Click this link to read a post I like on the clusterheadaches.com message board...

cyberone

CH.com Junior

Offline

Posts: 35
melbourne, AUST
Gender: male

flying..
May 28^th, 2008 at 2:51am

just a quick question...
I'm planning to fly from japan to Australia in two weeks...
basically i have to make the flight but I'm kinda just starting to get into a new cycle...its not too bad at the moment but in two weeks it could be...

I'm really worried about the flight...I thought i read somewhere that the changes in air pressure when flying can make it worse if you get hit...

anyway...id be very interested in hearing some peoples experiences with CH and flying...

thx

cyb

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

Guiseppi

CH.com Moderator
CH.com Alumnus

Offline

San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: flying..
Reply #1 - May 28^th, 2008 at 3:16am

I fly with my imitrex injectables in my carry on. TSA has pulled it out and looked at it but never given me any trouble with carrying it on the plane. I'm not one that gets triggered by the cabin pressure but I have read people on the board who it is trigger for.

I'm fortunate in that prednisone all but guarantees me pain free time. If I'm going to take a big vacation, cruise, anything where for a week or so I absolutely cannot risk getting hit, I'll go on a short prednisone burst to make me into a CH superman. Might be worth talking to your doc about. Good luck!

Guiseppi

Back to top

"Somebody had to say it" is usually a piss poor excuse to be mean.

IP Logged

seasonalboomer

CH.com Hall of Famer

Offline

CH messes with my isness

Posts: 2517
Charlotte, NC
Gender: male

Re: flying..
Reply #2 - May 28^th, 2008 at 10:58am

Imitrex injects for sure.

I've been hit on a plane with a K-8 plus. Transatlantic flight. The guy across the aisle must have thought I was a freak. Had nothing to fight it and had to gut it out. It was horrible. It was my own fault. Prior to fully accepting that alcohol was a trigger I had a beer in the airport so I might sleep a little quicker. Cheesy

I can laugh about it now. I must have been quite a sight.

Scott

Back to top

Scott

IP Logged

midwestbeth Ex Member	Re: flying.. Reply #3 - May 28^th, 2008 at 11:39am I was in high cycle, new to the beast and had to fly. I got Frova from the Dr's office (free samples...it is crazy expensive) and it did give me pf time while I was on the plane. Beth
Back to top	IP Logged

DennisM1045

CH.com Alumnus

Offline

One wave at a time!

Posts: 3437
Haverhill, Massachusetts, USA
Gender: male

Re: flying..
Reply #4 - May 29^th, 2008 at 3:48pm

I get triggered by cabin pressure changes. Usually I'm in agony within half an hour of landing.

Another alternative to Imitrex is Frovatriptan (Frova). This stuff can give you a 24 hour break. It's a very long acting triptan.

The trick is to take it 3 hours before you expect to land. That's how long this stuff takes to become effective.

Frovatriptan, never leave home without it Wink

-Dennis-

Back to top

Where there is life, there is hope.
Where there is Oxygen, you must use proper caution.
So be safe, don't smoke while using O2. Kill the pain and not yourself.

IP Logged

echo

CH.com Alumnus

Offline

Chronic and still alive
--- I Win!

Posts: 4544
Overland Park, KS
Gender: male

Re: flying..
Reply #5 - May 29^th, 2008 at 4:20pm

DennisM1045 wrote on May 29^th, 2008 at 3:48pm:

I get triggered by cabin pressure changes. Usually I'm in agony within half an hour of landing.

.....
-Dennis-

I'm the same as you in regards to air travel. Mine will usually hit between the landing and the gate. I always thought it was altitude related (over 28K Ft). Maybe it's always been the changes in cabin pressure. hummmmm

Back to top

"If you love something, let it go. If it doesn't come back, hunt it down and kill it". Proud father of a US Marine, Marine turned COP, Navy Corpsman, and KS Army National Guard. Our 4 sons serve.

