Author |
Topic: Poll of Oxygen users (Read 510 times) |
|
cherylc
New Board Newbie
4 baby girls
Gender: 
Posts: 33
|
 |
Poll of Oxygen users
« on: Feb 9th, 2005, 11:30am » |
 Quote  Modify
|
First I again have to say THANK YOU, THANK YOU, THANK YOU!!!! I am so grateful to this site and the people that took the time to help with my questions. I have checked out this site every time I have been hit with the clusters over the last few years, but this time I am so grateful because I had the information and advice I needed from this site to get my oxygen prescription and IT WORKS!!! I had tried 02 in the ER a few times with no help, but I realized that I needed to use exactly what so many of you recommended and exactly how it was recommended. Even though the 02 supplier was very hesitant I got what I needed. I never thought that I could fight these h/a's naturally. I feel so much better not being so heavily medicated (and avoiding the rebound h/a's!) sorry...this is longer than I intended.
I have a few questions for 02 users...
1. How many liters per minute do you set your tank??
2. How long do you inhale the 02?
3. Do you stop as soon as the pain leaves your head or do you continue to inhale for a few minutes?
4. Do you have any side effects from using the o2? Dry throat, sinus pain?
5. Do you use Melatonin? what dose?
I appreciate your answers.
For anyone that hasn't tried it yet...get exactly what this site tells you and try it. It just might work!
Cheryl
|
|
 IP Logged |
|
|
|
Bob P
New Board Hall of Famer
Shut up Bob!
 
Gender: 
Posts: 3436
|
|
Re: Poll of Oxygen users
« Reply #1 on: Feb 9th, 2005, 12:06pm » |
Quote Modify
|
1. 8 lpm
2. About 10 minutes.
3. Stop as soon as I feel the attack die.
4. Yes, both of those (next time I'm getting a bubbler).
5. No
|
|
IP Logged |
Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
|
|
|
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
If I can do it, it ain't art.
    
Gender:
Posts: 2217
|
|
Re: Poll of Oxygen users
« Reply #2 on: Feb 9th, 2005, 12:38pm » |
Quote Modify
|
1. 15 lpm to start, then back it down to as little as possible as soon as possible.
2. As long as it takes. 10-20 minutes.
3. Continue until I realize I just fell asleep. (No straps)
4. Dry only, at hi flow rate.
5. No
None of the regulators from O2 supply would take a "bubbler." Managed to grab a few regulators on EBay that fit the ticket nicely. Problem solved.
|
|
IP Logged |
May those who don't want any
Have memories of never getting any.
|
|
|
Langa
CH.com Alumnus
New Board Hall of Famer
So many donuts, such little time...
Gender:
Posts: 4179
|
|
Re: Poll of Oxygen users
« Reply #3 on: Feb 9th, 2005, 1:36pm » |
Quote Modify
|
1. How many liters per minute do you set your tank?? No less than 12.
2. How long do you inhale the 02? No more than 15-20 minutes usually.
3. Do you stop as soon as the pain leaves your head or do you continue to inhale for a few minutes? I continue but for no more than 1-2 minutes.
4. Do you have any side effects from using the o2? Dry throat, sinus pain? Dry throat.
5. Do you use Melatonin? Yes what dose? 9mg 1/2 hr. b4 bedtime.
Glad the 02 is working for ya!
Langa 
|
|
IP Logged |
When you saw only one set of footprints, it was then that I carried you.
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
Gender:
Posts: 6458
|
|
Re: Poll of Oxygen users
« Reply #4 on: Feb 9th, 2005, 6:04pm » |
Quote Modify
|
1. 10 lpm - 15 vary up and down
2. About 10 minutes.
3. Stop as soon as I feel the attack die or if not working move onto more juice.
4. No
5. yes 6-9 mg
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
Chillrmn1
Guest
|
1. Start at 15 L/M then back down to 10 L/M.
2. Until the attack aborts - up to 10 minutes, then get the Imitrex if O2 doesn't abort.
3. Stop as soon as relief is felt.
4. Dry throat.
5. No.
|
|
IP Logged |
|
|
|
rextangle
Guest
|
1. How many liters per minute do you set your tank??
15LPM
2. How long do you inhale the 02?
15-20 minutes
3. Do you stop as soon as the pain leaves your head or do you continue to inhale for a few minutes?
I stop unless I fall asleep doing it
4. Do you have any side effects from using the o2? Dry throat, sinus pain?
Nope, I use a bubbler attached to it to prevent that...
5. Do you use Melatonin? what dose?
No I don't....
|
|
IP Logged |
|
|
|
Gator
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 4556
|
|
Re: Poll of Oxygen users
« Reply #7 on: Feb 10th, 2005, 1:11am » |
Quote Modify
|
1. Start at 15 then decrease as soon as I can.
2. 10 - 15 minutes, sometimes 20. Depends on the Kip. If it hasn't worked in 20 minutes it ain't gonna.
