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chrisw

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x0|turnersville|NJ,USA
Gender: female

Im back but their not!!!
Nov 13^th, 2009 at 8:12am

Hi all,
I dont know if anyone remembers me, but I want to say hello to everyone again. Had my last HA back in May, I have felt so damn good since then. I got completely off HA meds for the first time in years. I did something this summer that i havent been able to do in years also. I took my kids and spent the summer down at the NJ shore. I could never do that before without worrying about clusters and meds and tanks etc. Also, I never would have wanted to do it either. Anyway, came home in Sept. and have beenn living it up since then. I swear, I view every PFD as a gift, and I wake up every morning so thankful for the sleep . A while back I posted a poem about sleep, Ode to sleep, and now I can say sleep is one of my best friends. Anyway, I wanted to say hi to everyone, and that I will try to help others get through what can be a very difficult time of year. (It always is for me) I dont know if the beast will return, but I am greatful for the last six months.

Christine Grin

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Iddy CH.com Alumnus Offline Smile Posts: 486 Toronto,Canada Gender:	Re: Im back but their not!!! Reply #1 - Nov 13^th, 2009 at 8:23am That's wonderful news Christine!! Wishing you all the best and continued PFDS Iddy
Back to top	Walk in Peace "If you can, help others, if you cannot do that, at least do not harm them." Dalai Lama IP Logged

Chad CH.com Hall of Famer Offline Posts: 738 Emmaus, PA Gender:	Re: Im back but their not!!! Reply #2 - Nov 13^th, 2009 at 8:39am That's a fantastic attitude Christine! You get an A++++++++++ from me. Cherishing pain free days is what you have to do to get the best out of life and the best out of our condition. I am out of cycle as well and do the same as you. I try to check in this site daily and post where I can to support others. Cheers, Chad
Back to top	When the PAIN starts, I FIGHT back! Rivea Corymbosa seeds were my KO punch, now D3 is the front runner! IP Logged

Jeannie CH.com Sponsor Offline Live, Laugh, Love.... Posts: 2333 St Louis, Missouri Gender:	Re: Im back but their not!!! Reply #3 - Nov 13^th, 2009 at 9:53am Welcome back, Christine! I'm so happy to hear that you are pain free! Jeannie
Back to top	"It's all a grand illusion when you think you're in control." ~ Kenny Chesney IP Logged

Lefty CH.com Alumnus Offline Posts: 759 Gender:	Re: Im back but their not!!! Reply #4 - Nov 13^th, 2009 at 10:08am That's great news Christine...! It's definitely nice to be enjoying good old uninterrupted sleep once again Lefty..!
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bejeeber

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Posts: 1359
Gnashville
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Re: Im back but their not!!!
Reply #5 - Nov 13^th, 2009 at 10:20am

You go girl! Grin

Ahhhh sleep sweet sleep. Smiley

Now if only people could start spelling "they're" correctly in the titles of their new topics, everything would be good. Kidding. I'm undoubtedly guilty of my share of spelling/grammar atrocities. Wink

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CH according to Bejeeber:

Strictly relying on doctors for CH treatment is often a prescription that will keep you in a whole lot of PAIN. Doctors are WAY behind in many respects, and they are usually completely unaware of the benefits of high flow 100% O2.

There are lots of effective treatments documented at this site. Take matters into your own hands, learn as much as you can here and at clusterbusters.com, put it into practice, then tell this CH beast Jeebs said hello right before you bash him so hard with a swift uppercut knockout punch that his stupid horns go flinging right off.

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LeLimey Ex Member	Re: Im back but their not!!! Reply #6 - Nov 13^th, 2009 at 1:37pm Welcome back Chris - it's always good to see people return especially when they come back with good news! Glad you're here! Helen
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chrisw CH.com Old Timer Offline Posts: 315 x0\|turnersville\|NJ,USA Gender:	Re: Im back but their not!!! Reply #7 - Nov 13^th, 2009 at 8:08pm thanks guys for the warm welcome. I will try to do better with my spelling, but its actually more of a typing issue. sometimes i type faster than i can think. ha ha warmly christine
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Brew CH.com Sponsor CH.com Alumnus Offline Posts: 14163	Re: Im back but their not!!! Reply #8 - Nov 13^th, 2009 at 8:58pm Don't let the grammar police get you down - I'm glad you're feeling better. Welcome back.
Back to top	"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand IP Logged

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Weatherman

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Beat the Beast!

Posts: 159
Charlotte, NC
Gender: male

Re: Im back but their not!!!
Reply #9 - Nov 14^th, 2009 at 12:00am

chrisw wrote on Nov 13^th, 2009 at 8:08pm:

sometimes i type faster than i can think. ha ha

warmly
christine Cheesy

I hear you there! When I do the weather, my mouth often gets ahead of my brain. But I have fun with it. I usually just stop, look at the camera/viewers, then say "let's just try that again". The viewers always seem to get a kick out of it.

Oh, welcome back! And congrats on your pain free times! Hope it keeps up!

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The point of the journey is not to arrive.

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void

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Never stop moving.

Posts: 27
Gender: male

Re: Im back but their not!!!
Reply #10 - Nov 14^th, 2009 at 8:01pm

I'm happy for you.
I have so long time between my episodes I should not complain.

Anyhows - I read about your PFD thinking and was a bit envious. I am 3-4 months now from my last attack and I am still not sleeping regularly. The attacks mess me up so bad, so when I am in remission I still cant sleep properly. I am doing 3-4 hours a night and its really taking its toll. I know I will start forgetting and going back to normal, but it takes too much time. I wish I could be more 1-day-at-atime mode

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Brew

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Re: Im back but their not!!!
Reply #11 - Nov 15^th, 2009 at 1:20pm

void wrote on Nov 14^th, 2009 at 8:01pm:

I'm happy for you.
I have so long time between my episodes I should not complain.

Anyhows - I read about your PFD thinking and was a bit envious. I am 3-4 months now from my last attack and I am still not sleeping regularly. The attacks mess me up so bad, so when I am in remission I still cant sleep properly. I am doing 3-4 hours a night and its really taking its toll. I know I will start forgetting and going back to normal, but it takes too much time. I wish I could be more 1-day-at-atime mode

Have you tried melatonin?

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"I have been asked if I have changed in these past 25 years. No, I am the same. Only more so." --Ayn Rand

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MattyAA

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I Love CH.com!

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Poland, EU
Gender: male

Re: Im back but their not!!!
Reply #12 - Nov 15^th, 2009 at 7:37pm

bejeeber wrote on Nov 13^th, 2009 at 10:20am:

Now if only people could start spelling "they're" correctly in the titles of their new topics, everything would be good. Kidding. I'm undoubtedly guilty of my share of spelling/grammar atrocities. Wink

I thing, that her spelled more then correctly.

And I am just joking and guilty to.

*teases Bejeeber*

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