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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › I am not alone!!!!!!!

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I am not alone!!!!!!! (Read 1052 times)

Tuckerman

CH.com Newbie

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I Love CH.com!

Posts: 2
Hotlanta, GA
Gender: male

I am not alone!!!!!!!
Jul 23^rd, 2008 at 2:05pm

Hello all fellow clusterheads!

35yo male, atlanta, ga and been dealing with clusters since about 1998, and finally diagnosed in 2005 with Clusters. Like most of you, suffered with the wrong diagnoseses (can't spell at all) - sinusitus, allergies, etc.

Finally, Dr. Kelman in Atlanta has been a huge help! I am an imitrex junkie, as well as prednisone, verapimil. Just finished my longestest cluster and most intense. Angry

Just wanted to say hello to all, and glad I found this place!

Thanks,
Todd

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maalstroom

CH.com Old Timer

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''Dance to my tune''....
the hell I will!

Posts: 491
the Netherlands
Gender: male

Re: I am not alone!!!!!!!
Reply #1 - Jul 23^rd, 2008 at 2:11pm

Be very very welcome, Tuckerman. As the saying 'round here goes: glad you found us, but sorry ya had to.
I guess most of us qualify as Imitrex junkies while in high cycle. My last cycle was the first time for me with oxygen and Verapamil, before that I always relied on both the injectables and the tablets (the trexies that is).
In the nineties I once tried a preventative which is called sandomigran here, but probably known to Americans as Pitozifeen. Didn't help unfortunately.

Anyway, welcome and be a part of this eccentric little family.

...AND AS A FINISHING TOUCH, GOD CREATED THE DUTCH.

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kevmd

CH.com Hall of Famer

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Who needs a hypothalamus
anyway?

Posts: 524
x0|philadelphia|USA||0|0|PA,Pennsylvania
Gender: male

Re: I am not alone!!!!!!!
Reply #2 - Jul 23^rd, 2008 at 10:22pm

Glad the hell has ended for you. Stick around here and prepare yourself better for your next cycle. Watch the imitrex brother. It may have contributed to your worst cycle. It cause rebounds galore. Once I got on o2, I rarely used imitrex and it saved me a ton of money as well. Stay with us and share your experiences to others, you may be able to help someone yourself. But please ask questions if you have them. THere are a few people here who literally know just about everything about CH.

PHILADELPHIA PHILLIES 2008 WORLD CHAMPS

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mezza CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 415 north carolina Gender:	Re: I am not alone!!!!!!! Reply #3 - Jul 24^th, 2008 at 12:12am Welcome to the site! Read all that you can - you'll get great info and support here- from one fellow 'junkie' to another wishing you pf times ahead! kelly
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