Click this link to read a post I like on the clusterheadaches.com message board...

May 9^th, 2024 at 6:51pm

	Welcome, Guest. Please Login or Register
	Search box updated Dec 3, 2011... Search ch.com with Google!

New CH.com Forum › Cluster Headache Help and Support › Getting to Know Ya › Hello everyone,I'm one of the new bruised noodles.

(Moderators: Mrs Deej, DJ)

‹ Previous Topic | Next Topic ›

Pages: 1

Hello everyone,I'm one of the new bruised noodles. (Read 1638 times)

stick67

Ex Member

Hello everyone,I'm one of the new bruised noodles.
Oct 23^rd, 2008 at 5:23pm

hey, my name is allen i'm in louisiana. iv,e been having these things since 1983. never thought to look online for support group ,wow kind on strange. Ive tried all sorts of things for these stupid headaches the thing i take most is BC powder,around 4 a day for the last 25 years.Ive done the nose operations pills ect.. but for some reason was never told about the O2 thing until 2 weeks ago. going to the Doc in the morning , is there anything i need to tell him,to get the oxygen?

IP Logged

Click Here to visit the CH.com Facebook page!

kevmd CH.com Hall of Famer Offline Who needs a hypothalamus anyway? Posts: 524 x0\|philadelphia\|USA\|\|0\|0\|PA,Pennsylvania Gender:	Re: Hello everyone,I'm one of the new bruised noodles. Reply #1 - Oct 23^rd, 2008 at 5:48pm You need a non rebreather mask and must get at least 15 lpm flow rate. Never heard of BC powder. Ask about predisone, Verapamil, and lithium for preventatives. Good luck and let us know how you make out
Back to top	PHILADELPHIA PHILLIES 2008 WORLD CHAMPS IP Logged

thebbz Ex Member	Re: Hello everyone,I'm one of the new bruised noodles. Reply #2 - Oct 23^rd, 2008 at 7:11pm Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to or welcome thebb
Back to top	IP Logged

Linda_Howell

CH.com Moderator
CH.com Alumnus

Offline

Do not feed the Moderators

Posts: 11927
Santa Maria, Ca.
Gender: female

Re: Hello everyone,I'm one of the new bruised noodles.
Reply #3 - Oct 23^rd, 2008 at 7:47pm

Kev,

BC powder is nothing more than a glorified aspirin. Won't touch a CH BUT it will definetly eat up your insides.

B. C. Powder Information

Side Effects Questions (1) News (431)
What's inside B. C. Powder
B. C. Powder Active Ingredients: aspirin, caffeine, salicylamide, details.
--------------------------------------------------------------------------------

B. C. Powder Dosages & Strengths
Strength Format Route Strength Class
B. C. Powder 650 mg-33.3 mg-195 mg powder for reconstitution oral 1.0 each OTC
B. C. Powder 650 mg-33.3 mg-195 mg powder for reconstitution oral 1.0 each OTC
B. C. Powder 650 mg-33.3 mg-195 mg powder for reconstitution oral 1.0 each OTC

--------------------------------------------------------------------------------

B. C. Powder in the News
Best of skiing in Canada - Canoe.ca
Forget BC and all those bloody trees. From the comfy cat at Blomidon Cat Skiing near Marble Mountain, Newfoundland, you can ski BC-worthy powder and survey ...
Sat Mar 08 00:18:43 -0500 2008

Monday Minute - London Free Press
Meanwhile, in a large bowl, whisk cocoa powder with cornstarch; whisk in remaining milk and eggs until smooth. 2. In thin steady stream, gradually whisk ...
Mon Mar 10 05:02:10 -0400 2008

FOURTH WINNER CHOSEN: Vail Photo Contest - Powder Magazine
He won a two 1-day tickets to Vail, and a one-year subscription to Powder Magazine in addition to an extremely coveted Powder Magazine t-shirt. ...
Mon Mar 10 19:54:11 -0400 2008

Read all news for B. C. Powder

B. C. Powder Chemical Information

aspirin

caffeine - A naturally occurring xanthine derivative with central nervous system (CNS) stimulating activity. Due to the structural similarity to adenosine, caffeine binds to and blocks adenosine receptors, thereby preventing the inhibitory effects of adenosine on nerve cells. This leads to stimulation of medullary, vagal, vasomotor, and respiratory centers in the brain; and the release of epinephrine. Physiologic responses can include bradycardia, tachycardia, vasoconstriction, CNS excitablility, increased respiratory rate, increased blood pressure, increased blood flow to muscles, decreased blood flow to skin and inner organs, and release of glucose by the liver. Due to the interaction between adenosine A2A and dopamine D2 receptors, caffeine can also indirectly increase the levels of dopamine in the brain.

salicylamide

Allen, please ask your Dr. for a prescription for 02, and stop taking the BC. Your stomach will thank you.

a 15 lpm regulator, with a non-rebreather mask and as many e-tanks as you need per week during your cycle.

