They just don't get what hubby goes through. I've tried sending them the letter that's on here somewhere explaining about CH and even sending them an email with a link to here. It's like talking to a brick wall. They think hubby is just being a big baby. I can't even call them to vent when I'm upset about it all because it just dosn't matter to them. I need support too sometimes just someone to listen about my worries and my lack of sleep amd feeling like a zombie. No help from there at all. Their solution is for me to leave him until he grows up! 

Ever since he has been going through this cycle, back in March it stared, his own father and sister don't even come around! His mom lives with us and is older. She becomes a nervous wreck from seeing him in pain. I wish these people would just come around for just 1 of his hits and tell me he's making it up!!!! As far as I'm concerned I'm done with all of them. Why should I listen to all of their woe is me's when they can't be there for us when we need them?

Ahhhhh that feel better! Atleast you all are here for us!  Thank You!!!!

There is no explaining ignorance and bad attitudes....no excuse for it either.  Shame on them!  You've done your best to educate them....that's about all you can do, Sweetie.

You're a good supporter and we'll all help and support you all...we're here 24/7.

Hang in there....better days are ahead.

Big Hugs,
Jackie

Hey Betty,

Unfortunately you can't make people understand what they don't want to see.  That means they are of no support to you.  Don't waste that precious energy on a problem you can't solve.

Turn here for what you need instead.  Like others have said, there is always an open ear and a soft shoulder available here.

-Dennis-

They suck, you rule.
Ignorant people are just that ignorant. If not they would listen and have the justified empathy toward their loved one. You wont convince them, they're ignorant. Wait they will come in later and want you to help them. Then you can show them how it's done when family actually cares.
all the best 
thebb

Try this: print the letter (make multiple copies), hand it to each family member as the opportunity presents itself, and tell them something like, "I just wanted you to read for yourself what hubby is going through, and I wanted you to understand that this rare condition is documented as one of the most painful experiences known to man."

Show mummy the Kip-scale and ask her to rate the pain of child-birth.  

Discuss her Kip-score with the ladies here who have both children and CH.

Mummy may be surprised to learn that her little boy really is hurting and not just bunging it on.