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Annette

Ex Member

The cries in the night !
May 13^th, 2008 at 6:10pm

$@(*$&@(*W*YE@(*$^@($*@ !

It looks like Daniel is starting another cycle ! Cry

For the last 5 nights he has had 2 hits per night at 12 am and 6 am like clock work and now he is starting the day hits too. Although we are more experienced this time around and got on meds quickly so the hits arent as bad as 2 years ago, they can be killed fairly quickly within 10 mins with oxygen and imigran nasal sprays, and the kip levels arent bad but still I so much hate waking up to those muffled cries in the night !

Cry

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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: The cries in the night ! Reply #1 - May 13^th, 2008 at 11:01pm Dammit. I hate this stuff. You all hang tough--really glad to know that you're better-armed this time around, Annette. All the best, George
Back to top	"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535) IP Logged

Guiseppi CH.com Moderator CH.com Alumnus Offline San Diego to Florida 05-16-2011 Posts: 12063 SAN DIEGO, CALIFORNIA USA Gender:	Re: The cries in the night ! Reply #2 - May 14^th, 2008 at 2:08pm Damn sorry to hear he found your address again. Incredibly efficient that way the beast is. Guiseppi
Back to top	"Somebody had to say it" is usually a piss poor excuse to be mean. IP Logged

Garys_Girl CH.com Hall of Famer Offline Making biscuits Posts: 821 Planet Cat, NJ Gender:	Re: The cries in the night ! Reply #3 - May 16^th, 2008 at 12:09pm I am so, so, so sorry!!!!!!!!!!!!!!!!!!!!! I'm glad to hear the current aresenal is working pretty well and quickly. Hope it stays that way and that this cycle passes quickly. Laurie
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Annette

Ex Member

Re: The cries in the night !
Reply #4 - May 16^th, 2008 at 11:12pm

Thank you George, Joe and Laurie for your support.

This cycle rammed up quite quickly for Daniel, within a few days he went to 2 hits at night to 2 more in a day then 6 hits in 24 hrs ( every 4 hrs like clock work ). He got on prednisone, epilim and neurontin straight away and he was already on verapamil. The hits are mostly around Kip5-6 and lasted only around 10-20 mins with oxygen or spray. He had 1 kip 10 the other night, woken up from a deep sleep so it was already raging. It was too late then as nothing seemed to work. Fortunately it only lasted 40 mins.

Overall, its nowhere as bad as last cycle and we are praying that it stays that way for the length of the cycle and that the cycle itself will only be a short one.

God, I hate this stuff !! Cry

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cash5542 CH.com Hall of Famer Offline I love YaBB 1G - SP1! Posts: 1243 x1\|Ocean Pines\|USA\|usa\|498\|141\|MD,Maryland Gender:	Re: The cries in the night ! Reply #5 - May 17^th, 2008 at 10:58pm ((((HUGS))))) I still can't get used to how this just creeps up and makes life a living hell for the sufferer and anyone close by. Hang in there! Charlotte
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Angie CH.com Alumnus Offline Supporter Forever Posts: 213 \|Bracebridge\|Canada\| Gender:	Re: The cries in the night ! Reply #6 - May 21^st, 2008 at 11:58am So Sorry Annette. Keep Daniel Strong
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coach_bill CH.com Hall of Famer Offline "Dont expect me to lay down for this" Posts: 680 x0\|euclid\|USA\|\|0\|0\|OH,Ohio Gender:	Re: The cries in the night ! Reply #7 - May 26^th, 2008 at 7:13pm Thank god he has someone like you in his life. As bad as this stuff is for me, i could'nt even think how a child could deal with it. coach bill
Back to top	boy i cant wait till it's my turn to give him a headache. paybacks a bitch IP Logged

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: The cries in the night ! Reply #8 - May 26^th, 2008 at 7:46pm Just saw this Annette. Sorry to hear you are back in the trenches. But I'm so happy to see you sticking by Daniel. Supporters like you are the rocks we cling to in the storm. Good luck... -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

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Mrs Deej YaBB Administrator Offline My life is what I make it, and it's beautiful! Posts: 1348 Tornado Alley Gender:	Re: The cries in the night ! Reply #9 - May 26^th, 2008 at 7:53pm Lotsa hugs!
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Mosaicwench CH.com Sponsor Offline www.mosaicwench.com Posts: 3507 Near Milwaukee WI, USA Gender:	Re: The cries in the night ! Reply #10 - May 26^th, 2008 at 9:28pm Oh Annette, I'm so very sorry that beast found you again. We're here when you need to vent and just keep fighting the good fight for your man. Big hugsMultimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	“Be regular and orderly in your life, so that you may be violent and original in your work.” ~Flaubert IP Logged

Annette

Ex Member

Re: The cries in the night !
Reply #11 - May 27^th, 2008 at 5:45pm

Thank you so much everyone for your kind support and wishes. It was very uplifting to come here and find so many friends are thinking of us.

This cycle has been easier for both of us to cope with as we had learnt so much from here. Thank you DJ, thank you guys ! Kiss

Daniel is going to try suboccipital injection, like Micheal Wildhaus and see how well it works for him. Fingers crossed !

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George CH.com Moderator CH.com Alumnus Offline Black-Billed Magpie Posts: 8126 Boise, Idaho USA Gender:	Re: The cries in the night ! Reply #12 - May 27^th, 2008 at 6:06pm Please keep us posted on how the suboccipital injection works out, Annette. I'll be interested to see whether Daniel's experience with it will be better, worse, or the same as Michael's. All the best to you folks, George
Back to top	"Whoever loveth me, loveth my hound." (Thomas More, author of "Utopia", and Chancellor of England. 1477-1535) IP Logged

debOUCH CH.com Old Timer Offline ..&^%%$(&^&^%.. Posts: 481 x0\|Holbrook\|USA\|\|0\|0\|NY,New_York Gender:	Re: The cries in the night ! Reply #13 - May 27^th, 2008 at 11:33pm just saw this post annette.................i am sending lots of prayers & hugs to you and yours..........................my daughter is on her way tonite to your part of the world ................................keep being the great supporter u r........................................... deb
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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: The cries in the night ! Reply #14 - May 28^th, 2008 at 8:29am ((&^%%$$$!!!!! Ok, got that out!!!! So sorry Annette.... thought we got that out of the way months ago... Is he taking melatonin at night -- if not get him on it... (Dr. Granny's advice ) Might help those night hits some. Big Texas vibes coming your way from Granny and Caleb... for a really short cycle... Hugs BD
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Kevin_M CH.com Sponsor Offline withered branches grow green again. Posts: 8754 Michigan, USA Gender:	Re: The cries in the night ! Reply #15 - Jun 1^st, 2008 at 9:45am Quote: The cries in the night Quote: This cycle has been easier for both of us to cope with as we had learnt so much from here. Thank you DJ, thank you guys ! Our founding father building Clusterville adjacent to hell allows many hands to reach out.
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