Click this link to read a post I like on the clusterheadaches.com message board...

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Who is who here to the newcommers Reply #75 - Nov 17^th, 2005 at 6:12pm Jonny, that would be awesome for you to do that for Cathy. WHAT A GREAT IDEA!!!!!!!!!!!!!!!! You wouldn't have to be as bald as Jimi Hendrix. You've got enough for a wig AND and nice haircut. And yes, Margi is correct.....lots of women would die to have your hair. Linda
Back to top	Hurt people.....hurt people. Think about it. IP Logged

jangus

CH.com Newbie

Offline

From under the Redwood
Canopy

Posts: 19
x1|Redway|USA|usa|12|123|CA,California
Gender: male

/S
Reply #76 - Nov 17^th, 2005 at 6:57pm

Hi all... I'm Johnny A from the Humboldt Hills of Northern California. I'm 49 years old and have been a victim of CH since I was 23 (26 years). I've tried many, many methods including Homeopothy, Quantum Energetics, Cranial Sacrum therapy, Chiropractics, Accupuncture, Reike, Shiatsu, various folk remedies and even flew to see a witch doktor living in a cave on Parangtritis Beach on Java, Indonesia. I started my current cycle on November 6, 2005 and I've since had 3 sessions of Quantum Energetics and 1 session of Accupuncture/Shiatsu with Chief Surgeon, Dr. William Zhao in Eureka, CA.

I also have been using 10 litres per minute of 100% Oxygen for 15-20 minutes at the onset and drinking at least 200 ounces of water per day. Last night was the first in this cycle that I did not have a CH. Yeah!

Tomorrow, I will receive another session of Quantum Energetics by someone that has been practicing for 15 years. She knows her stuff! This form of therapy has helped me acheive my longest interval between cycles... 3 years and 1 month!

When none of the above works, I use the very expensive Maxalt which seems to abort the CH about 85% of the time. But at $50 per headache, I try not to eat them all up in one week. Cafergot works as an alternative, but not nearly as effective...maybe 45% of the time... I don't know... especially as I get deeper into the cycle. If Cafergot doesn't work, then I move to Dilaudid which enhances the "dizziness" and "nausea" to horrible levels. Hangover to boot! Later on in the cycle... when I'm up to about 16-20mg of Dilaudid, and still not getting results... I'm off to the emergency room for muscle shot of Demerol... now we're talkin' hangover! Blahhh!

Give me LSD or give me Psilosybin or give me death!

Much sincere sympathy to you all. I too am extremely grateful for this site and all of your warm, wonderful, supportive commentary.

Peace be with you.

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Back to top

"Don't 'cha touch hard liquor,&&just a cup of cold coffee...&&gonna get up in the morning&&and go."

IP Logged

Jonny

Ex Member

Re: Who is who here to the newcommers
Reply #77 - Nov 17^th, 2005 at 7:01pm

Linda_Howell wrote on Nov 17^th, 2005 at 6:12pm:

Jonny, that would be awesome for you to do that for Cathy. WHAT A GREAT IDEA!!!!!!!!!!!!!!!!

You wouldn't have to be as bald as Jimi Hendrix.
You've got enough for a wig AND and nice haircut.

And yes, Margi is correct.....lots of women would die to have your hair.

Linda

Have you seen her?....She has three times my hair in curls and its bearly past her shoulders......LOL

If I do it im going all the way, Im hair for sufferers and supporters equally ; Grin

Oh God!!....LOL

Back to top

IP Logged

Linda_Howell

CH.com Moderator
CH.com Alumnus

Offline

Do not feed the Moderators

Posts: 11927
Santa Maria, Ca.
Gender: female

Re: Who is who here to the newcommers
Reply #78 - Nov 17^th, 2005 at 7:34pm

Welcome Jangus.

There is a lot of info and help here. Also go to:

Quote:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

We are a chapter of OUCH and maybe you might feel more comfortable talking to us over there as we can possibly help you with problems known only to GOD and Californians. lol Just kidding.

Linda

p.s. Quote:

Im hair for sufferers and supporters equally

I do not believe you said this Jonny. lmao!

Back to top

Hurt people.....hurt people. Think about it.

IP Logged

Jonny

Ex Member

Re: /S
Reply #79 - Nov 17^th, 2005 at 7:57pm

jangus wrote on Nov 17^th, 2005 at 6:57pm:

Hi all... I'm Johnny A from the Humboldt Hills of Northern California. I'm 49 years old and have been a victim of CH since I was 23 (26 years). I've tried many, many methods including Homeopothy, Quantum Energetics, Cranial Sacrum therapy, Chiropractics, Accupuncture, Reike, Shiatsu, various folk remedies and even flew to see a witch doktor living in a cave on Parangtritis Beach on Java, Indonesia.

