Welcome, Guest. Please Login or Register
Clusterheadaches.com
 
Search box updated Dec 3, 2011... Search ch.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday List  
 





Pages: 1 2 
Send Topic Print
New board specifically for supporters! (Read 19009 times)
DJ
YaBB Administrator
*****
Offline


Boyz Rule!


Posts: 7480455
Wichita, KS
Gender: male
New board specifically for supporters!
Feb 14th, 2002 at 10:50pm
 
So many people have asked previously about adding a special section specifically for those who have to put up with us clusterheads, our supporters.

If you support a husband, wife, son, daughter, loved one, friend, co-worker who had clusters, this section is for you!

Smiley
Back to top
  

I NEVER could have imagined! (April 11th, 1998 - present). Adversity does not build character... it reveals it.
WWW 588277454  
IP Logged
 
Margi
YaBB Moderator
*****
Offline


Nuthin like a good neck
rub!


Posts: 3814
x1|Calgary|Canada|
Gender: female
[i][/i][Re: New board specifically for supporters!
Reply #1 - Feb 14th, 2002 at 10:54pm
 
oh - VERY COOL, DJ!!!  Thank you SO much for doing this for us!!  K, no peeking - us supporters might say nasty things about youse guys in here.  Again, DJ - this is awesome that you did this.  This totally rocks.  And, one good thing about the new board is that it's REALLY nice to see the webmaster posting again.  You better be careful, dude or folks are gonna start calling you a ClusterGod again.  Tongue
8)

Back to top
  

And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
Margi Storey  
IP Logged
 
KarenT
Ex Member



Look,Margi! We've got our own room!
Reply #2 - Feb 15th, 2002 at 8:48am
 
Grin

I'm still trying to figure all this out. Imagine my surprise when I saw the change...too much work and not enough  'puter gets me waaaaaaaaay behind. I like it anyway.  Wink
Back to top
  
 
IP Logged
 
minnie
Ex Member



Re: New board specifically for supporters!
Reply #3 - Feb 15th, 2002 at 9:05am
 
Hi guys i'm happy to see this board.I'm sure it will be busy soon. seems funny to see you listed as a newbie margie  Winklol.well got to go explore the sight but I'll be checking in.   keep up the good job supporters!!!!!      
                        Minnie
Back to top
  
 
IP Logged
 
Margi
YaBB Moderator
*****
Offline


Nuthin like a good neck
rub!


Posts: 3814
x1|Calgary|Canada|
Gender: female
[b][/b]Re: New board specifically for supporters!
Reply #4 - Feb 15th, 2002 at 9:29am
 
Isn't it AWESOME that DJ has done this for us? I think we're making history here, gang. 

I think it's also important to remind the supporters out there about the Family Services Team at the OUCH website too.  Here's a link to our pages there:

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register

Hmmm....this is so cool to have our own little area now.  I just feel like nesting, now!  We'll have to get some nice plants and do some feng shui to make it all comfy in here.  We'll get some comfy couches, some punching bags and tons of kleenex.  I think we'll get a dart board too.  We can hang pictures of Hub and Jackie Boyd up there for practice. 

Yep, this works.  Thanks, DJ.

Grin  I'm smiling BIG here this morning.
Back to top
  

And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
Margi Storey  
IP Logged
 
Monique
CH.com Junior
**
Offline


Farm Fresh!


Posts: 84
Ontario, Canada
Gender: female
Re: New board specifically for supporters!
Reply #5 - Feb 15th, 2002 at 9:49am
 
Margi... honey.... what are your two gorilla's doing???

Your a naughty lady Margi Storey!!

LMAO
Back to top
  

Deep Breath And Go On.......
 
IP Logged
 
Margi
YaBB Moderator
*****
Offline


Nuthin like a good neck
rub!