3. Keep inhaling for a few minutes afterwards.
4. Dry throat sometimes.
5. Ramped up from 1mg to 3mg - 6mg - 9mg to 12mg, increasing the dosage every 4th night. Got two extra attacks per night. No more melatonin for me.
Glad the O2 is working for ya. It's a life and money saver for me.
|
|
IP Logged |
|
|
|
BlueMeanie
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 1178
|
|
Re: Poll of Oxygen users
« Reply #8 on: Feb 10th, 2005, 2:00am » |
Quote Modify
|
1. 12-15 lpm
2. 15 minutes, give up after that and get the Trex
3. continue for a few minutes when it works
4. no. use a bubbler
5. tried up to 8 mg, didn't seem to make any difference
Happy for you Cheryl, glad it works.
|
| « Last Edit: Feb 10th, 2005, 2:05am by BlueMeanie » |
IP Logged |
|
|
|
Redrum
New Board Junior
Doh!
Gender:
Posts: 65
|
|
Re: Poll of Oxygen users
« Reply #9 on: Feb 10th, 2005, 9:24am » |
Quote Modify
|
1. 12 lpm does well for me
2. until its gone, 10-20 min.
3. continue for a couple minutes after pain leaves to be sure its gone. If not the HA will usually come back stronger then before.
4. No, use a bubbler. well actually I've been noticing my beard going grey and wondered if the O2 was bleaching it but I think I'm just getting old.
5. I've only been using melatonin since my last cluster and found 1 mg sublingual + 3 mg slow release seemed to help. My cluster ended almost immeaditly after starting but this could just be another coincidence, will no more next cluster. I now use the 1 mg sublingual when I get shadows.
|
|
IP Logged |
It's hard to be an optimist when the glass is shattered on the floor!
|
|
|
EvertBoer
New Board Newbie
Gender:
Posts: 43
|
|
Re: Poll of Oxygen users
« Reply #10 on: Feb 11th, 2005, 5:34pm » |
Quote Modify
|
1. 7 to 8 LPM (8 is max for my regulator)
2. 10 - 20 Minutes. Usually about 13 minutes. After 20, I use 1/2 trex shot.
3. After the headache subsides, I keep breathing for 2 to 3 minutes while turning down the LPM.
4. No.
5. Tried it. Didn't make much difference.
While I breathe the oxygen, I use slow deep breaths, emptying the whole bag, If I haven't filled my lungs completely, I keep sucking it with empty bag. I exhale slowly so that the bag is all full again before I need to inhale. I make sure I get no regular air by blocking the side hole that doesn't have a valve. Works for me. For me it is very important that I get on the oxygen at the first twinge. After many years, I'm able to wake up before the pain starts.
|
|
IP Logged |
|
|
|
Mr. Happy
CH.com Alumnus
New Board Hall of Famer
If I can do it, it ain't art.
Gender:
Posts: 2217
|
|
Re: Poll of Oxygen users
« Reply #11 on: Feb 11th, 2005, 7:46pm » |
Quote Modify
|
on Feb 11th, 2005, 5:34pm, EvertBoer wrote:| After many years, I'm able to wake up before the pain starts. |
|
That's a trick I'd like to learn. Sort of like fishing for Tog......set the hook just Before they bite.
Good Zen approach with the 8 lpm regulator. The first one I used was the same. It worked fine and dandy........until I got the 15 lpm module and learned to waste O2 with the best of them. Hoorah.
I picked up a fine specimen of a regulator on EBay for $20......well....... $35 including shipping. Check this puppy out:
Back to 1 thru 5,
RJ
|
| « Last Edit: Feb 11th, 2005, 7:48pm by Mr. Happy » |
IP Logged |
May those who don't want any
Have memories of never getting any.
|
|
|
Damon
New Board Newbie
Gender:
Posts: 30
|
|
Re: Poll of Oxygen users
« Reply #12 on: Feb 12th, 2005, 1:49am » |
Quote Modify
|
In answer to your questions
1. 15 lpm
2. 10-40 min then off to VERY hot shower if not working
3. Most of the time the pain has not completly left by then
4. no
5. no
|
|
IP Logged |
|
|
|
toolong
New Board Veteran
Looking for an answer
Gender:
Posts: 183
|
|
Re: Poll of Oxygen users
« Reply #13 on: Feb 12th, 2005, 4:14pm » |
Quote Modify
|
Tried 02 for the first time back in March after reading about it on this website.Doc was not too sure about it but then again no kickbacks from the Imitrex people.Worked like a charm,a dream come true.Can't use triptans since I experienced a heart attack in June.Use it at first sign of the Deamon.Use it almost every night at bedtime with my meletonin (12 mg.)Usage rate that works for me is 15 ltrs for 15 min.I have close to a 90%rate of sucess with it and no hangover.Good luck and many PF days for you  David
|
|
IP Logged |
Hey,watch this!I saw it on a cartoon and I think it might work!
|
|
|
vietvet2tours
CH.com Alumnus
New Board Hall of Famer
Team MOOSE DROOL Stinky Stuff on a Hook Prostaff
Gender:
Posts: 1499
|
|
Re: Poll of Oxygen users
« Reply #14 on: Feb 12th, 2005, 6:55pm » |
Quote Modify
|
AAAAAAAAAAAAAAhxegen works first time everytime it's pepto for the brain.
|
|
IP Logged |
Kill em all let God sort em out
|
|
|
Kevin_M
CH.com Alumnus
New Board Hall of Famer
withered branches grow green again.