Well, at least you ruled out all the bull- shit ; Grin

Back to top

IP Logged

BobG CH.com Hall of Famer Offline Posts: 6422 St. George, UT Gender:	Re: /S Reply #80 - Nov 17^th, 2005 at 8:13pm Quote: Well, at least you ruled out all the bull- shit ; LMAO! Quantum Energetics? Isn’t that the Canadian Company that sells hand grenades?
Back to top	Stay stressed. Never relax. Never sleep. Ever. IP Logged

Click Here to visit the CH.com Facebook page!

jangus

CH.com Newbie

Offline

From under the Redwood
Canopy

Posts: 19
x1|Redway|USA|usa|12|123|CA,California
Gender: male

Re: Who is who here to the newcommers
Reply #81 - Nov 17^th, 2005 at 9:16pm

Like I said folks... Quantum Energetics has honestly been the only real "cure" I've found in 26 years. You can joke about it, but if relief is what you're looking for... I strongly suggest finding a knowledgeable practitioner and having a few sessions. It just might be what you're head is asking for.Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Back to top

"Don't 'cha touch hard liquor,&&just a cup of cold coffee...&&gonna get up in the morning&&and go."

IP Logged

E-Double

CH.com Alumnus

Offline

Are we ourselves?

Posts: 6948
Commack,New_York
Gender: male

Re: Who is who here to the newcommers
Reply #82 - Nov 17^th, 2005 at 9:23pm

Welcome JohhnyA.
Whatever works for ya.
Sounds like quackery to me, however, yrs. before traditional meds there were things used to treat everything right???

Oh yeah..here is what's supposed to be in the little red box:

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Back to top

I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again.

IP Logged

jangus CH.com Newbie Offline From under the Redwood Canopy Posts: 19 x1\|Redway\|USA\|usa\|12\|123\|CA,California Gender:	Re: Who is who here to the newcommers Reply #83 - Nov 17^th, 2005 at 9:36pm Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	"Don't 'cha touch hard liquor,&&just a cup of cold coffee...&&gonna get up in the morning&&and go." IP Logged

Dan_The_Man_Howell CH.com Newbie Offline Im you're huckle berry! Posts: 12 x0\|riverside\|USA\|\|0\|0\|CA,California	Re: Who is who here to the newcommers Reply #84 - Nov 18^th, 2005 at 12:01am Thanks Margi! I cant try the pic thing just yet, I got viruses AND spywares in my comp. allready! Im afraid to do any thing. I barely got on the net . I have to sign out and turn off my comp. for now untill i can have some one fix it so Ill be on the net mon. and wed. from school. Tlk to you then . dan
Back to top	IP Logged

Dan_The_Man_Howell CH.com Newbie Offline Im you're huckle berry! Posts: 12 x0\|riverside\|USA\|\|0\|0\|CA,California	Re: Who is who here to the newcommers Reply #85 - Nov 19^th, 2005 at 11:57pm Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or I hope this works! dan
Back to top	IP Logged

Dan_The_Man_Howell CH.com Newbie Offline Im you're huckle berry! Posts: 12 x0\|riverside\|USA\|\|0\|0\|CA,California	Re: Who is who here to the newcommers Reply #86 - Nov 19^th, 2005 at 11:59pm Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or maybe this time !
Back to top	IP Logged

thebbz Ex Member	Re: Who is who here to the newcommers Reply #87 - Nov 21^st, 2005 at 9:37pm testing 1,2,Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	IP Logged

Dan_The_Man_Howell CH.com Newbie Offline Im you're huckle berry! Posts: 12 x0\|riverside\|USA\|\|0\|0\|CA,California	Re: Who is who here to the newcommers Reply #88 - Nov 24^th, 2005 at 4:27pm Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	IP Logged

Click Here to visit the CH.com Facebook page!

LeLimey Ex Member	Re: Who is who here to the newcommers Reply #89 - Nov 24^th, 2005 at 4:31pm Hi Dan! Good to see you looking so much better than in the pics your mum showed me in Dallas. I don't ever want to see you looking like that again y'hear?! Nice to have you here love Helen X
Back to top	IP Logged

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: Who is who here to the newcommers Reply #90 - Nov 24^th, 2005 at 4:33pm THAT'S MY BOY!!!!!!!!! Linda
Back to top	Hurt people.....hurt people. Think about it. IP Logged

Dan_The_Man_Howell CH.com Newbie Offline Im you're huckle berry! Posts: 12 x0\|riverside\|USA\|\|0\|0\|CA,California	Re: Who is who here to the newcommers Reply #91 - Nov 24^th, 2005 at 4:40pm Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or so here they are! finally ! Enjoy
Back to top	IP Logged

Margi CH.com Alumnus Offline Nuthin like a good neck rub! Posts: 3814 x1\|Calgary\|Canada\| Gender:	Re: Who is who here to the newcommers Reply #92 - Nov 24^th, 2005 at 4:45pm here's your 2nd pic, Dan... there was an extra space in there... you've sure got your mom's eyes. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world) IP Logged

E-Double CH.com Alumnus Offline Are we ourselves? Posts: 6948 Commack,New_York Gender:	Re: Who is who here to the newcommers Reply #93 - Nov 24^th, 2005 at 8:48pm Margi wrote on Nov 24^th, 2005 at 4:45pm: you've sure got your mom's eyes. He sure does! Nice to "meet" ya. You have a hell of a groovy mommy
Back to top	I can't believe that I have to bang my Head against this wall again. But the blows they have just a little more Space in-between them. Gonna take a breath and try again. IP Logged

Dan_The_Man_Howell

CH.com Newbie

Offline

Im you're huckle berry!

