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   Author  Topic: Alternative Therapy  (Read 9589 times)
pinksharkmark
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Re: Alternative Therapy
« Reply #25 on: Nov 2nd, 2003, 11:17pm »
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Great news, Mark. Sure is a tremendous feeling, huh? A lot less expensive (and less risky) than surgery, too.  
 
As for when (or if) to dose again --
 
This is a situation where you really need to try to be as "in tune" as you possibly can be with what your body is trying to tell you.
 
You may get the occasional shadow or even low level Kip over the next week or so. If you don't, the decision is easy -- don't dose again.  
 
But what if you do?
 
I am a firm believer in the idea of whacking The Beast hard and then whacking him again the minute he puts his head out of his cave -- keep him off balance and don't let him get back on his feet -- but you need to be sure he is really putting his head out of the cave and not just twitching on the mat before going back into hibernation.
 
In my opinion, if you get increasing symptoms over three consecutive days -- to the point where you can no longer call them shadows but must objectively classify them as actual CH (even if they are relatively mild ones) -- it is time to dose again. I agree that at this point it is possible to cut back the dosage level to around Level 1.5 to 2. You must be fairly certain that things are consistently getting worse, though. Often while killing a cycle in the middle, you will have some completely PF days, then some rougher days, then more completely PF days as the cycle finally ends.  
 
It's a balancing act. On the one hand you don't want to let The Beast re-establish himself, yet you don't want to overmedicate either. We have as yet no firm proof that dosing too frequently will lessen the effectiveness of the treatment, but it is definitely a possibility. Maybe ten years down the road we'll know one way or the other.
 
Congratulations again on your victory.
 
pinky
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Re: Alternative Therapy
« Reply #26 on: Nov 4th, 2003, 5:36pm »
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Hey Mark......how about an update?
 
 Smiley
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Re: Alternative Therapy
« Reply #27 on: Nov 5th, 2003, 7:43pm »
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Close to two weeks PF.....the beast is hiding if not gone. I have had some small, ie K-2 shadows, maybe once a day. O2 knocks em right out.....fucking amazing. Last year I was hit 3-6 times a day for the whole month of Oct...one of the worst cycles ever....this year I started the end of August, right on time, and progressed to 3-4 really nice one's (K-9) every day....until two weeks ago.
 
Damn Fungus has cured me!  Grin   Grin   Grin
O2 is keeping what few shadows I am having at bay, no problem.
 
I plan on following the above advice about waiting
till I am sure the beast is back before dosing again but for now I am PAIN FREE!!!! I still can't believe it, 27 years of hell and a stupid mushroom stops in it it's tracks......FUCKENEH!
 
No Triptans for two weeks now, but I am still stocking up as best I can, just in case. It is still a constant battle with the insurance company but my Doctors nurse is like a bulldog...she just keeps at them for me. She is now on my Christmas card list! Thanks Rebecca!
 
I want to thank all of you who have helped me with this is...I am so humbled and grateful all I know to do is pass it along, share it I mean, the knowledge and stuff. I would have never have imagined it would have worked so well.
 
I am taking the kids fishing this weekend without worry for the first time in a very long time.  
 
God Bless you people!
PFDAN's
Mark
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Re: Alternative Therapy
« Reply #28 on: Nov 6th, 2003, 12:52am »
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on Nov 5th, 2003, 7:43pm, Mark C wrote:
I am taking the kids fishing this weekend without worry for the first time in a very long time.  
 
God Bless you people!
PFDAN's
Mark

 
 Grin
May the Bass be with you Mark...
Be sure to release one as a thank you to Mother Nature and fillet the rest!!!  
 
PF
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Re: Alternative Therapy
« Reply #29 on: Nov 6th, 2003, 3:12pm »
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on Nov 5th, 2003, 7:43pm, Mark C wrote:
Close to two weeks PF.....the beast is hiding if not gone.  

 
Congratulations Mark! I know the feeling.
 
Wanted to throw my 2 cents in. After being chronic for 6 years, i'm pain free for 25 months on a row now. and it's 19 months ago since I shroomed.
 
During the 6 months in wich I dosed bi weekly, there were still shadows. To me they were the trigger to redose. Til I decided to find out what would happen without redosing again.  
 