Posts: 3814
x1|Calgary|Canada|
Gender: female
Re: New board specifically for supporters!
Reply #6 - Feb 15th, 2002 at 10:35am
 
Well, I'm glad SOMEBODY finally asked! She's a supporter gorilla, he's a gorilla clusterhead.  She's giving him a neck massage and trying to keep him calm through the attack.  She's a good little supporter.

What did YOU think they were doing?  I think you've lived in the Canadian boonies too long honey.  We gotta get you out here to the big city.  You've a dirty little mind, Mrs. Roadknight.
Back to top
  

And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
Margi Storey  
IP Logged
 
Margi
YaBB Moderator
*****
Offline


Nuthin like a good neck
rub!


Posts: 3814
x1|Calgary|Canada|
Gender: female
Re: New board specifically for supporters!
Reply #7 - Feb 15th, 2002 at 10:36am
 
either that, or she's picking nits out of his fur.  But I prefer the massage story, personally.
Kiss
Back to top
  

And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
Margi Storey  
IP Logged
 
Margi
YaBB Moderator
*****
Offline


Nuthin like a good neck
rub!


Posts: 3814
x1|Calgary|Canada|
Gender: female
Re: New board specifically for supporters!
Reply #8 - Feb 16th, 2002 at 9:12am
 
Aw, thanks Ted.  K, shut up now.

Kiss
Back to top
  

And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
Margi Storey  
IP Logged
 
Monique
CH.com Junior
**
Offline


Farm Fresh!


Posts: 84
Ontario, Canada
Gender: female
Re: New board specifically for supporters!
Reply #9 - Feb 16th, 2002 at 10:21am
 
OH ME GAWD!!!  Margi's a somebody!!!
Sheez left me behind in my nothingness... Sad
Way to go Sweaty! 
DJ's a smart man! Wink
Back to top
  

Deep Breath And Go On.......
 
IP Logged
 
Darleen
CH.com Veteran
***
Offline


Peek-a-boo


Posts: 240
x1|Sydney|Canada|canada|501|301|NS,Nova_Scotia
Gender: female
Re: New board specifically for supporters!
Reply #10 - Feb 16th, 2002 at 10:47am
 
Thanks for the new board DJ!!
  See we are so special we now have our part of the board!! 
Yippee!!!

8)

Margi  -  I always knew you were a somebody...

Congratulations chick!!


Back to top
  
 
IP Logged
 
Donna
Ex Member
*




Gender: female
Re: New board specifically for supporters!
Reply #11 - Feb 16th, 2002 at 12:21pm
 
Just when I thought it was good, it got better.

This is a great idea, a great place to be and we have a great coach for our little rooting team here.  Only, why are your stars green, Margi?  Too busy to polish them?  Whats a girl gonna do!

The monkies are doing a good job.  Our Support Mascots..............I like that, don't all of you? Cheesy

I'm going back to sleep now.  These nights are doing me in.  And those street lights are too bright. Wink 8)


Back to top
  
 
IP Logged
 
tedski
CH.com Newbie
*
Offline


Ooh-Rah!!!


Posts: 22
x0|Madison|USA|usa|||WI,Wisconsin
Gender: male
Re: New board specifically for supporters!
Reply #12 - Feb 16th, 2002 at 1:03pm
 
Thanks DJ

Grin
Back to top
  

Karla's #1 supporter
 
IP Logged
 
Todd
Ex Member



Re: New board specifically for supporters!
Reply #13 - Feb 17th, 2002 at 6:28pm
 
For the record -

I am a supporter as well as a clusterhead.

KTSSU,
T
Back to top
  
 
IP Logged
 
Cheryl
Ex Member



Re: New board specifically for supporters!
Reply #14 - Feb 18th, 2002 at 10:59am
 
WOW!!!!!!!!!!! Isn't this progress... Incentive for the Media Committee HUH!

