I was chronic the first two years. Remission lasts 1 1/2 to 2 years. with only one lasting 2.5 years in 20 years of CH.

hi

mine abate for almost a year to the day from when they start, but they last for 2-3 months during a cycle.

my mom had them episodically, but they suddenly
stopped a few years back.

My first cycle was in May, 2000. I had 3 more cycles, with breaks of about 16 months between. Last cycle started April, 2004, and hasn't stopped.

edited for clarity

I have had these for 13 years. My shortest remission was 6 months.  6 years ago I started a 2 year remission.  Then I started a 4 year remission followed my my longest sycle ever (5 months).  I am now pain free for 3 months but shadow every day.  I believe the beast may now be in a chronic form being swatted away with a little help from a friend named RC.

Hi!  This is my first post on the board, even though I've been lurking around for the last week.  I've been having CH for 15 years.  The first 7-8 years they were all over the place.  But since then they have been every year in Oct.  Every year the cycle get's longer.  However, there have been two times that I was in remission for 1 1/2 years.  Both times I got a cycle in June/July.  The first one we (my neuro and I) figured out that I had caused them by stressing over promotions.

I have now been in this cycle for 9 days and they are progressively getting worse.  I have them every day, at first it was between 2-3am and now they are between 7-9pm.  Already had one tonight, so hopefully that's the only one for the night.  I'm thankful they don't happen at work, but they still leave me feeling drained.

I'm also thankful I found this board.  I never knew there was so many people out there like me.

Wendy

When I first got them about 30 years ago I was in my early 30's and they came at first in the summer and lasted for several weeks.They would usualy come back every year up until my late fifties.

I'm now 62 and my last one was 3-4 years ago. But the beast is back (not as strong as b4) and I'm in my 3rd week of ch. They seemed to have been triggered by the lingering storms we are having this summer coupled with some red wine I drank.

Was told that they are always on one side of the head, but can sometimes switch to always on the other side.  NOPE!  Broke that rule!  (I never know which side I am going to get hit on.  The fun ones are when I get hit on both sides at the same time!)

Chuck[/size] [/quote]



Holy cow Chuck!
That was always a nightmare scenario I told friends: ''Luckily those headaches never happen at both sides to people,'' thinking at least THAT was a positive thing about CH. Boy in a bubble, was I wrong about that one. You must be one tough son of a gun, Chuck (this is a compliment btw lol).
I'll be honest on this one, Chuck: I'd rather give birth rectally to an adult African elephant and a peckish polar bear at the same time and suffer the haemerroid crater afterwards, than ever being hit all over my head! Must be hell.

Here's hoping for you they don't visit a lot!

Greetings.

Chuckie, I would love to have you for a grandpa!
Love, Sandra

My last cycle was in Dec. of 2005.  Before that it was July of 2003.  Before that was Sept. 2000 (when I found this place).  Before that it's been sketchy, but I was getting them about every 18 mon. (each one lasts about 40 days) since I was 16 yrs old (back in 1990).  They spaced themselves out a bit due to pregnancies so it'll be interesting to see what they do now that I can no longer have babies.  

If they do come back, which I'm counting on, I hope they at least have some predictablility.  I hate surprises!

mel

I'm episodic, and have cycles starting at any time of the year, spring, summer, winter and fall.  No set pattern.

Cycles last anywhere from 8 weeks to 16 weeks, but I have lovely PF time for 18 to 24 months!.  Thank you God.

I am now PF for over 2 years.

So, as Chuck and others have said, there is no set rule as to how often, how long, or how much PF time.

The key to living which this affliction is to learn to live for those PF seconds, minutes, days, months, years.  In other words, when you are PF live life to the fullest.  When you are in cycle, live for those PF moments. 

Nobody says it's easy to live for those PF minutes, but if you focus on and worry about when that next hit will occur, you have no life.  The hit will hit when it hits.  Live your life between them.

Sandy