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Topic: Some possible relief from the beast. (Read 414 times) |
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iwannabeer
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Ride it like you stole it!
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Some possible relief from the beast.
« on: Feb 27th, 2005, 6:40am » |
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Hello all! I am a newbie to your site, glad I found it!
My quack prescribed at least a dozen things to help with my CH's and none of them seemed to do anything. He now has me taking CARBATROL 300mg, an epilepsy medicine. It takes it 3 or 4 days to get into your system, but once it kicked in, my CH's were still there, but virtually pain free. I still have them, but they don't hurt, if that makes sense. I mean, your left eye still tries to close, you still feel some pressure but it no longer feels like someone is chewing on the left side of your brain. Some day's I don't have any at all, but alcohol will still trigger an attack, a full blown one. If any of you have had experience with this drug, let me know. I am still in a cycle, since mid December, hoping remission is just around the corner.........
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"All things crafted at the hand of man, are destined to fail"
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BobG
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Re: Some possible relief from the beast.
« Reply #1 on: Feb 27th, 2005, 7:57am » |
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Welcome to the board iwannabeer. The painless attacks you talk about are called phantom clusters. They are real attacks just without the pain.
CARBATROL is a med I've never heard of so I can't comment on it.
Alcohol is a trigger for most clusterheads. Sorry you wannabeer but you'll just have to wait until the cycle is over.
I like your little icon man's attitude.
Drive it like it's rented!
Accelerate 'til you see God. Then brake.
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| « Last Edit: Feb 28th, 2005, 3:50am by BobG » |
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Stay stressed. Never relax. Never sleep. Ever.
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Tom
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I love YaBB 1G - SP1!
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Re: Some possible relief from the beast.
« Reply #2 on: Feb 27th, 2005, 6:07pm » |
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Carbamazepine is said to don't work for CH...
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Thomas/Munich
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: Some possible relief from the beast.
« Reply #3 on: Feb 28th, 2005, 3:39am » |
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Welcome! 
I'm glad that you found us & that you've got a med which helps you with ch. But I am sorry that you have ch... 
Good luck with your battle against ch!
Best wishes & PFdays,
Sandie
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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iwannabeer
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Ride it like you stole it!
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Re: Some possible relief from the beast.
« Reply #5 on: Mar 2nd, 2005, 4:36am » |
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Im not trying to defend the drug, but let's not be one sided...lol
http://my.webmd.com/hw/drug_data/d00058a1.asp
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"All things crafted at the hand of man, are destined to fail"
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vig
CH.com Alumnus
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CHit Happens
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Re: Some possible relief from the beast.
« Reply #6 on: Mar 2nd, 2005, 11:02am » |
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"Commonly reported side effects include drowsiness, headache, dizziness, blurred vision, difficulty in thinking, diarrhea, double vision, nausea and vomiting. Rare effects include allergic skin rashes (in about 10 percent of patients). Some skin rashes may be severe."
hmmm lovely!
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never, Never, NEVER quit. -Winston Churchill
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