IP Logged

Racer1_NC CH.com Moderator CH.com Alumnus Offline "Well, let's go see." Posts: 4417 Lewisville, NC Gender:	Re: flying.. Reply #6 - May 29^th, 2008 at 5:40pm I've never been bothered by flying, but I still keep a couple Zomig nasal sprays in my pocket......better safe than sorry. Bill
Back to top	“We see what we believe, not the other way around." — Varga IP Logged

BMoneeTheMoneeMan

CH.com Alumnus

Offline

In remembrance of KingCazman.
RIP

Posts: 2674
Portland, OR

Re: flying..
Reply #7 - May 29^th, 2008 at 7:28pm

I do get hit when flying. Don't know why, its probably because its just about the only time i dont have O2.
I took Gator's idea and use a hard-shell eyeglasses case to store vials and syrenges. It's a good idea to have the prescription with you in-case security has a problem with it.
I used to go to the bathroom to shoot up. Nowadays I just do it right there in my seat.

Back to top

"Fool me once, shame on, shame on you. Fool - can't get fooled again"&&&&&&Think of how stupid the average person is, and then realize half the population is stupider than that.&&&&

IP Logged

sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: flying.. Reply #8 - May 30^th, 2008 at 5:46am I have done my share of travelling during my ch years, but so far, for some reason, I've never been hit during the flight itself. Before yes, after yes, but never during. Sanna
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

Click Here to visit the CH.com Facebook page!

LeLimey Ex Member	Re: flying.. Reply #9 - May 30^th, 2008 at 7:35am I have got hit flying. It's not fun. I'd recommend Frovatriptan. It has a huge half life of up to 26 hours so take it 2 hours before the flight. You can take a second 12 hours later (two in a 24 hour period) which will pretty much guarantee you being hit free. Hope it helps! Helen
Back to top	IP Logged

zanychef CH.com Junior Offline i'm busting with a masx cant really go wrong can i Posts: 97 x1\|worthing\|England\|europe\|172\|244\| Gender:	Re: flying.. Reply #10 - May 30^th, 2008 at 12:59pm only place i didnt get hit on my honeymoon last year was on the plane there and back lol i cant figure it out Ian
Back to top	plenty of time to sleep now me headaches aint too bad:) IP Logged

cyberone CH.com Junior Offline Posts: 35 melbourne, AUST Gender:	Re: flying.. Reply #11 - Jun 1^st, 2008 at 8:38am thanks for the help...ill let yas know when i get back how it went...i fly out in 10 days
Back to top	IP Logged

TxBasslady CH.com Alumnus Offline Bass fishin' is a h00t It's the catchin' that sux Posts: 3230 Fishin' TEXAS Gender:	Re: flying.. Reply #12 - Jun 3^rd, 2008 at 6:58pm Definitely a trigger for me. Frova works for me when I'm gonna fly. Jean
Back to top	How lucky I am... to have known someone who was so hard to say goodbye too.&&&&Take a kid fishin&&&&Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or ;I adopted a Vietnam POW/MIA from El Paso, Texas! Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

Trooper

CH.com Veteran

Offline

I ain't skeert!

Posts: 115
x0|mckinney|USA||0|0|TX,Texas
Gender: female

Re: flying..
Reply #13 - Jun 4^th, 2008 at 8:50pm

Had it happen once and I thought I was going to die!!!! Was the worst ever. I have to agree with carrying a eyeglass hard case with a preloaded syringe. I also carry an empty vial in my case and I have cut out the script that was printed on the box. I do this just in case any questions should ever arise. The script has my name on it as well as the Imitrex dosing instructions. Imitrex is aslo printed on the empty vial. Wink

Back to top

IP Logged

GrandPotentate

CH.com Old Timer

Offline

mmmmmmmmmm

Posts: 254
Michigan City, IN USA
Gender: male

Re: flying..
Reply #14 - Jun 10^th, 2008 at 10:36pm

Some folks say no problem.

For me, I had a really bad trip. This was prior to diagnosis. Some beer was involved. Nicotine levels were also all over the place. I had hits both going transatlatic, and back (and during, and after...)

I avoid flying now while in cycle. Actually, I can't even deal with that crap while riding in a car - I need to get moving.

But, everyone is different. I hope you are!

