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Topic: Started my Prednisone/Verapamil combo (Read 881 times) |
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Patrick_A
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Started my Prednisone/Verapamil combo
« on: Dec 29th, 2007, 3:49pm » |
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I got started on the combo yesterday. I haven't had a CH since- knocking on wood. Was getting 2-4 a day.
I don't know why I waited this long, other than the fact that it makes me feel like crap, but lets weigh that out. Feel like crap in this hand+++++++++++and Kip 9 in this hand. LOL, I'll take feel like crap everytime!
Now, I am going to go stand guard at the refrigerator. I got some banana pudding in there! 
Patrick_A
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Guiseppi
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Re: Started my Prednisone/Verapamil combo
« Reply #1 on: Dec 29th, 2007, 4:03pm » |
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Do you have oxygen yet? When the prednisone taper stops...I assume you are only on pred a short period of time while the verapamil kicks in....you will probably still have tho occasional break thrus. Oxygen will almost always knock those out for me.
Congrats on the break, it's an awesome feeling isn't it??
Guiseppi
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chewy
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Re: Started my Prednisone/Verapamil combo
« Reply #2 on: Dec 29th, 2007, 7:48pm » |
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Quote:I got some banana pudding in there!
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Not for long partner.
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tigerman
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Re: Started my Prednisone/Verapamil combo
« Reply #3 on: Dec 29th, 2007, 11:32pm » |
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thats awesome.I started the same combo the 18th I haven't had 1 either.The doc set me up with Pred 3 a day 1 week,2 a day 1 week,! 1 a day 1 week
I did the 3 a day for a week,then 2 a day for 3 days,then 1 a day friday and today(sunday will be my last pill)Not like she told me but I felt like the CHs were gone.Stopped the Verapamil the 26th
Also got amitriptyline (antianxiety,sleeping pill{not addictive like say Lunesta})Really helped the first week,Quit taking it the 25th cause it made me like a zombie during the day.
I dont understand how this wont work for everyone,sorry for the people it doesnt help.My doc didnt offer me oxygen,I guess she knew I wouldnt need it?
Now I am gonna try some Champagne New Years Eve,kinda nervous,but I think my cycle is broken.My CHs hit me about every 2 yrs.for 3-6 wks.Do you think that believing the meds are gonna fix you helps?Its almost like I could have been given a placebo and if the doc told me it was gonna work my mind would have made it.I know its silly but the mind and body work in mysterious ways like someone else we know!
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chewy
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Re: Started my Prednisone/Verapamil combo
« Reply #4 on: Dec 29th, 2007, 11:36pm » |
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Quote:Stopped the Verapamil the 26th
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Why??
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E-Double
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Re: Started my Prednisone/Verapamil combo
« Reply #5 on: Dec 29th, 2007, 11:38pm » |
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dangerous to mess with the roids.
always follow the script to a T.
if problems call doc.
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I can't believe that I have to bang my
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tigerman
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Re: Started my Prednisone/Verapamil combo
« Reply #6 on: Dec 29th, 2007, 11:47pm » |
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I am sure I will get an earful when I go back to the neuro.What kind of problems?
I stopped cause it was making me to sluggish,plus I thought the CH cycle was over.Well it seems to be over .know I shouldnt mess with High blood pressure meds too
Any advice will be appreciated Thanks
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E-Double
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Re: Started my Prednisone/Verapamil combo
« Reply #7 on: Dec 30th, 2007, 12:04am » |
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on Dec 29th, 2007, 11:47pm, tigerman wrote:I am sure I will get an earful when I go back to the neuro.What kind of problems?
I stopped cause it was making me to sluggish,plus I thought the CH cycle was over.Well it seems to be over .know I shouldnt mess with High blood pressure meds too
Any advice will be appreciated Thanks |
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can screw ip your entire immune system
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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tigerman
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Re: Started my Prednisone/Verapamil combo
« Reply #8 on: Dec 30th, 2007, 12:32am » |
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Now youve got me worried .I felt good the 1st week(cause I was finally sleeping)but the next few days my body felt like s**t,thats the only reason I quit.I Did a super quick taper on the prednisone,after the 1st week of 3 a day.i will get on the internet and look up prednisone.
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Guiseppi
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Re: Started my Prednisone/Verapamil combo
« Reply #9 on: Dec 31st, 2007, 10:26am » |
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We talk about this issue a lot on the board and it's one worth repeating. We toss a lot of advice out on the board based on what's worked for us. I'm afraid sometimes we get lulled into a false sense of security because they're just "headache meds" and we start to think of all of it as tylenol!
We deal with high horse power meds, imitrex, topomax, lithium, prednisone, miracle medications for many of us but we mustn't forget they are HIGH OCTANE meds. Increasing, decreasing or stopping dosages altogether should ALWAYS be under the supervision of a doctor. I'd give the doc a call, let him know where you curently are and get his/her advice. Better to have them a little irked with you then to tweak yer body up! 
Guiseppi
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tigerman
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Re: Started my Prednisone/Verapamil combo
« Reply #10 on: Dec 31st, 2007, 11:31am » |
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Understood.But if something is making me feel bad I am going to stop.I do not recommend the way I do things.Yall know by now I am stubborn,my wife 2nds that!My neuro is out of town ,I go see her the 11th.As always ,stay on my case,I need it and it will sink in 
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Guiseppi
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Re: Started my Prednisone/Verapamil combo
« Reply #11 on: Dec 31st, 2007, 12:10pm » |
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My wife would argue with you over which of us was the most stubborn I guarantee you! And I wish I always took my own advise as well as i give it...  It's our body and our choices...just a loving reminder is all!
Good luck with whichever option you end up with. Here's hoping you catch one of those HEAVENLY lengthy remissions!
Guiseppi
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tigerman
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Re: Started my Prednisone/Verapamil combo
« Reply #12 on: Dec 31st, 2007, 12:41pm » |
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Thank you.Should be good @ least a year,hoping for 2.Are you presently in a cycle?By the way I quit arguing with women,I just say Yes Dear,and it makes her do this 
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Guiseppi
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Re: Started my Prednisone/Verapamil combo
« Reply #13 on: Dec 31st, 2007, 12:57pm » |
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Out of cycle Missed my fall cycle...oh happy days, and after almost 28 years I've learned to go with the 5 rulses of marriage.
1: you were right
2: I was wrong
3: I don't know what I was thinking
4: It'll never happen again
5: I'm sorry.
6: yes Dear!
I call it groveling from the get go.....speeds the whole fight process right up!!
Guiseppi
With thanks to Chewy...how could I have forgotten number 6??????
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| « Last Edit: Dec 31st, 2007, 2:36pm by Guiseppi » |
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tigerman
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Re: Started my Prednisone/Verapamil combo
« Reply #14 on: Dec 31st, 2007, 1:30pm » |
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28 years WOW,I hope I am so lucky!Me ,working on 7(I was smart though,waited till I was 30.I have learned about intimacy and romance 2 get what I want
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chewy
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Re: Started my Prednisone/Verapamil combo
« Reply #15 on: Dec 31st, 2007, 2:27pm » |
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You missed one.
6. Yes Dear
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tigerman
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Re: Started my Prednisone/Verapamil combo
« Reply #16 on: Dec 31st, 2007, 5:18pm » |
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I didnt its my one and only
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Brew
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Re: Started my Prednisone/Verapamil combo
« Reply #17 on: Jan 1st, 2008, 11:55am » |
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on Dec 31st, 2007, 1:30pm, tigerman wrote:| I was smart though,waited till I was 30. |
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Implying what? Those who don't wait until they're 30 aren't as smart as you?
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