am an OUCH member
« Reply #17 on: Apr 30th, 2008, 12:27am » |
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I just joined
Wonder if OUCH needs a web designer?
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DonnaH_again
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Re: I am an OUCH member
« Reply #18 on: Apr 30th, 2008, 12:32am » |
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I don't know about the web designer, but I sure am happy and proud that you joined. Welcome to OUCH.
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Linda_Howell
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Re: I am an OUCH member
« Reply #19 on: Apr 30th, 2008, 12:35am » |
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Good for you Argonaut.
Mike (gator) is our web master as well as the designer of OUCH. While we don't need that specifically, if you have artistic ability I am sure we could use you for something. Please click on the volunteer area at OUCH...so we can um...uh...use you.
Linda
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barry_sword
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Re: I am an OUCH member
« Reply #21 on: Apr 30th, 2008, 6:43am » |
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I joined OUCH about a year ago. Strength in numbers.
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Ray
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Re: I am an OUCH member
« Reply #22 on: Apr 30th, 2008, 7:49am » |
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I'm an OUCHie and I'm OK...
At least mostly OK.
Thanks for this discussion,
Ray
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Gator
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Re: I am an OUCH member
« Reply #23 on: Apr 30th, 2008, 8:16am » |
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Ladies and Gentlemen,
If you are not going to register with your REAL name and REAL contact information, please don't bother. It does absolutely NO good for anyone, especially you, to register with a last name of dfgdfg or any other random grouping of letters, fake e-mail address and fake mailing address. We have enough work to do without having to go through and delete peoples' attempts at trying to be cute. Save cute or funny for the Jokes Board here on ch.com.
We need REAL information to report membership totals to various headache and research organizations, to complete grants applications and to be able to contact you in case of events or clinical trials in your area.
For those of you who have registered recently using your real information, OUCH thanks you. Your support does make a difference.
Best regards,
Mike Day
Organization for Understanding
Cluster Headaches
http://www.ouch-us.org
Edited to add: OUCH respects the privacy of its members. We do not give out, sell or rent personally identifiable information to any third parties, except where required by law. Internally, access to personal information is strictly limited to those members of the OUCH staff who need it to perform their jobs.
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| « Last Edit: Apr 30th, 2008, 8:28am by Gator » |
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Linda_Howell
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Re: I am an OUCH member
« Reply #24 on: Apr 30th, 2008, 11:47am » |
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Hey Barry? Did your wife also join?
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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