Smiley

Love
Cheryl
Back to top
  
 
IP Logged
 
RACH
Ex Member



THANK GOD!!!
Reply #15 - May 17th, 2002 at 8:51pm
 
I HAVE BEEN CHECKING IN WITH THIS SIGHT FOR MANY YEARS TO FIND OUT THE LATEST ON CH FOR MY HUSBAND WHO HAS SUFFERED FOR 15 YEARS.  THIS NEW BOARD IS JUST WHAT WE HAVE ALWAYS NEEDED.  HE IS NOT IN HIS CYCLE RIGHT NOW (THANK GOODNESS!!) AND WE TEND TO ACT LIKE IT DOESN'T EXIST DURING THE OFF MONTHS BUT WE JUST GOT A NEW PC AND I THOUGHT I WOULD CHECK IN.  WHAT A PLEASANT SURPRISE!!  I'LL PROBABLY NEED THIS ALOT IN AUGUST WHEN WE EXPECT HIS CYCLE TO BEGIN.  WHO KNOWS MAYBE THIS WILL BE THE YEAR WE GET LUCKY!!  I AM ALWAYS LOOKING FOR KNEW INFO ON CH AND HAVE A NOTEBOOK FULL OF IT, AND  HAVE ASKED MY HUSBAND'S NEURO HOW TO START A SUPPORT GROUP TO SHARE INFO, NOW I GUESS I DON'T HAVE TO.  I APPRECIATE ALL OF YOUR  HARD WORK.  NO ONE ELSE TRULY UNDERSTANDS UNLESS THEY LIVE IT!!  GLAD YOU'RE HERE IF I NEED YOU.  THANKS DJ 
RACH
Back to top
  
 
IP Logged
 
Not4Hire
CH.com Alumnus
***
Offline


...PF since Oct.'02, thanks
to ClusterBusters...


Posts: 1247
Austin|USA|Texas
Gender: male
Re: New board specifically for supporters!
Reply #16 - May 17th, 2002 at 10:04pm
 
I'm not tellin' her (RACH)....somebody, please!!!??
Back to top
  

Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to Login or Register
Mantra: This will NOT kill me...This will not KILL me...This will not kill ME..
 
IP Logged
 
ave
Ex Member



Dear RacRe: New board specifically for supporters!
Reply #17 - May 18th, 2002 at 7:06am
 
Dear Rach,

it is nice the cluster supportgroup is so appreciated. However...

If you check you'll see that many of the people who post here are not in cycle/have no partners etc. in cycle. They don't need to come here. Yet here they are to support others through agony.

And though DJ and Margi deserve all you said in praise, it might be an even better  idea to give some support now, before it is August, share your knowledge, share your compassion.

Thanks for listening,
Ave

Back to top
  
 
IP Logged
 
Dswife
Ex Member



Re: New board specifically for supporters!
Reply #18 - Jun 13th, 2002 at 8:53am
 
Hey everyone.

I'm the wife of a cluster headache sufferer and was looking for a place to interact with other supporters.  My husband has had chronic clusters for 3 years now.  Just wondered if I could join up with you guys.  It is SO COOL to see a website with a place for supporters to message.

Thanks for being here.
Jenny Smiley
Back to top
  
 
IP Logged
 
Dswife
Ex Member



Re: New board specifically for supporters!
Reply #19 - Jun 13th, 2002 at 8:54am
 
Hey everyone.

I'm the wife of a cluster headache sufferer and was looking for a place to interact with other supporters.  My husband has had chronic clusters for 3 years now.  Just wondered if I could join up with you guys.  It is SO COOL to see a website with a place for supporters to message.

Thanks for being here.
Jenny Smiley
Back to top
  
 
IP Logged
 
Margi
YaBB Moderator
*****
Offline


Nuthin like a good neck
rub!


Posts: 3814
x1|Calgary|Canada|
Gender: female
Re: New board specifically for supporters!
Reply #20 - Jun 13th, 2002 at 10:06am
 
Hi Jenny - Welcome!  Smiley

Pull up a chair and read everything you can find that's been compiled here for sufferers and supporters.  We're here to help.  Check out our Family Services Team at the OUCH website, in the menus above the map.


