Hi Guys

I am so down atm this crap is really f**cking me off i have always had my hits randomly they just come when they come but usually only twice one in the day and one in the night now im geting hit in the day and about 6 times a night,

i drive for a living and this is getting extremly hard im so worried about my job sometimes i just cant drive this cycle is so hard

anyhow just needed a rant sorry guys PF wishes to you all

That really sucks Brian. I'm sorry you're going through such a hard time right now. As Chuck mentioned, this will pass. Live between the hits. I know it's not easy. Especially when you know that another one will come. But you are stronger than the beast and you are not alone.

You're in my thoughts,
Kris

Hi Chuck thanks for the reply mate no not tryde it im worried about meds as i have to drive the next day and when im not driving im working on electrical equipment as im a mobile electrician so i do have to be cautious

Im trying to stay strong just very sleepy and afraid to sleep the high kip hits are not the problem ive had to deal with that for a few years now it is the amount of hits im getting aday that are doing me in i had the game all figured then the beast changed the rules damn he turns big men like me in to a sobbing child wtf

anyhow thanks chuck it helps just to know others understand im just sorry there are others that have to deal with this shit PF wishes to you and everyone else

Regards
Brian

Brian, rant away!  Do whatever you need to do to keep sane.  As you already know, I'm a supporter, not a sufferer.  But when Gary's hits started moving from from 1 - 2 a day to 2 - 3 a day - and they just kept going - up to 6 - 10 a day, it really was like living in a nightmare, so I'm familiar with the anger, the anxiety, and the frustration.

The melatonin does leave some people groggy.  When Gary first started using it, it did help him initially get a few hours sleep and did not leave him groggy.  It's an OTC med, not a scrip, and it's nothing like prescription sleep aids.  For many it helps stop the night time hits.  I say it's worth giving it a try - especially since your job does depend on your getting some shut eye.

You may also want to consider trying 5-HTP instead (though you can take them both at the same time).  It works on a slightly different receptor, and though not necessarily effective where the melatonin might be in stopping the night hits, it supposedly doesn't have the "groggies" that the melatonin does for some. 

Hang in there my friend - wishing you PFDAN.

Laurie

We're all there with you Brian.  Just remember that when you're running around the house holding your head.  You not alone in this anymore.

+1 on the Melatonin idea.  A stiff cup of coffee in the morning and the cobwebs are gone in 15 minutes.  Give it a shot tonight if you're not driving tomorrow.

Go easy at first with 3mg and ratchet that up every other night by 3mg till you find a level that works.  12-15 is the max you should need.  9mg works for me.

-Dennis-

There's a few of us in chat if you're interested: Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or

-Dennis-

I will look in to it tomorrow thanks brew

thanks tuck you made me smile after just geting hit at 6am and going asleep at 4 am its now 7 am and im so sleepy lets just hope for no rebound hits now fingers crossed

?? though it stopped the night hits but did it make the day change and if so good or bad??

you are all wonderful thanks

hey Brian, No , the melatonin didnt affect the day time hits,,, well,, DIRECTLY, anyway. What I mean is, since I was actually getting a good nights sleep,(a rare thing indeed for us cluster heads) the day time hits seemed to be a bit easier to cope with. Hell man, just knowing that come night time, I was going to get some relief made life easier,,, know what i mean????  Good luck, and let us know how the melatonin works if you try it.  Tuck

Hi guys had one hell of a night shadows all day  really really fucked off but the good news is, ordered my melatonin from biovea.com this morning thx  wanna_swap_brains

regarding the 02 at work well works insurance company have refused to let me have the 02 in the van with out re assessing the policy and work dont want to pay any more for the insurance so its a no go but i do take the imigran evey day even when not in cycle.

Thanks guys your all great

LOL chuck shes gonna get ya

OOPS this thread has now became to much danger for me to stay i hope you live long enough for the next thread chuck lol

Brian, just checking in to see if the Melatonin arrived? 

Laurie