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New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › I need to get this off my chest

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I need to get this off my chest (Read 1821 times)

Batesy

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I need to get this off my chest
Oct 7^th, 2008 at 4:44pm

Hi everyone, thank God for this site!
I'm going through a bad spell at the moment 13 attacks in the last four days. I know that's not so bad as a lot of sufferers but it's bad enough.
I live in England so it's about 9:30 in the evening and i am dreading going to bed as my attacks come mainly at night waking me up. I'm also exhausted as i've had very little sleep for the last couple of nights.
I had an important business meeting this morning which although really tired i attended. However, my boss wnated me to entertain our client this evening but i had to decline i just wasn't feeling up to it. Thing is, i couldn't say why. How do you tell someone who has no understanding that you can't work due to headaches? They just expect you to take a pill and it will go away. Or go and lie down and try and sleep it off ; Hah! So, i had to tell him i thought i was going down with flue.
I'm sorry i've gone on for so long as this is my first message i just wanted to get it off my chest to people that understand. Thanks for reading this Undecided

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Just Plain Carl

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IT IS WHAT IT IS

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Royal Oak, Michigan
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Re: I need to get this off my chest
Reply #1 - Oct 7^th, 2008 at 5:34pm

Hi Batesy,
Sorry you had to seek out this site, but you have found a good place for support and info.
Check out this link Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

It's a letter that explains to people what you are going through.
If the link doesn't work, click on the OUCH website to the left.
I'm defininately not a computer whiz.
Good Luck To Ya
Just Plain Carl

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barry_sword

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Mountain Biking Keeps
Me Sane

Posts: 3947
Bracebridge, Canada
Gender: male

Re: I need to get this off my chest
Reply #2 - Oct 7^th, 2008 at 5:45pm

Hi Batesy and welcome. Sorry you had to seek us out but you are with a whole bunch of us now who understand your pain and not wanting to go out feeling drained and a chance of a hit in public.

Let us know about yourself, and what meds you are trying or have tried. o2 is the main abortive for most of us here.
100% o2 at at least 15 lpm with a non-rebreather mask at the very first sign of an on-coming hit. Read to your left and print some stuff off and show your doc.

You are not alone anymore with this pain.
Barry

QUIT SMOKING SEPT. 03 2005
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

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Batesy

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Re: I need to get this off my chest
Reply #3 - Oct 7^th, 2008 at 5:48pm

Carl, thanks for that. Got it from the link nice and simple 'cos i'm no whizz either.
Great letter.
Apart from my wife and son no one else has seen me when i'm suffering so this is really helpfull.
This site is amazing, i only discovered it today, wish i knew about it 2 yrs ago when these buggers started.
I was fortunate, i was referred to a nuerologist last year who diagnosed CH.
So far all the drugs i've been prescribed havn't worked but this site is so full of ideas/remedys and suggestions i feel a lot more upbeat than i did a few hours ago. Sharing it is so theraputic, i've not had this opportunity before, thats probably why i'm rambling on a bit.
Thanks again

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on my knees Ex Member	Re: I need to get this off my chest Reply #4 - Oct 7^th, 2008 at 6:23pm i also grab an energy drink that has caffiene and taurine. chugged at the first hint of a hit. this has helped abort some hits during the social issue.
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Batch

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Control The Beast With
O2 & D3 You Must

Posts: 3706
Bremerton, WA
Gender: male

Re: I need to get this off my chest
Reply #5 - Oct 7^th, 2008 at 6:52pm

Hey Batesy,

Welcome to the nut hut... You need to get hold of Helen Williams, a.k.a. "LeLimey" and you need to get on oxygen therapy ASAP. Helen know the ropes on how to do it... Oxygen therapy will not stop the attacks but it will give you a hammer to beat the beast rapidly into submission AND, it will give you a sense of confidence in controlling the beast instead of the other way around.

Take care, Cheers, and keep a stiff upper lip.

V/R, Batch

You love lots of things if you live around them. But there isn't any woman and there isn't any horse, that’s as lovely as a great airplane. If it's a beautiful fighter, your heart will be ever there

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Bob Johnson

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free." -Epictetus

Posts: 5965
Kennett Square, PA (USA)
Gender: male

Re: I need to get this off my chest
Reply #6 - Oct 9^th, 2008 at 8:04am

The OUCH site in GB is a solid group: strongly suggest you make contact so that they can help you with medications, etc. (since the information for the U.S. may not apply.)

Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to

IF you can obtain it, two meds which help block night time attacks: melatonin in the 6-9mg range; ergotamine (sublingual form), 1 tab at bedtime (this an old time med which, while hard to find, is frequently an effective med.)

« Last Edit: Oct 10^th, 2008 at 1:49pm by Bob Johnson »

Bob Johnson

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Callico CH.com Hall of Famer Offline Author of "Stranded at Romson's Lodge Posts: 4916 Aurora IL Gender:	Re: I need to get this off my chest Reply #7 - Oct 12^th, 2008 at 8:32pm At the top of this "Getting to Know YOu" page is a thread called "A letter to collegues and friends" or something like that. Print it out and pass it to whomever you feel could benefit from it. It was written by a fellow Brit, Simon, and is very helpful. Jerry
Back to top	"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown) IP Logged

Linda_Howell CH.com Moderator CH.com Alumnus Offline Do not feed the Moderators Posts: 11927 Santa Maria, Ca. Gender:	Re: I need to get this off my chest Reply #8 - Oct 12^th, 2008 at 8:50pm Here it is Batesy. Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or
Back to top	Hurt people.....hurt people. Think about it. IP Logged

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