The beast was put at even a larger distance: shadows cleared up and stayed away. As to how and why this works: dunno. Maybe it's me that's strange  Grin
 
The only explanation I can come up with is: Shrooms are to CH like a stick to a beast. If you keep poking with the stick, the beast will defend itself and thus hurt you. If you give it time to think things over, it might decide it's best to simply leave you alone.  
 
Another metafore might be: CH is like a rusty scale. If you tilt the balance, it won't come back in the middle position. Shrooms are able to tilt the balance so the scale moves. That's why you can have *more* attacks after a dose. The scale will move back and forth a few times and then stop. You've won the lottery if it happens to end up in the balanced position! But if it does so it's NOT good to hit it again!  
It needs time to settle down, and one needs time to assess the outcome.  
 
 
Though not very scientific, (grin) this is as close as I can get to describe how I felt things in my case. But hey: everybody is different. I simply follow my instinct after being led to Shrooms by some brave guru's on this board. Once again: Thanks guys!!
 
PFDAN's to you all!
 
 
Greetz,
 
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Re: Alternative Therapy
« Reply #30 on: Nov 6th, 2003, 3:21pm »
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"Though not very scientific, (grin)"
 
 
Unfortunately, because of laws, the scientists are not here to help us.
 
 
 
 
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Re: Alternative Therapy
« Reply #31 on: Nov 6th, 2003, 7:04pm »
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on Nov 6th, 2003, 3:21pm, vig wrote:
"Though not very scientific, (grin)"
 
Unfortunately, because of laws, the scientists are not here to help us.
 

 
Consider this our version of "Weird Science."
If Kelly LeBrock pops out of my monitor....I may be MIA for a few days!!!  Grin
 
PF
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Re: Alternative Therapy
« Reply #32 on: Nov 6th, 2003, 7:22pm »
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How many chronics have tried, or are trying the fungal therapy?
 
Just curious......... Smiley
 
Kick ass, Mark... Grin
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Re: Alternative Therapy
« Reply #33 on: Nov 23rd, 2003, 11:55pm »
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One month....pain free....can I get a FUCKENEH!!!
 

 
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Re: Alternative Therapy
« Reply #34 on: Nov 24th, 2003, 12:05am »
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laugh
 
FUCKENEH!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
 
Congrats Mark, good news indeed.
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Re: Alternative Therapy
« Reply #35 on: Nov 24th, 2003, 3:31pm »
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What on earth is a "FUCKENEH" ....  laugh laugh laugh.  
 
Never heard of that in Holland
I can translate the first four ... will that do?  Grin
 
For the rest: waytogo. Hope we'll be next.
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Re: Alternative Therapy
« Reply #36 on: Nov 24th, 2003, 3:34pm »
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Totally North American slang Hanna.  Check your pm.  FUCKINEH!!!!!!!!! Mark C.  headbanger
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Re: Alternative Therapy
« Reply #37 on: Dec 24th, 2003, 9:01pm »
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Two months Pain Free today.
 headbanger
 
What I can say but thank you for all of the help and encouragemant I have received form Roxy, PinkSharkMark, PinkFloyd, Flash, and so many others.  I will have a PF Christmas thanks to you all and this MB. How can one say "Thank You" enough. What a miracle. Thank you all, and DJ, and all my Clusterbuds, you know who you are.  
 Grin    
 
 
« Last Edit: Jan 25th, 2004, 5:57pm by Mark C » IP Logged


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Re: Alternative Therapy
« Reply #38 on: Dec 26th, 2003, 12:41pm »
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please feel free to grovel some more ;0
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Re: Alternative Therapy
« Reply #39 on: Dec 26th, 2003, 10:55pm »
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Anyone have info on scullcap or other herbal treatments?
 
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Re: Alternative Therapy
« Reply #40 on: Dec 27th, 2003, 1:50am »
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on Dec 26th, 2003, 10:55pm, DONNY/LORI wrote:
Anyone have info on scullcap or other herbal treatments?
 
Donny

 
I don't know of anyone trying to use it alone to try to treat clusters but it has been suggested to use along with shrooms to improve their effectiveness. Don't know if anyone has tried them together yet in this treatment though.
 