Gender:
Posts: 6184
|
|
Re: Poll of Oxygen users
« Reply #15 on: Feb 12th, 2005, 7:37pm » |
Quote Modify
|
1. 12 Lpm minute seems ok, 15 is there if I want it. Depends on how its going.
2. Varies and I haven't timed it anytime but I'm pretty sure about 15 minutes is tops. If I need it longer, or it returns later again and it feels faster and stronger coming on, like Blue, I reach for the trex.
3. I cracked up at Hap's response because I swear it puts me to sleep too. Yes, no strap. But otherwise, until I feel it leaving and feel it has been defeated, not much longer for me.
4. It'll get dry, I haven't gotten any help from the supplier about a bubbler, but a humidifer on the furnace through the dry winter nights helps some.
5. not usually, only when some insomnia bugs me falling asleep sometimes in cycle. 6mg was fine, 9mg and I am slower wanting to wake up in the morning.
Kevin M
|
|
IP Logged |
|
|
|
alienspacebabe
CH.com Alumnus
New Board Hall of Famer
yup. i am. i do. uh huh. you know it hon.
Gender:
Posts: 1775
|
|
Re: Poll of Oxygen users
« Reply #16 on: Feb 12th, 2005, 7:42pm » |
Quote Modify
|
15 lpm used until 5 minutes after the pain is gone. only side effect is sore throat.
|
|
IP Logged |
Not until we are lost do we begin to understand ourselves.
|
|
|
Sean_C
Guest
|
|
Re: Poll of Oxygen users
« Reply #17 on: Feb 12th, 2005, 7:55pm » |
Quote Modify
 Remove
|
1. 15 lpm
2. Start to finish
3. Stop as soon as I feel the attack die.
4. Sometimes
5. No
Sean.....................
|
|
IP Logged |
|
|
|
cherylc
New Board Newbie
4 baby girls
Gender:
Posts: 33
|
|
Re: Poll of Oxygen users
« Reply #18 on: Feb 13th, 2005, 12:45am » |
Quote Modify
|
Again I find myself saying thank you to everyone that answered this poll. It has helped to give me a little more confidence in dealing with these clusters, hopefully others will read and get some relief too.
Cheryl
|
|
IP Logged |
|
|
|
toolong
New Board Veteran
Looking for an answer
Gender:
Posts: 183
|
|
Re: Poll of Oxygen users
« Reply #19 on: Feb 13th, 2005, 9:31am » |
Quote Modify
|
Alien Space Babe,try using a humidifier with your 02.It will stop the sore throat and dry nose.Easy to use and very inexpensive to buy. David
|
|
IP Logged |
Hey,watch this!I saw it on a cartoon and I think it might work!
|
|
|
Dave_W
New Board Junior
Pain Free Days!!!
Gender:
Posts: 83
|
|
Re: Poll of Oxygen users
« Reply #20 on: Feb 15th, 2005, 1:42pm » |
Quote Modify
|
I have a few questions for 02 users...
1. How many liters per minute do you set your tank??
8 or 9. If no effect in 10 minutes, up to 12 or 15
2. How long do you inhale the 02?
10 minutes usually does the trick for pain, then I breathe it for another few (15 total usually)
3. Do you stop as soon as the pain leaves your head or do you continue to inhale for a few minutes?
Continue a bit.
4. Do you have any side effects from using the o2? Dry throat, sinus pain?
Last year, I got a set of burnt nasal passages (used too frequently without humidification). Remember, oxygen is an oxidizer (burns). Otherwise, no real complaints.
5. Do you use Melatonin? what dose?
Nope
|
|
IP Logged |
Old Decrepit Dave
|
|
|
Cooked Brain
New Board Old Timer
a.k.a. Max Payne, YOUCH this hurts...
Gender:
Posts: 411
|
|
Re: Poll of Oxygen users
« Reply #21 on: Feb 25th, 2005, 10:33pm » |
Quote Modify
|
Hi Cheryl!
1. 8lpm.
2 and 3. 10 to 20 mins to kill the headache, and then another 5 mins just to make sure. If found that when I plug off too soon the headache comes back within minutes. IF the pain doesn't stop after 20 minutes I take a break and try again.
4. dryiness and (sometimes) dizzyness.
5. no.
Good to read you are feeling better Pass on the word, as I am sure you will do
Pfd & take care
|
|
IP Logged |
"We can NOT solve our problems with the same kind of thinking that got us IN to the problem in the first place" Albert Einstein
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss