Hello, I´m new here and with this.

I´m Alejandro and the girl that I love has this CH, I would like to ask if you can help me to understand more about this.
I have questions about the lack of sleep  and how hard it is for people that have never seen it to understand. How embarresing it is and how other couples deal with it and how many marriages fail from it.

This is really new for me, I never heard about it or nothing in my life till I met her, and I would like if you can help me to understand more about all of this.

Thank you so much, and I will appreciate all the help.

In love with a woman who has CH! You're an incredibly lucky man. You've found a woman who can survive regular pain most cannot even imagine. And not only survive it, live life around it. She's one you do NOT let get away.

Do lots of reading on the board. Educate YOURSELF  first, then find out what she wants you to do and not do to help. The old days of just suffering the pain are long gone. Join the supporters section on this board and learn how others deal with it. My wife has managed to stick with me over 30 years. Brew and his wonderful wife are right up there with us. There are many long term relationships on this board so it can be done.

Oh, and get her on to this board to make sure she's getting the most current treatments. Welcome to the board, you're officially a supporter now!

Joe

Yep - have been married to my clusterhead for almost 28 years.  It's not easy, especially if your loved one is chronic or into a heavy cycle.  Sometimes it feels like it will never end.  But it does.  And it will.  And it's not fatal.

Living and loving BETWEEN the hits is the key.  The minute you give this awful beast the power to upset and disrupt your lives, you've lost the battle. 

Never allow it embarrass you or her.  She didn't ask for this disease and there is nothing about which to be embarrassed.  If she gets hit in public try to steer her away from people (more for her comfort than anything else), get her cooled off (air conditioning or a cold can of soda pop for her head), if she uses Oxygen, get it for her (and she should have it with her at all times - it's a wonder treatment!), and if necessary stand with your back to her to shield her from prying and well-meaning passersby.

Hardest thing to learn is they go through it alone.  Not much we supporters can physically do except shield them.  And remain true to them.

Pat's right - if you're at all able to join us in Atlanta in July - the trip will be well worth it for you both! See the info for "OUCH Convention" at Multimedia File Viewing and Clickable Links are available for Registered Members only!!  You need to or