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Re: Alternative Therapy
« Reply #41 on: Dec 27th, 2003, 5:33am »
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on Dec 26th, 2003, 10:55pm, DONNY/LORI wrote:
Anyone have info on scullcap or other herbal treatments?
 
Donny

 
I remember someone mentioning skull cap and clusters, forgot who. It was in combination with the shrooms thing. If you type it in in google.com I suppose it will come up with something.  
 
About herbs: we tried a lot of herbs on cluster, unfortunately without any noticable succes. I think it will be very difficult to find a herb that will actually do something on acute attacks. Perhaps they can work preventative or a bit palliative, but acute? Hmm, difficult.  
 
Anyway, we tried Chinese and Ayur Vedic herbs. Be careful using herbs that contain harmine and harmaline (for instance in passion flower tea), of what I've been told, these substances work like MAO-inhibitors, and you should watch out with any other medication combined with them. It could turn out fine, but could also turn out the opposite (we never tried it). Also be careful on the St John's worth because it's very powerful and works as an anti-depressant, might interfere with other meds.  
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Re: Alternative Therapy
« Reply #42 on: Dec 28th, 2003, 3:44pm »
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on Dec 26th, 2003, 12:41pm, Flash wrote:
please feel free to grovel some more ;0

 
 bow headbanger sayyes beer thumbsup  
 
and finally!
 
 girlflash
 
 
The really cool thing is my cycle is over so it may be next fall before I need to do it again.
 I am still in awe as to how well this worked...amazing.  
 
Thanks
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Re: Alternative Therapy
« Reply #43 on: Dec 28th, 2003, 4:12pm »
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on Dec 28th, 2003, 3:44pm, Mark C wrote:

 
 The really cool thing is my cycle is over so it may be next fall before I need to do it again.
 I am still in awe as to how well this worked...amazing.  
 
Thanks

 
Happy New Year Mark.  Grin
 
PF
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Re: Alternative Therapy
« Reply #44 on: Dec 29th, 2003, 1:58am »
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on Dec 28th, 2003, 3:44pm, Mark C wrote:

 
 bow headbanger sayyes beer thumbsup  
 
and finally!
 
 girlflash
 
 

 
 
Congratulations and Celebrations
WE KNOW HOW GOOD THAT FEELS SO ENJOY, ENJOY ENJOY AND BE HAPPY!
 
« Last Edit: Dec 29th, 2003, 1:58am by HannahFroukje » IP Logged
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Re: Alternative Therapy
« Reply #45 on: Dec 29th, 2003, 5:16am »
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Put on that Handel record: Rejoice, Rejoice, REJOICE GREATLY!
 
Welcome to the fold of cluster escapees, Mark
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Re: Alternative Therapy
« Reply #46 on: Dec 29th, 2003, 6:32am »
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Remember to do a periodic maintenance dose - that way you will not have to experience another episode.  I recommend 1 every 3 months, then after the first year increase to 1 every 6 months, then after another year you can probably get away with annually thereafter.
 
 
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Re: Alternative Therapy
« Reply #47 on: Jan 25th, 2004, 6:07pm »
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Three Months Free!
 

 

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Re: Alternative Therapy
« Reply #48 on: Jan 25th, 2004, 7:20pm »
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Nahright---you guys are giving me a woody! I'm chronic and trying again this upcoming month (february) .  
If someone has a moment, please mail me with *exactly* your procedure of amount, type, time between, etc. I want to get it right this time around!
 
sincerely,  
david.
 
 
fuckenA is that cool!
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Re: Alternative Therapy
« Reply #49 on: Jan 26th, 2004, 4:01am »
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We're currently seeing significant successes with people brewing up batches of tea, keeping it in the fridge, and sipping relatively small quantities every day, and ESPECIALLY before bedtime.
 
This method involves brewing up a 2g batch, and ingesting that over 3-4 days.  There are NO, none, nada, zip, zero side effects.
 
People doing this have reported quite incredible results, and these are from people that were struggling to get anywhere with the single weekly 1-2g dose.
 
I personally am waiting till my next episode onset as opposed to taking an M dose, and I'm going to test this out in the name of science... and partially because I don't really like the hallucinogenic effects much.
 
 
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