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Topic: gabapetin (Read 1842 times) |
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agonymum
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hi , ive been away for a while suffering from awful depression.
my clusters are still hounding me every 4 hours , have been since last october . im wishing every day for the end to come soon.
last year the cycle ended in april , it seems a long way off .
anyway , ive been perscribed gabapentin , and i was wondering if anyone had had any success with this drug.
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E-Double
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Re: gabapetin
« Reply #1 on: Feb 11th, 2006, 6:22am » |
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Gabapentin is neurontin.........
The only thing it did for me was make me violently sick.
A few here have mentioned it, one or two having some success @ high doses.
so sorry you're hurting!!
E
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nani
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Re: gabapetin
« Reply #2 on: Feb 11th, 2006, 9:27am » |
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I was on it for 5 years. I think that for me, it helped to keep the intensity of the attacks lower, but it didn't prevent any hits. As time went on, I had to increase the dose in order to get the same effect. I was taking 1800 mgs a day and still getting hit. 
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LeLimey
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Re: gabapetin
« Reply #3 on: Feb 11th, 2006, 10:34am » |
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Hi again agonymum! I know we've spoken before and I've been wondering how you were doing.
We need to get you some proper help and fast I think. Please give the OUCH UK helpline a ring, it's an answerphone so ring up and leave a message and one of the officers will ring you back. They are all sufferer's too and know what you're going through and they can and will help.
The telephone number is 0161 272 1702
Let us know how you get on okay?
love
Helen
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agonymum
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Re: gabapetin
« Reply #4 on: Feb 12th, 2006, 4:54am » |
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hi helen , and thanks very much for that number ,ive made a note of it.
since taking the gabapentin , ive only had one attack , and just shadows in between . its only been 2 days but im thinking its some sort of miracle . ive slept right through last night for the first time in a long time and am still waiting fo rmy 9am attack , its not materialized !
maybe its a coincidence , but whatever it is I FEEL HAPPY ..
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LeLimey
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Re: gabapetin
« Reply #5 on: Feb 12th, 2006, 7:06am » |
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I'm sitting here grinning like an idiot (okay so thats normal but what the heck!) I'm so pleased to hear you say you are feeling happy, thats lovely.
Long may it last! Just remember, we're here for you any time you need us okay?
Helen
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Dragnlance
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Re: gabapetin
« Reply #6 on: Feb 12th, 2006, 12:50pm » |
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I Love hear success stories! I VERY happy to hear you are getting some sleep at long last!! Please keep us posted, as this may be something some of us may want to look into
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agonymum
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Re: gabapetin
« Reply #7 on: Feb 12th, 2006, 2:03pm » |
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thanks so much !
still no attacks! , just slight shadows , I LOVE GABAPENTIN xxxxxxx
shhhh.. dont speak too soon (note to self)
will keep you posted xxxxxxxxxxxhappy happy me !!!!!!!!!!
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agonymum
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Re: gabapetin
« Reply #8 on: Feb 14th, 2006, 12:02am » |
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spoke too soon , hit at 12 midnight and again at 4am as usual.
its 5am now and its finished , i feel so depressed and scared again .
how can that happen ? surely it cant be a placebo! i could never think my way out of it , im so confused im going to double the dose tomorrow and see if that works again.
i have a neuro apt. on 25th of this month , my first one , so maybe i will get some peace from that .
thanks for listening and for being there . x
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FramCire
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Re: gabapetin
« Reply #9 on: Feb 14th, 2006, 12:10am » |
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agon: Darn it! I can feel for you. I have the same set of emotions when I get hit. YOU WILL FIND SOMETHING THAT WORKS FOR YOU. For me it has been 9mg of melatonin and 480 (2x240) of Verapomil. O2 usually helps as well.
Relax as best you can and try to fight the depression as best you can. Rant here, scream here, whatever you need. We have all been through it (most of us, at least) and you will make it through too.
Prayers for a PF tomorrow (and many others after it!)
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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
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agonymum
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Re: gabapetin
« Reply #10 on: Feb 14th, 2006, 12:16am » |
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thankyou so much framcire,
im going to try and go back to bed now , your post has helped me , thankyou x
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FramCire
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Re: gabapetin
« Reply #11 on: Feb 14th, 2006, 12:25am » |
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May you sleep the whole night and may the beast forget to set his alarm!
I too am off to bed.
Have a great night and remember that there are a million things to try and eventually, you WILL find some relief. The beast just doesn't make it easy. Use the resources here to the fullest and keep smiling. Sometimes a smile and the knowledge it will get better can make a world of difference.
Again, good night and here's to a PF tomorow (and many others after that)
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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do
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Dragnlance
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Re: gabapetin
« Reply #12 on: Feb 14th, 2006, 8:57am » |
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Hey Mum,
Sorry to hear the monster woke up. My neuro appt is the 22nd.
I hope and pray that you get some pain free time soon!!
Dragn
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agonymum
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Re: gabapetin
« Reply #13 on: Feb 19th, 2006, 5:16pm » |
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hi ,
i wanted to update you on the gapapentin .
i did double the dose , taking 600 a day and it has helped alot .
my HAs are much lessoned in intensity and shorter in duration.
not sure whether this is corresponding with a natural tailering off of this cycle , but im not complaining .
ive only had one bad hit , in the night at 3am , which was my usual time , in last 5 days .
previously i was getting hit every 4 hours , day and night .
wishing you all pf times xxxx
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jackieg
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Re: gabapetin
« Reply #14 on: Feb 20th, 2006, 4:33pm » |
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I was on 1800 mg Neurontin and I felt like a wet noodle living inside a space capsule. I took it as directed and increased it as directed and the results were not good. I actually think it has lengthened my cycle. I hope it helps you.
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