You mentioned somewhere recently that gary is addicted to narcotics  and are attempting to detox.  While detoxing you were adding the supplements to 'get something going'


If he is detoxing, couldn't it be coming 'down' off the meds that could be causing the strange temp fluctuations?  Did the doctor say anything or make any connections for you regarding the supplements and narcotics ?  Did he allude to any particular 'cause' of the temp changes?  If my doc just said go to ER if temp goes over 105 without offering some potential reasons  or hypotheses   I am not sure my doc would continue to be my 'trusted friend'

kelly

George, I could have sworn that thread was on the new message board!  I must be starting to have "senior moments"  

OK.  For those of you who remember, Gary is chronic since March 2006.  He gets 6 - 10 attacks a day, range k5 - k8 (usually), they usually last 40 minutes to 3 hours.  Some K9s and 10s in there.  His baseline is a K2/K3.  He's tried all the standard drugs, but not the lithium/verapamil combo.  I think the last neuro we saw didn't take him up high enough on the verap to begin with.  The pred taper provided no pain relief at all.

He tried the DHE drip last June.  It made him VIOLENTLY ill.  He's had problems with IBS and a "bad stomach," but he lost about 35 pounds in six weeks.  He was vomiting 20 - 40 times a day.  It was so bad his teeth started eroding.

He used to use caffeine and O2, but both stopped working.  He tried Kudzu - that seemed to help diminish the number of attacks and intensity of attacks, but it was really hard on his digestive system (as was the caffeine).  

In the fall of 2006, he tried busting with shrooms and RC seeds.  It seemed to work at first.  He actually had a pain free week.  He continued to try busting through February 2007, but it helped less and less after the first trip.

Out of desperation, he turned to narcotics in August 2007.  They bought him some much needed relief.

But (obviously) they're not really working any more and now he's just addicted, and he wants off.  But the rebound attacks are so bad, we decided to get something rolling before he detoxes.

Now that everything's arrived, here's the plan (and it includes stuff to deal with his gastro/IBS problem):

Align Probiotic by P&G

300mg Rhodiola 3x per day - morning, afternoon, evening.  I got TerraCeutics Rhodiola - it is chocolate brown.

TerraCeutics' "MegaMune" - three capsules all at night.  This amount contains:

500mg graviola extract
300mg Humic & Fulvic acid
300mg Rhodiola Rosea
250mg Agaricus extract
250mg Corolus Versicolor extract
100mg ginseng extract (80% ginenosides)
100mg Beta Glucan

Ginger Root - 1.1mg in two capsules, one taken with lunch, one taken with dinner

Solgar's Magnesium-Calcium 2:1, 1 tablets with each meal (3 tablets has 300mg calcium and 600mg magnesium)

A "stress forumula" multi-vitamin, heavy in the Bs, required 2x per day, so once at breakfast and the other with the SleepMedic.

TerraCeutics' SleepMedic, 2 capsules 1 hour before bedtime, which has:

250mg magnesium
150mg Gaba
100mg valerian root
100mg inositol
25mg Passion Flower
25mg Hops
100mg Lemon Balm
100mg L-Theanine
50mg B6
25mg 5HTP
1mg Melatonin

And 2 5mg Melatonin tablets.

We're also both taking 2 oz. of Acai juice with Blueberry and Raspberry in the morning and afternoon.

He's agreed to give it 7 months.

*****************************************

So his total Rhodiola Rosea will be 1.2g
His total Melatonin will be 11mg
His total Magnesium will be 850mg

We've run this by our GP, who's OK with it all.  However, he did refer us to a nutritionist that is an MD, and we're seeing him next week.  

Gary started this regimen 2 days ago.

He's also going to see a therapist for stress management - and hopefully get his PTSD treated as well.

Laurie

Quote:


Holy Shit !!!!!!!!   Add this to the list of the other stuff he swallowing...I'm surprised he's not dead.  And a temp. of 107  should have had him in convulsions.  

Good grief...Can you get him to another Dr. ....like FAST?

Potter wrote on Aug 6^th, 2008 at 10:13am:

Not to hammer on a fine point, but I think it's 8mg of dilaudid 4x a day for a year.

...that amount would keep ya so fucked up ya couldn't find yer ass with both hands.

Quote:


Good thing you're not on it anymore.

I don't know where you got the impression it's two years...

Some of you are familiar with Gary's background if you've read my posts dating back to August of 2006.

Linda_Howell wrote on Aug 6^th, 2008 at 7:49pm:

Me too, Linda.

Denial ain't just a river in Egypt.