There's a supporter's group on this website.  I'm trusting one of the moderators will come along and maybe move your post to that section.  If not - rest assured the other supporters will find you.  God Bless our supporters!!!!

Carol

Thanks for the quick responses... It sure looks like it's the worst pain EVER. Nothing I've ever experienced comes close to what I've see him going through. I'm a tough chick and this scared me. I am holding strong for him and crumbling when he isn't around.  I have spent most of the past few nights on this website and a few others soaking up as much info as i can. 

Any advice is welcome here... all of you who suffer from CH are truly the strongest people I know. Thank you for everything you offer !!!

Get used to it; I'm not even one of the nice ones.
Some of the smartest, most compassionate, kind individuals I have ever known are on this site.  No word of a lie.

There are modern treatments to CH's; perhaps send your other half over to this site and see if he's interested.

Imitrex injections, and oxygen (LINKS ON THE LEFT THERE) are very popular.  Lots of recent breakthroughs in Oxygen use....

Sorry if A CCHr shouldn't be here, but you're so wrong in one statement.
In my humble opinion, we are not the strongest people you know - look to yourself!
We have a minute by minute fight, but often with one enemy - The CH.  You, on the other hand, not only have to try and watch your loved one in terrible suffering, but you will probably feel guilt for not being able to help us. Feel useless for ot being able to take away the pain etc.  Then you have to get on with your own daily life as well as carry the worry about us etc - Get the picture.  As a CCHr I watch my wife with awe and wonder, I'm only partly sure I'd have the strength to carry the burden of caring for someone like me, a family, a job and still not lose it!
One more thing, again personal only, please if he's like me it sometimes helps to see you scream or cry - it tells me I'm not on my own and helps me focus for a while on the devastastion this illness causes someone else apart from me.
LOL
Andy

Thanks for all the kind words everyone... He's been having a couple of BAD days... headache and throbbing all day... ugh. I still wish I could pull out that pain...   I don't think he's had anyone do this 'with' him before... He keeps reminding me that this will end soon...  counting the days...

Debbie

K. Hartley wrote on Feb 17^th, 2010 at 11:27am:

Tell him to stop it. But not while he's having an attack.

I'm a supporter, just like you.  I've been married for almost 28 years, and lived with the beast (CH, not my sweetie!) for about 20 of those years. 

My hubby was chronic for a bunch of those years and I can tell you honestly I spent a lot of time in the basement, in the garage, on the patio, anywhere but where he was having an attack.  He likes to be alone during an attack.  I leave because he wants me to; and then I can cry, or scream into a pillow, or punch soft things until I'm numb.  I've spent a lot of time on the patio crying or deep breathing or whatever suits the day.  I do what he asks and then try to get myself under control. 

While we supporters will never know the pain of a cluster headache, we know intimately the pain of watching a loved one battle this crappy beast day after day.  It ain't easy and certainly not for the faint of heart.  But I can tell you with certainty that understanding each other in this battle can bring you closer together and create a bond unlike any other.  It's worth sticking around.

chsbabydoll wrote on Nov 20^th, 2009 at 10:59am:


We bear it because we must; that is not brave or strong, that's just the will to fight for life.  We don't have a choice yet you do; you don't have to stick around and you don't have to be there for us.  Yet you are. Every single time and THAT is strength.