Back to top

Jon

IP Logged

icculus CH.com Newbie Offline I love YaBB 1G - SP1! Posts: 22 Pittsburgh Gender:	Re: flying.. Reply #15 - Jun 11^th, 2008 at 4:32pm i fly a lot for work, and carry injections and nasal spray. sometimes hit, sometimes not? but i would also recommend to carry your meds everywhere you can. i havent rode that beast w/out meds in years, and dont want to again. ...and dont booze it up...
Back to top	« Last Edit: Jun 11^th, 2008 at 4:33pm by icculus » IP Logged

Sophia

CH.com Veteran

Offline

I Love CH.com!

Posts: 139

Re: flying..
Reply #16 - Jun 14^th, 2008 at 1:56pm

I am going to fly soon too. I am really glad you asked this question as it helped me with some of my questions as well. I still am not allowed anything but O2 because my doc wants to see how bad this is going to get and if it will do anything new. I will chug coffee during the flight. Hugs and hope you have a pain free flight and all.
Sophia

Back to top

IP Logged

Click Here to visit the CH.com Facebook page!

cyberone

CH.com Junior

Offline

Posts: 35
melbourne, AUST
Gender: male

Re: flying..
Reply #17 - Jul 1^st, 2008 at 7:25am

well after almost sh@ting my pants over all this...the flight went really well..lol

i had headaches the day before and one day after i landed...
then they came on strong for about 4 days and now they have dropped of to just the annoying stage..
was nearly at the end or a 2-3 month period anyway...hehe

feels great to be back home...
my sister was shocked the first time she saw me with a full blown headache...ive been away from home for almost 6 years..i always feel sad for all our family and friends...thx guys

got an appointment with the neuro on the tenth...will let yas know how it goees..

thanks for all the replies...you guys and gals really helped me out again.

cyb

Back to top

IP Logged

sandie99 CH.com Hall of Famer Offline Wish it, dream it, do it - inspite the pain! Posts: 11975 Finland Gender:	Re: flying.. Reply #18 - Jul 1^st, 2008 at 8:08am Cyb, I'm glad that the flight went well. Sanna
Back to top	Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

cyberone

CH.com Junior

Offline

Posts: 35
melbourne, AUST
Gender: male

Re: flying..
Reply #19 - Jul 24^th, 2008 at 11:18am

well i can safely say that now i am kicking back and swigging a beer at my sisters house...
whoOOOOOOOOOOOOOOOOO!!!!!!

when i first came back i got hit really bad....after the flight.....but then it panned out as it should have in time.....man 3 months.....fu.k that sh.t...

so now the good news...
i got into one of the best schools in computer animation in australia to do my masters...

and also i have been in touch with a great neuro doc dude...he was so good after all the communication problems that i had in japan....and this guys best friend had clusters for many years....so i get the feeling that he has the understanding that i was craving for the last three years....

so now into my masters.....
got ten....yes ten!!! assignments today....damn....
if ht beast can hold out for the rest of the year so i can finish the reading/research part of my thesis i will be very happy....

love to all.

sweet dreams to all.
cyb

Back to top

IP Logged

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: flying.. Reply #20 - Jul 24^th, 2008 at 3:01pm Thanks for the positive update! Great news! Congrats on all fronts! Now go kick ass on those assignments -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

NovellRed

CH.com Junior

Offline

Posts: 82
x0|San Diego|USA||0|0|CA,California
Gender: male

Re: flying..
Reply #21 - Jul 29^th, 2008 at 12:34am

Flying is a trigger for me. I think it is the poor air quality. I try to sit as far forward in the cabin as I can. I have been told that the air quality is better forward than in the back.
I have a medic alert bracelet that says O2 15 LPM. When I get hit hard I get a flight attendant's attention, point at my bracelet and I am on oxygen in about 1 minute. Their biggest fear is doing something that will get them in trouble. When they read the bracelet they figure they can't get in trouble for following Medic Alert instructions. They give me the O2 right away and ask questions later.
I realize it doesn't work for everyone, but for me O2 is magic.

Back to top

IP Logged

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!