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   Suboccipital injection - W/UPDATE No. 1_11
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Garys_Girl
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Re: Suboccipital injection - W/UPDATE No. 1_10
« Reply #75 on: Apr 29th, 2008, 2:25pm »
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You sound MUCH better in this last post.  I'm so glad.
 
Got all my fingers and toes crossed!
 
Laurie
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Re: Suboccipital injection - W/UPDATE No. 1_10
« Reply #76 on: May 2nd, 2008, 11:41am »
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Hi
 
I had (today) my Injection, this time it is
supported by Lithium (900mg a day) and with
a wishful idea, this time I will get 2 weeks of
PF time… will see….
 
The Injection was done using ultra sound (a high
resolution and high frequency) with inhancement using
Doppler and therefore color display.
Using this method – seeing the nerve - enables the
anesthesiologist to “put” the Betametason with
a total precision – which (hopefully) adds to the efficiency
of the treatment.
 
Michael
 
 
020508_1884
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Re: Suboccipital injection - W/UPDATE No. 1_10
« Reply #77 on: May 2nd, 2008, 5:35pm »
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Very cool on the precision-locating of the injection site.
 
Wishing you at least 2 weeks of pain free time!!!!!
 
Laurie
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Re: Suboccipital injection - W/UPDATE No. 1_11
« Reply #78 on: May 17th, 2008, 12:37pm »
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And once more I have had “my Injection” done, and so far so good.
after about 10 days of up to 7 attacks mostly evening/night time (9 pm 11pm 1am  3am 5am)
and the 6 / 7 Attack is probably (most likely) rebounds due to wrong use, to short use of O2.
it did get to me “big time” the leck of sleep and working 150% did make me a walking zombie
and an unfriendly person, and that is an under estimation……
 
The Injection seem to get a hold “of me” and block the pain, and I get the needed sleep, and back
the joy of life!  
I will have to go and see the Endocrinologist, to determine whether the injection has a long run
advers effect on the production of cortisone in the body, and the risks in case of medical emergency
and surgery, as well as the effects of the combination of Verapamill, Lithium, Triptans (Zomig), and
Novalgin, as we all wonderd on Friday at the hospital, with this combination what are the risks,
long term effects, as well as the effectiveness as a fact, and comparative ; effectiveness to adverse
effects on the body.
 
One observation we have looked at, is the effect of O2 as an abortive seems to diminish
with the use of Lithium, it is for the moment an observation, and I have to little data to  
support this assumption, I will go on and monitor it closely and after 30 days I will be able
to give a better picture, supported with facts and numbers.
 
that much for the moment……
 
Michael
 
 
170508_2025
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Re: Suboccipital injection - W/UPDATE No. 1_11
« Reply #79 on: May 17th, 2008, 3:46pm »
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on May 17th, 2008, 12:37pm, wildhaus wrote:
One observation we have looked at, is the effect of O2 as an abortive seems to diminish
with the use of Lithium, it is for the moment an observation, and I have to little data to  
support this assumption, I will go on and monitor it closely and after 30 days I will be able
to give a better picture, supported with facts and numbers.
 
that much for the moment……
 
Michael
 
 
170508_2025

 
Hi Michael,
How come with such a vast array of drugs do you come to the conclusion that lithium is responsible for the diminished effectiveness of Oxygen?
 
I think that's a somewhat irresponsible statement to make given that you are probably going to terrify a lot of people out of trying Lithium.
 
I for one have tried Lithium. I went to quite a high dose and whilst it didn't help me, it didn't hinder me either. It certainly didn't make things worse and Oxygen didn't lose it's efficacy for me too.
 
There are literally hundreds' of users of Lithium here, many, many of whom use O2 as well with good results.
 
So here we have two peoples different "experiences" of Lithium and O2. Is one right and one wrong? Who are we to decide.. but a study of one is anecdotal not evidential.
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Re: Suboccipital injection - W/UPDATE No. 1_11
« Reply #80 on: May 17th, 2008, 4:14pm »
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Hi Helen
 
It is a one case study and we do keep a very strict study lines and differential
diagnosis.
 
but it is also a try to go and start a larger study (10-15) in the next year, hard to find
CCH’ers that would do so much and ready to loos so many work days, with very,
little compensation, if at all…..
 
 
That is I have stopped every type of meds (but Verapamill at 80mg a day) for about 4 weeks,
went trugh hell, and the started the follow up of the cross effects, the adding of  Lithium
was done after 4 weeks, and after 2 weeks with level of 725mg it seemed to diminish the
effect of O2, that is the aborting time is about 25% longer, or at times seem to have no effect,
I have said it is an observation and that the data is on the low end!  The team that treats me
at the hospital is looking for references and possible reasons for this observation, and as I said
we will follow it closely, to try and find out.
Helen with all due respect I fail to see what is wrong with my observation…..  I do believe
I do know what I say, and in the correctness of the (pulmonary) data, and the wish that some-
one will comment constrictively, that is, giving me the expiriens they have gone trough positive
or negative, or similar observation to my observation!
 
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Re: Suboccipital injection - W/UPDATE No. 1_11
« Reply #81 on: May 20th, 2008, 1:44pm »
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This is the up-date to the Excel table I have posted
(Tks. DJ for your wonderful help)
 
 
http://www.clusterheadaches.com/michael/injections.xls
 
 
Michael
 
200508_2091
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Re: Suboccipital injection - W/UPDATE No. 1_11
« Reply #82 on: May 24th, 2008, 11:51am »
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Injection was on May-16-2008
today May-24-2008 to (about) 85% PF
that is about 1 attack every second
day, only night (11PM) attack…
at lower level (up to 6K) no shedows!
wonder if it will hold (just) abit
longer…..
 
Michael
 
240508_2151
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Re: Suboccipital injection - W/UPDATE No. 1_11
« Reply #83 on: May 24th, 2008, 12:30pm »
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Thanks Michael for the update !
 
Would you be able to let us know if there has been any signficant side effects from the injections, since you have had them for nearly 6 months now. Are all the blood test results normal?  
 
Heres hope it will work for longer and longer.  Kiss
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Re: Suboccipital injection - W/UPDATE No. 1_11
« Reply #84 on: May 25th, 2008, 10:20am »
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Annette,
 
on May 17th, 2008, 12:37pm, wildhaus wrote:
I will have to go and see the Endocrinologist, to determine whether the injection has a long run advers effect on the production of cortisone in the body, and the risks in case of medical emergency and surgery, as well as the effects of the combination of Verapamill, Lithium, Triptans (Zomig), and Novalgin, as we all wonderd on Friday at the hospital, with this combination what are the risks,
long term effects, as well as the effectiveness as a fact, and comparative ; effectiveness to adverse
effects on the body.
170508_2025

 
I was just procrastinating, don’t feel like going to the hospital,
I might do it this week on Friday or a week later…..
I try to do every thing they ask me, but at times it gets simply to much.
 
Michael
 
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