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   Desperate in Africa!  Help!
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zimmy
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Desperate in Africa!  Help!
« on: Jan 30th, 2003, 8:47am »
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Dear Friends,
 
I am in the 11th day of a CH cycle.  Last had them in 1999.
Have about 4 more imitrex left and verapamil at 720mg a day has not broken the cycle.  Had CH for two days, then a three day break, then three days of CH, then 2 day break, and now back again.
 
I live in Kenya and Imitrex is unavailable here and I have yet to find a nuerologist who has much experience with it.
 
Any advice greatly appreciated on how I can get out of this cycle.  In 1999 I was able to break the cycle with Verapamil dosage of only 360 mg that I drew back over the course of one week to 0 mg.
 
If the headaches continue, does anybody have any suggestions on how to deal with them once I run out of Imitrex?  Also, any experiences with using Verapamil to break the cycle would be really appreciated.
 
Mark
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Bob P
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Re: Desperate in Africa!  Help!
« Reply #1 on: Jan 30th, 2003, 10:46am »
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Prednisone (steriods) will usually stop a cycle dead in it's tracks.  Because of adverse side effects, you can't stay on it for long.  The neuros usually do something like 60 or 80mg a day for a week and then start tapering down.  Others use the Medrol dosepaks.  I think it's 60mg the first day, 50 the next, then 40, 30 20 10.  It stops my attacks the first day I take the 60mg but they usually return when I get down to the 20mg day.
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Re: Desperate in Africa!  Help!
« Reply #2 on: Jan 30th, 2003, 11:34am »
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Hi Mark....sorrry you having a hard time, but welcome to the site.
 
I don't have any experience breaking cycles....but, Bob's advice is pretty good.   Smiley  Do you have access to Zomig or Maxalt?  I know they work for some people on the board....and you can order Imitex online at some pharmacies (sometimes even without a prescription).
 
In my experience, your best bet is 02.  Not for breaking the cycle, but it will abort most of the attacks.  
 
Take care,
 
Tracey
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Re: Desperate in Africa!  Help!
« Reply #3 on: Jan 30th, 2003, 11:54am »
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Roxy is right, your best bet is oxygen which should be available.  Make sure that the regulator is running at least 8 liters a minute and that you are using a non-rebreather mask, the kind with the bag hanging down.
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Re: Desperate in Africa!  Help!
« Reply #4 on: Jan 30th, 2003, 3:56pm »
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Sorry to hear about your experience right now. I'm new to this as well -- but I found this site online for you -- maybe it will help. It says you can order w/o a prescription.. Let me know if there is anything else I can do. -- Ciao, -ami
 
http://www.jamesstarritt.com/Imitrex-Oral/
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Re: Desperate in Africa!  Help!
« Reply #5 on: Jan 31st, 2003, 11:19am »
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zimmy,
I've had the same experience with Prednisone that Bob has described. It broke my cycle the first night I started the 60mg and I had about 4 pain free nights in a row but it came back once I started tapering down.  
If there's no Imitrex available perhaps you can get access to oxygen. For me the o2 has worked as well if not better than Imitrex injections w/out any side effects.  
Good luck & PFDAN's to you!
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Re: Desperate in Africa!  Help!
« Reply #6 on: Jan 31st, 2003, 2:32pm »
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Mark,
This cycle for me has been different than my previous ones. Prednisone, usually works, but this time after I finish all of it, did not break the cycle. Verapamil seems to be working and O2. Let me tell you that I was a bit skeptical about oxygen, but it DOES work.
 
Just my 2 cents
 
Ozzy
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