Dehlia
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I Love CH.com!
Posts: 5
Massachusetts
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Thanks everyone for your caring replies !
For his Clusters he has oxygen which doesn't abort his headaches but it helps so they don't get as bad, but only if he can catch it early, so it doesn't help when he wakes up with headaches at night.He has been on Verapamil for about a year , so this cycle and last cycle were milder due to the Verapamil. (He has his cycles in the spring & in the fall) The only problem with the Verapamil is it makes the cycles last longer , but it is a good trade off. He also has imitrex injections which do help but he doesn't like to take it often due to the side affects. He tried prendizone & Lidacane , both of which didn't help. How does the red bull work ? & how should he take it ? His psycopharmocologist does both the prescribing of his Prozac for his bipolar & depression . He is a really good doctor , he goes out of his way to help my husband . He also does his therapy & prescribes trilepltal for his epilepsy (which hasn't been a problem lately) He has a background in Neurology. His PCP prescribed the other meds for his clusters. He has a Rheumotologist that prescribed the Lyrica for his body pain (but it doesn't work) , He is slowly going up on the dose , so he is not at the full dose yet , so hopefully it will help when he is on a higher dose. He has a gastroenterologist that prescribes his stomach meds & during his non-headache time was doing testing to try to figure out what is wrong , but he hasn't figured it out yet. Well thanks again everyone , Linda, I may take you up on that phone call. Karla, Sorry to hear about your chronic clusters as well as all of your other health problems , I have schizophrenia too & I can't imagine having chronic cluster headaches on top of it. thank you on your input about what it would be like for him in a hospital during his clusters, His psycopharmocologist does know he is suicidal & I did call him a couple of weeks ago , I told him I was very worried , I asked him if I could get him in a hospital even if my husband refuses & he said , if he is suicidal a doctor or a policeman can write a ten day note to put him in the hospital. I asked him what I should do & he asked me if I was calling him because I thought my husband was going to attempt to kill himself then & I said no, & he said take it as it comes. After reading what you wrote about your hospital stay, I feel better about it if I have to put him in one. -Dehlia
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