Back to top
  

And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
Margi Storey  
IP Logged
 
THEDONA
Ex Member



Re: New board specifically for supporters!
Reply #21 - Jun 18th, 2002 at 5:26pm
 
CryHelp!  My husband was just diagnosed with Cluster Headaches.  It was a guess on the doctors part.   So please those of you that know could you answer the following questions.  Do they occur at anytime of day and sometimes many times.  Do they stop only with pain medication.  Does it take several doses to make them stop.  Does anyone you know have the headaches without the other symptoms?  Do they just start out of no where.  This whole mess started for us 8 days ago.  Everything I have read doesn't seem to fit the Headache profile that my husband has.  If you know the answer please help ???
Back to top
  
 
IP Logged
 
Dswife
Ex Member



Re: New board specifically for supporters!
Reply #22 - Jun 18th, 2002 at 8:53pm
 
Hey, I think you came to the right place if your husband's doctor suspects he has clusters.
I'll share my experience with you, and answer your questions according to what I've found to be true.  (I'm the wife of a c.head too.)

Yes, they can occur at any time of the day or night.  However, they don't usually respond to "traditional" headache medications.  And after a while they would probably have some sort of pattern.  Does he just have them at night?  Or a certain time of day?  My husband is a chronic sufferer, and he is in the 4th year of his cycle. 

What is your husband's headache profile?  That might make it easier for the people here to answer the questions you have.

Hang in there...there is hope.
Jenny Wink
Back to top
  
 
IP Logged
 
kaos
Ex Member



Re: New board specifically for supporters!
Reply #23 - Jun 26th, 2002 at 7:26pm
 
[color=Purple][/color]

Greetings to all supporters from New Zealand.
Great to have this site.
I don't have much to support with, but find that living day at a time is too long - minute at a time seems to work best, that way we get a few good minutes in every day even if they're bad days.

It's easy to get lost in the doom and despair and miss the odd moment of happiness, and they do occur!

In the midst of all this anguish, a strange thing happened. A horse, long abused by its owners arrived at our place to use the paddock by the house. He was dropped off there and no-one came back to check on him.A bit of a farmer in my past, I couldn't ignore this poor fellow, and took time to check him out. He'd been bitten all over by a particulary nasty stallion, had been beaten mercilessly, and was to be fattened for dog food!!

NO!!!! Off to the vet - (more medical expenses?) wormed him and fed him regularly. Three days later he seemed to snap out of his misery and decided that not all humans were a bad lot. Our daughter arrived and bathed him, and after that, he wouldn't leave me alone. I call him Follow now as he had no name, and this is what he does.

Turns out he's a thorobred and had fallen on hard times when a teenage owner left for education. He passed into cruel hands and ended up with us.

It's strange how it has given us something new and exciting to focus on. It'll be summer B4 I can ride him, he's so thin, but he'll bring us moments of joy in the summer. It was good to do something for him and see a result. He's definitely getting fatter.

Funny how things come along at times when you need them to?

Even if you're not loooking for them.

This site is good! I'm a freelance writer, so if I can be of any assistance, just let me know.

Kind thoughts;
Love, peace, health and happiness always. Kaos

Back to top
  
 
IP Logged
 
kristi
Ex Member



Re: New board specifically for supporters!
Reply #24 - Jun 27th, 2002 at 9:46pm
 
Thank you Kaos, for posting such a touching story.  My father always said God will give us something, when we most need it, to help us remember what is really important and where we are supposed to place our focus in life.  I would say then that God is blessing you through Follow.

PFDAN!

K
Back to top
  
 
IP Logged
 
Pages: 1 2 
Send Topic Print

DISCLAIMER: All information contained on this web site is for informational purposes only.  It is in no way intended to be used as a replacement for professional medical treatment.   clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site.  All information taken from the internet should be discussed with a medical professional!