Posts: 12
x0|riverside|USA||0|0|CA,California

Re: Who is who here to the newcommers
Reply #94 - Nov 26^th, 2005 at 2:31pm

Thanks for putting that pic up margi
And YES, I do have gorgeous eyes dont I? Roll Eyes

should I just call you E e double? Nice to meet you too. were do you all live?
Mom, do you have yahoo IM? thats the mess. I use. I still cant seem to find a chat room or I M place
heres a pic of me and my neice kristen. shes got the best eyes......Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Back to top

IP Logged

BarbaraD

CH.com Alumnus

Offline

Hugs to ya

Posts: 8333
Douglasville, TX
Gender: female

Re: Who is who here to the newcommers
Reply #95 - Nov 30^th, 2005 at 11:27am

Hi,

I'm Barb D and I've been here since 98 (ok I'm an OLDIE). I'm electronically challenged so can't post a picture so you'll just have to believe I'm 29, 5'2, and a beautiful blonde (yeah right and I've got a bridge in Brooklyn that's for sale too).

I'm a chronic clusterhead, a recent widow with a four year old grandson (if you have about four days I'll tell you about him!). I'm a semi-retired accountant who's looking forward to moving to the country and watching my grandson grow and keeping up with the gossip (not much else to do in the country).

For all of you who've found this site - welcome to Clusterville. It's the best place to come for support and understanding. It's a place where you'll find someone who "understands" what you're going thru, someone who can make you laugh when you're hurting and want to give up and someone who "really" cares.

Hugs to you all,

BD

Back to top

What don't kill ya, Makes ya stronger!

IP Logged

rubberplant

CH.com Junior

Offline

Posts: 84
Westcliff-on-Sea, UK
Gender: male

Re: Who is who here to the newcommers
Reply #96 - Dec 19^th, 2005 at 7:20am

Hi all,

It's good to read about everyone again! It's good to know you're all still here!

I haven't been around for a while as I have been PF since 4 or 5 weeks after my son was born. About 16 months ago. Just been put on Citalopram for a bout of depression. (Will start a new post on that rather than jump this thread) Looks like I might have just started a cycle in the last two days. Cry

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

or

Best Wishes to all

Strange how you can miss people you've never met

James

Back to top

"It is a mistake to think you can solve any major problems just with potatoes." - Douglas Adams

IP Logged

Click Here to visit the CH.com Facebook page!

Ree CH.com Hall of Famer Offline Got Faith? Posts: 5381 Natick, MA Gender:	Re: Who is who here to the newcommers Reply #97 - Jan 15^th, 2006 at 3:03pm Linda H... your son is adorable.....jussssss like you and your little grand daughter is sooooo sweet... nice family love ree
Back to top	Single Proud Mom to US ARMY Kiowa OH58 PILOT~CWO3 Scott, Police OFFICER Sean, FSU Freshman~ Breezy~ Nana to Matt, Mike & Aya, MIL To Shino, IP Logged

gtjim

CH.com Newbie

Offline

I love YaBB 1G - SP1!

Posts: 4
x0|adelaide|Australia||0|0|SA,South_Australia

Re: Who is who here to the newcommers
Reply #98 - Jan 16^th, 2006 at 8:22am

hi, my name is jim and im just getting over a ch kip 7. i live in australia and was diagnosed with this last week. this site rocks! if i didnt stumble onto this site i wouldnt have known about the icepack trick or the coffee trick. THANKYOU.these two things have helped me immensley, plus im on verapamil(not sure if it is really helping though).

ch SUCKS BIG TIME

are there any bad short or long term side effects of using verapamil?

Back to top

IP Logged

upnover CH.com Junior Offline I love YaBB 1G - SP1! Posts: 33 x0\|charlotte\|USA\|\|0\|0\|NC,North_Carolina Gender:	Re: Who is who here to the newcommers Reply #99 - Jan 19^th, 2006 at 11:28am Hi I'm new here but have been a ch for about 14yrs.. 35yrs old married with two great girls 18mths and 7yrs old. I wish I had found this site a long time ago but better late than never. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	« Last Edit: Jan 20^th, 2006 at 5:37pm by upnover » Tom&& IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!