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FramCire

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Life like a froward child
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Double nerve hits.... what in the world
Aug 11^th, 2008 at 9:18pm

I thought I was out of cycle. Recently I started getting shadows and lighter hits. When i am in cycle, they are like clockwork and I get 6 a day (give or take).

Anyway, after being in cycle for 16+ months, I figured I was chronic and started to try and take less drugs per hit.

Anyway, I was out to dinner tonight when I started to feel a shadow and then nerve pain in my jaw ON THE OTHER SIDE. Then I started to get a shadow in my normal side and nerve pain as well. I am very confused.

Anyway, the shadow is still here and the nerve pain is in both sides.

Anyone seen anything like this, or is it time to be committed to a mental institution (for this reason, not because I generally need it anyway).

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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do

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FramCire CH.com Alumnus Offline Life like a froward child must be humored a little Posts: 1710 Bolivar, MO USA Gender:	Re: Double nerve hits.... what in the world Reply #1 - Aug 12^th, 2008 at 2:39pm Well I guess noone has any advice or thoughts. Thanks anyway.
Back to top	You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do IP Logged

Charlotte CH.com Alumnus Offline Posts: 2385 Patterson,California Gender:	Re: Double nerve hits.... what in the world Reply #2 - Aug 12^th, 2008 at 3:08pm Sorry, didn't see this yesterday. Yes, I get hits on both sides - you aren't crazy. I've read that a number of others do also. Charlotte
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Agostino Leyre CH.com Sponsor Offline "Hit like a phillips head into my brain." Posts: 3803 Madison WI USA Gender:	Re: Double nerve hits.... what in the world Reply #3 - Aug 12^th, 2008 at 4:17pm Sometimes after a cycle ( usually a couple of weeks) I'll have quite a bit of pain on the "wrong" side.
Back to top	Triptans cause increased number of hits and increased intensity. Learn it, believe it, live it. I use triptans as the absolute LAST RESORT when treating my CH.&& IP Logged

FramCire

CH.com Alumnus

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Life like a froward child
must be humored a little

Posts: 1710
Bolivar, MO USA
Gender: male

Re: Double nerve hits.... what in the world
Reply #4 - Aug 12^th, 2008 at 4:20pm

Charlotte wrote on Aug 12^th, 2008 at 3:08pm:

Sorry, didn't see this yesterday.

Yes, I get hits on both sides - you aren't crazy. I've read that a number of others do also.

Charlotte

I hope I wasnt rude. thanks for the reply. I was feeling out of my mind and was hoping for some sanity last night. A also had a kidney stone so I was just looking for some advice to ease my min d since my body was not happy.

Thanks.

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You've overstayed your welcome since the day we met but it doesn't seem to matter to you. No medications are your master, nothing makes you fret, it's a helpless feeling having nothing I can do

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HappyElaine CH.com Alumnus Offline I love YaBB 1G - SP1! Posts: 603 Flovilla,GA Gender:	Re: Double nerve hits.... what in the world Reply #5 - Aug 12^th, 2008 at 4:21pm When it comes to the jaw both sides hurt for me at times. It just depends. My clusters have a mind of their own, just when I think I have it all figured out, they let me know I don't !
Back to top	Fear less, hope more;&&Whine less, breathe more;&&Talk less, say more;&&Hate less, love more;&&And all good things are yours.&&&&Member of ch.com and OUCH since 1999 IP Logged

thebbz Ex Member	Re: Double nerve hits.... what in the world Reply #6 - Aug 13^th, 2008 at 1:12pm Only time that happened to me was when a migraine hit as well or the doc put me on Keppra or Topomax... Hope your doing better. all the best thebb Sorry for the late response. I'm a tard
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LeeS

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Re: Double nerve hits.... what in the world
Reply #7 - Aug 14^th, 2008 at 5:41am

I have experienced side-switching and bilateral attacks too. Not nice Shocked

Apparently up to 14% of sufferers may experience side switching during a cluster bout, whereas 18% may have side shifts from one bout to the next*.

The tendency to develop CH on the opposite side is 200 times more likely than for an individual to develop the disease at all**. Interestingly, not only does this indicate an increased vulnerability amongst existing sufferers but also suggests that a structure with anatomic connections over the midline is involved.

All the best with it

-Lee

* Sjaastad O, et al; Bilaterality of cluster headache: an hypothesis 1985.
** Bahra A, et al; Cluster Headache: a prospective clinical study with diagnostic implications 2002.

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Karl Ex Member	Re: Double nerve hits.... what in the world Reply #8 - Aug 14^th, 2008 at 6:02am I am with thebzz migraine at same time .
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ReeseC

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Re: Double nerve hits.... what in the world
Reply #9 - Aug 14^th, 2008 at 2:20pm

LeeS wrote on Aug 14^th, 2008 at 5:41am:

The tendency to develop CH on the opposite side is 200 times more likely than for an individual to develop the disease at all**. Interestingly, not only does this indicate an increased vulnerability amongst existing sufferers but also suggests that a structure with anatomic connections over the midline is involved.

So interesting... the above almost suggests that each side is its own disease, as if bilateral sufferers have CH x 2, that you're not switching sides, but rather, you developed it on both sides independently.

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Charlotte

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Re: Double nerve hits.... what in the world
Reply #10 - Aug 15^th, 2008 at 2:36am

ReeseC wrote on Aug 14^th, 2008 at 2:20pm:

LeeS wrote on Aug 14^th, 2008 at 5:41am:

The tendency to develop CH on the opposite side is 200 times more likely than for an individual to develop the disease at all**. Interestingly, not only does this indicate an increased vulnerability amongst existing sufferers but also suggests that a structure with anatomic connections over the midline is involved.

So interesting... the above almost suggests that each side is its own disease, as if bilateral sufferers have CH x 2, that you're not switching sides, but rather, you developed it on both sides independently.

In that case, I wuld be chronic on the right and episodic on the left.

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