I'm with you Michael, The daily interplay, and seeing the reactions pro and con is fascinating.
Also, doing site research is interesting, btw, nice job you and the others did on the O2 CH Abortive paper, people should just print that one off and give it to any doctor who balks at giving an O2 prescription.
Also interesting, if someone hasn't figured it out, to tap on individual names and go to the icon that displays their last 50 messages. Some people do seem to be on the attack most of the time, some who I was wondering about, seem to have some serious depth to them. Mea Culpa!
There was a suggestion in one thread to read the Dr Robbins page for research:
Multimedia File Viewing and Clickable Links are available for Registered Members only!! You need to
or
Certainly worth reading, if nothing else, to point out the lack of recent substantive research on CH.
One somewhat dated survey caught my attention, allow me to clip:
Eighty-three percent of survey respondents qualified as CH sufferers according to IHS criteria. However, diagnosis was delayed an average of 6.6 years from onset of symptoms. The average number of physicians seen before the correct diagnosis was made was 4.3 and the average number of incorrect diagnoses was 3.9. Seventy-one percent of respondents had undergone unnecessary MRI's or CT scans and four percent had unnecessary sinus or deviated septum surgery. We found that inappropriate medications such as propanolol, amitriptyline, and antibiotics were prescribed and that successful medications for CH such as Imitrex and oxygen were often denied due to a failure to understand the nature of this disorder. Seventy-seven percent of respondents were smokers which correlates with previously published data. Seventy-four percent stopped smoking in an attempt to improve their condition, however, only 3% experienced relief.
If I'm reading correctly, standard medical practice in year 2000, delayed CH treatment by an average of 6 years, and the average sufferer had to endure 4 misdiagnoses and see 4 doctors before someone got it right, with the majority of sufferers enduring ct's, mri's and ineffectatious courses of drug treatments, all, of course, were even given free by the providers, or at least given with a money back guarantee.
I have been challenged for my questioning of standard medicine, also "Pharm Bashing", perhaps rightly so. Perhaps though, I am not totally off the mark.
I also note a recurring thesis that all non standard medicine is simply a money gouging fraud. As I chop my pills into one quarters, grateful that the 1/4 seems to help my headaches, I note that the average cost of an entire course of treatment from my non standard practitioner, costs less than a single month's prescription, (and I have two prescriptions), less than any Cat Scan, MRI, Neurological workup, Headache Clinic or whatever.
Opposing any treatment simply on a cost basis, is an argument without merit. Go on, just tell me that a tank of Oxygen costs too much, we shouldn't use it.
Heck, well educated, well intentioned doctors misdiagnose, and deny even the most basic relief, like O2, all the time, look at the studies, go back and read the threads. I don't condemn them, it is a product of ignorance, and a system awash in billions of dollars, dominated by corporations, insurance forms and HMO's, where it is easier to justify a cat scan than a bottle of oxygen.
If I have a fight here, I guess it is against ignorance. The ignorance of a new CH sufferer, who might not even know what they have, and certainly hasn't heard about the neat things we discuss on all these threads. The ignorance of individual doctors, a la the Robbins paper, who just haven't taken or don't have the time to study up, and don't have the humility to say "I don't know". Last, as one might infer, the ignorance of those who say "N0, no, no", when they might better be saying "I don't know, maybe?".
For those of you complaining the thread is getting old, PLEASE, there is no gun pointed at your head. There are other threads I find boring or shallow, but rather than try to censor and in effect denigrate them, I have a great new trick.
I don't read them any more.
God bless all the posters I've read over this period. Ranting, philosophical, in pain, challenging, argumentative, off the wall, whining, dictatorial, they all have their places. Take them all with a grain of salt, believe them or don't believe them, but in the long run, we have to hope the average reader has the hutzpah to separate the crap from the petunias, and hopefully walk away with an occasional flower, while not smelling too bad. Correct me if I'm wrong, isn't there something in the Constitution about that, its sort of a very American concept.
Anyway, I'm in a great mood, 8 1/2 hours of sleep, sun is shining on all the damned ice on everything, God Awesome beautiful, and it's my boy's 12th birthday. Doesn't get too much better than that.
To all my new friends, Rolo, Jimi, Kevin, Boomer,Racer, Linda, Michael I can only wish you a PF day, and a few moments to stop and smell the roses, or petunias, or whatever good things come your way today.
Best,
Chris
Home
Pages: 
Does Applied Kinesiology Help Clusters? Feedback?? (Read 23731 times)
