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New CH.com Forum › Cluster Headache Help and Support › Cluster Headache Specific › New Neurologist plan of attack

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New Neurologist plan of attack (Read 1498 times)

Mattcentralnewyork

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Keep fighting. You're
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Posts: 15
Syracuse, NY
Gender: male

New Neurologist plan of attack
Jul 1^st, 2008 at 7:12pm

All,

Since you seem to be the only people besides my family who understands what I'm going through, I wanted to tell you what a new Neuro said regarding treatment. Please reply with any comments:

Melatonin 9-12 mg's at night
Depakote er 500 mg..2 at night
Frova two at night.

Also, he advised me that I can't do workouts with heavy lifting.
Any comments on this plan would be appreciated.

Matt

« Last Edit: Jul 1^st, 2008 at 8:38pm by Mattcentralnewyork »

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mezza

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I love YaBB 1G - SP1!

Posts: 415
north carolina
Gender: female

Re: New Eurologist plan of attack
Reply #1 - Jul 1^st, 2008 at 8:24pm

I can't remember the dosages of Frova i took in my last cycle - but it was a sample pack and only took 1pill per day mid am and pf time would last till next mid am. Got me a day of no HA each pill. My neuro said I could take up to 2 frova within a 24 hr period but i never needed more than 1 per day. He gave me an 8 day sample pack when i started verapamil - that combo gave me no real ha above a 2 or 3 if at all , even when frova ran out and just taking Verap until my cycle ended.

Never took depakote but have seen many other posters taking it and reporting success. Others have reported melatonin working great for them to avoid the night time hits- i tried it a couple of nights in high cycle and didn't give it too much of chance before i stopped trying.

Sounds like you have a pretty informed neuro!

kelly

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Mattcentralnewyork CH.com Newbie Offline Keep fighting. You're not alone! Posts: 15 Syracuse, NY Gender:	Re: New Eurologist plan of attack Reply #2 - Jul 1^st, 2008 at 8:36pm Thanks for your reply. Much appreciated! Matt
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BarbaraD CH.com Alumnus Offline Hugs to ya Posts: 8333 Douglasville, TX Gender:	Re: New Neurologist plan of attack Reply #3 - Jul 2^nd, 2008 at 6:08am If it were me I'd INSIST on O2. Meds are fine, but the O2 is a great standby and most of us here swear by it. Hugs BD
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thebbz Ex Member	Re: New Neurologist plan of attack Reply #4 - Jul 2^nd, 2008 at 12:45pm Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Get the 02 Never MIX Triptans. If your taking Frova and have any other triptans. Wait 24 hours before taking any triptans other than Frova. all the best thebb
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-johnny- CH.com Sponsor Offline theres no smoking on the dock Posts: 1642 fayette county ohio Gender:	Re: New Neurologist plan of attack Reply #5 - Jul 5^th, 2008 at 1:42am be sure to give anything you try a few days to take effect. i also recommend keeping a record of what you've tried and what works. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	« Last Edit: Jul 5^th, 2008 at 1:47am by -johnny- » Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or IP Logged

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