Hurt people.....hurt people. Think about it.

IP Logged

DennisM1045 CH.com Alumnus Offline One wave at a time! Posts: 3437 Haverhill, Massachusetts, USA Gender:	Re: Hello everyone,I'm one of the new bruised noodles. Reply #4 - Oct 23^rd, 2008 at 8:29pm Hi Allen! Welcome to the nut house. Glad you're finding better weapons already (O2!). Good luck with the Dr and let us know how you make out. -Dennis-
Back to top	Where there is life, there is hope. Where there is Oxygen, you must use proper caution. So be safe, don't smoke while using O2. Kill the pain and not yourself. IP Logged

Callico

CH.com Hall of Famer

Offline

Author of "Stranded at
Romson's Lodge

Posts: 4916
Aurora IL
Gender: male

Re: Hello everyone,I'm one of the new bruised noodles.
Reply #5 - Oct 24^th, 2008 at 12:57am

Hi Allen,

Welcome aboard!

All BC Powder is is aspirin in a powder form that "might" act a little quicker than aspirin in pill form. It won't touch CH, and wouldn't get into your system in time for most of us if it did. All it does is to give you the feeling that you have "done" something for the pain.

There is a lot of great info here about O2. Print out what is pertinent to your discussion with your Dr and take it with you. Insist on the proper set up or it will do NO good, and you will think you are one that it doesn't work for. Key factors: 1) 15lpm Minimum, 2) Non-rebreather mask, to not allow any outside air in. 3) enough in the prescription to allow at least 30 mins supply times the number of hits you experience within the time period covered.

I have had good success with Kudzu as an preventative. It is herbal, so there is no need for a prescription, and it doesn't have the side effects some of the medications have. It doesn't work for everyone, NOTHING does, but is relatively inexpensive, but sometimes hard to find. See the Meds and Treatments page for more info on it.

Jerry

"Political correctness is a doctrine, fostered by a delusional, illogical minority, and rabidly promoted by an unscrupulous mainstream media, which holds forth the proposition that it is entirely possible to pick up a piece of dung by the clean end." Texas A&M Student (unknown)

IP Logged

Guiseppi

CH.com Moderator
CH.com Alumnus

Offline

San Diego to Florida 05-16-2011

Posts: 12063
SAN DIEGO, CALIFORNIA USA
Gender: male

Re: Hello everyone,I'm one of the new bruised noodles.
Reply #6 - Oct 24^th, 2008 at 1:18am

Welcome to the board, I wandered for years too before stumbling onto this nut house! Many find the best results from a 2 pronged approach, a good preventative regimen and a good abortive regimen.

Preventatives: This is something you take daily, while on cycle, the goal being to reduce the intensity and the frequency of your attacks. I use lithium, 1200 mg a day, blocks about 80% of my attacks. Many good prevents to read about on the meds page and discuss with your doc. Verapamil and topomax are 2 other prevents I've seen people have success with. WARNING! What works for one person doesn't necessarily work for another!! Many find they end up with a combo of prevents before they see results.

Abortives: A headache starts now what? Many of us have success with oxygen, certainly worth a shot. I occasionally use the imitrex injectables but the lithium and oxygen have been working so well that's a rarity.
Slamming the energy drinks, those containing caffeine and taurine, works to abort an attack for many.

We have a rare condition, sucks to be us! Wink

What that really means is it's our job to learn all we can about CH, then partner up with an open minded doc and plan our treatment. This is NOT a conditon where you sit down and tell the doc to fix you, most know too little about it! Good luck and welcome home.

Guiseppi

"Somebody had to say it" is usually a piss poor excuse to be mean.

IP Logged

Just Plain Carl

CH.com Old Timer

Offline

IT IS WHAT IT IS

Posts: 449
Royal Oak, Michigan
Gender: male

Re: Hello everyone,I'm one of the new bruised noodles.
Reply #7 - Oct 24^th, 2008 at 2:59am

welcome to the group Alan.

I use prednisone and verapamil as prevents. This time around, I don't use any abortives as my attacks are only lasting 15min to 1/2hr and are only k7-k8 or less. (I'm thankful for that)

Hope you find something that works for you soon. Lots of info here to go over with your dr.

good luck

JPC

« Last Edit: Oct 24^th, 2008 at 3:00am by Just Plain Carl »

IP Logged

Pages: 1

‹ Previous Topic | Next Topic ›

« Home

‹ Board

Top of this page

©1998-2013 Web Vision Enterprises LLC All rights reserved. All information on this site is protected by international
copyright laws. You may not re-distribute any information from this site without written permission from
Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.
You may view our privacy policy and financial disclosure statement here

DISCLAIMER: All information contained on this web site is for informational purposes only. It is in no way intended to be used as a replacement for professional medical treatment. clusterheadaches.com makes no claims as to the scientific/clinical validity of the information on this site OR to that of the information linked to from this site. All information taken from the internet should be discussed with a medical professional!